Well last night I went to my first ENT appointment regarding my Sjorgens Syndrome. My main complaint is the excessive dryness in my mouth which makes it EXTREMELY difficult to swallow food, which has ultimately led to me getting anxious at meal times and throughout the day.
The consultant was very nice and had a great manner with me. He gave me a local anaesthetic and put a camera up my nose and down my throat. Luckily there are no lumps, lesions or ulcers so that is fantastic news! But my mouth (and nose) are dry. I do produce some saliva but not that much and I have to drink water constantly and with 90% of food mouthfuls in order to swallow.
I know its a chronic disease and I know there will be times when I have a particular flare up, but I did think there maybe something he could prescribe to stimulate saliva production. I already use the sprays and lozenges but its becoming harder to swallow. I've read that pilocarpine and cevimeline can be prescribed....has anyone had this prescribed to them??????
I can tolerate the pain, the tiredness, the dry skin and eyes etc, but not the mouth....any tips?
Sorry for whinging, I just feel a bit angry that I've not really been given an option.