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Experiences with
Pilocarpine
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RA and Vasculitis connection?
I did get a prescription for
pilocarpine
recently. Alhough the effects wear off in 5-6 hours, it has really helped a lot. In fact, a few days ago I awoke to a drool covered pillow!! Sorry, TMI..? . I have had two TIA's recently.
I did get a prescription for
pilocarpine
recently. Alhough the effects wear off in 5-6 hours, it has really helped a lot. In fact, a few days ago I awoke to a drool covered pillow!! Sorry, TMI..? . I have had two TIA's recently.
Rafrancie
in
Cure Arthritis Community
8 years ago
Oh deary me. I so want to give up. Could admin staff read and help? P,ease?
Unctuous fellow scandalised that my meds had not been reviewed, but there is a tale there, request/plea for an alternative pill to
Pilocarpine
for worsening Sjogrens brings theatrical disbelief that no chemist around will dispense it,
I am a dental surgeon I know this pill, it is 30yrs old...
Unctuous fellow scandalised that my meds had not been reviewed, but there is a tale there, request/plea for an alternative pill to
Pilocarpine
for worsening Sjogrens brings theatrical disbelief that no chemist around will dispense it,
I am a dental surgeon I know this pill, it is 30yrs old...
Footygirl
in
Pernicious Anaemia Society
8 years ago
Salagen (Pilocarpine)
Hi Everyone , I have been
Pilocarpine
or Salagen as it has been called for over 7 years ,it was prescribed by my then consultant to help with my Sjogren's . i placed my repeat prescription into the doctors as normal only to be told by the pharmacy that they can no longer get it.
Hi Everyone , I have been
Pilocarpine
or Salagen as it has been called for over 7 years ,it was prescribed by my then consultant to help with my Sjogren's . i placed my repeat prescription into the doctors as normal only to be told by the pharmacy that they can no longer get it.
Mrsdoozer
in
LUPUS UK
8 years ago
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Update On Salagen Pilocarpine Saga
In the meantime Bridget tells me that you can get
Pilocarpine
(Salagen) in the form of eyedrops of 1,2,3, &4% , a bit strange but it does make sense when i explain what she told me .
In the meantime Bridget tells me that you can get
Pilocarpine
(Salagen) in the form of eyedrops of 1,2,3, &4% , a bit strange but it does make sense when i explain what she told me .
Mrsdoozer
in
LUPUS UK
8 years ago
Introduction
My current therapy is 200 mgs of Minocyline with Folate and
Pilocarpine
, as well as some others not related to the RA. Hope you are all having a wonderful day, Caeryl in the US
My current therapy is 200 mgs of Minocyline with Folate and
Pilocarpine
, as well as some others not related to the RA. Hope you are all having a wonderful day, Caeryl in the US
Hidden
in
NRAS
8 years ago
My saga goes on
😀 Given up on
Pilocarpine
prescription. Getting nowhere. Disappointed. Man Roy Inf sent apt for Occupational Therapy for help with gadgets and supports for arms as pain increasing. May hear when I can go on Fibromyalgia management course. Not heard anything yet on CT from last week... Good thing?
😀 Given up on
Pilocarpine
prescription. Getting nowhere. Disappointed. Man Roy Inf sent apt for Occupational Therapy for help with gadgets and supports for arms as pain increasing. May hear when I can go on Fibromyalgia management course. Not heard anything yet on CT from last week... Good thing?
Footygirl
in
LUPUS UK
8 years ago
Anyone else see "TRUST ME I'M A DOCTOR" last night?
Pilocarpine
? So proud of myself for remembering that!
Pilocarpine
? So proud of myself for remembering that!
Footygirl
in
LUPUS UK
8 years ago
PART TWO OF MANCHESTER REFERRAL
GP ACTION
REF FOR PHYSIO/OT FOR FYBRO MANAGEMENT
TRIAL OF GABAPENTIN OR PREGABALIN as before
Trial saliva substitute or
Experiment with artificial tears
Review ferritin deficient anaemia.
GP ACTION
REF FOR PHYSIO/OT FOR FYBRO MANAGEMENT
TRIAL OF GABAPENTIN OR PREGABALIN as before
Trial saliva substitute or
Experiment with artificial tears
Review ferritin deficient anaemia.
Footygirl
in
LUPUS UK
8 years ago
Pilocarpine (salagen): update
The rheumatologist was interested in my active sjogrens, and suggested a trial of
pilocarpine
. I went home, googled
pilocarpine
...the info I found did not make me like the prospect of a trial ...loads of really spooky side effects...but, as eye drops, at least, perhaps easier to undergo.
The rheumatologist was interested in my active sjogrens, and suggested a trial of
pilocarpine
. I went home, googled
pilocarpine
...the info I found did not make me like the prospect of a trial ...loads of really spooky side effects...but, as eye drops, at least, perhaps easier to undergo.
Barnclown
in
LUPUS UK
9 years ago
Dry Mouth (Xerostomia)
Has anyone tried using
Pilocarpine
or Cevimeline tablets for helping to alleviate the symptoms of dry mouth. They have been used with some success in the USA but are not licensed for use in the UK because there have been no clinical trials.
Has anyone tried using
Pilocarpine
or Cevimeline tablets for helping to alleviate the symptoms of dry mouth. They have been used with some success in the USA but are not licensed for use in the UK because there have been no clinical trials.
Sweet1pea
in
PBC Foundation
9 years ago
Anyone here with experience of pilocarpine (salagen)?
So, I would be very glad to hear about others' experiences of
pilocarpine
....I'll feel better about a trial of
pilocarpine
if I've heard something from someone on forum...am not afraid of bad reactions, just want to go into this with my eyes wide open
So, I would be very glad to hear about others' experiences of
pilocarpine
....I'll feel better about a trial of
pilocarpine
if I've heard something from someone on forum...am not afraid of bad reactions, just want to go into this with my eyes wide open
Barnclown
in
The Australian Sjögren's Syndrome Association
10 years ago
Pilocarpine
Has anyone tried this medication? I've been having problems with dry/sore throat that's probably in a flare and my normal spray is not having any effect. The consultant suggested this medicine on my last visit. I declined as it was under control at the time and was put off by the side affects. Now it
Has anyone tried this medication? I've been having problems with dry/sore throat that's probably in a flare and my normal spray is not having any effect. The consultant suggested this medicine on my last visit. I declined as it was under control at the time and was put off by the side affects. Now it
Chris21
in
LUPUS UK
10 years ago
Pilocarpine .One G.P. put me on this another told me to Stop using. What results are others finding using this. Evoxac anyone using this?
adleybra
in
The Australian Sjögren's Syndrome Association
11 years ago
Huh Sjorgens just live with it!
I've read that
pilocarpine
and cevimeline can be prescribed....has anyone had this prescribed to them?????? I can tolerate the pain, the tiredness, the dry skin and eyes etc, but not the mouth....any tips?
I've read that
pilocarpine
and cevimeline can be prescribed....has anyone had this prescribed to them?????? I can tolerate the pain, the tiredness, the dry skin and eyes etc, but not the mouth....any tips?
Hidden
in
NRAS
12 years ago
What are the treatment options for Sjögren's syndrome?
Pilocarpine
tablets are saliva stimulants that are sometimes prescribed. . Treatment of other symptoms •Moisturisers and special bath additives can be used for dry skin. •Lubricants may be needed when you have sex.
Pilocarpine
tablets are saliva stimulants that are sometimes prescribed. . Treatment of other symptoms •Moisturisers and special bath additives can be used for dry skin. •Lubricants may be needed when you have sex.
june_jdr
in
The Australian Sjögren's Syndrome Association
13 years ago
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