Experiences with

Pilocarpine

Pilocarpine I think it is that’s given and I know how they work but I’m wondering if I’m just having an unusual reaction. In the 40 mins after getting the drops that I was sitting waiting for the SLT, my head felt like it was going to burst (ok bit of an exaggeration but it hurt!)

Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started taking Pilocarpine along with Hydroxychloroquine and other meds for Raynaurds. One of my biggest issues was painful sinus headache and catarrh build up in my throat, which had been quite settled.

On hearing this, he diagnosed sjogren's and prescribed Pilocarpine along with my other meds. This seems to have helped, especially with my sore mouth. Since then he has directed me to a Sjogrens clinic.

Can anyone please advise me on when is best to administer the eye drops. I have to have 1 drop in each eye per day. I've been advised my vision may be limited and wondered if it might be better to take them at night as not to interrupt my day. I am worried however, if I were to take them at night and

Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well.

Hello everyone, The Helpline has been receiving calls and emails regarding problems obtaining Pilocarpine 2% Callers have been told by their pharmacists that Pilocarpine 1% is still available. Pilocarpine is licenced, so there are many different manufacturer who can produce it.

I have been prescribed Pilocarpine for dry mouth and throat which has been really helpful. Currently use hylo eye gel on a night and Xailin drops throughout the day for dry eye, but they just don’t seem to be getting any better. Any suggestions welcome. thanks x

Can't get pilocarpine drops from pharmacy as no stocks and no date for return. Tried other pharmacies and same. Consultant not answered email from Dr regarding alternatives. My bottle nearly empty and should be replaced tomorrow. Any ideas as to what I can do now anyone.

The drops are Pilocarpine Cosopt Lantanaprost - the unopened ones of these are kept in the fridge already. thanks in advance.

.), I was then asked to just take only pilocarpine 3 times a day and cosopt twice a day and have a follow up in a week. On my next visit a week later 23rd May my pressures 21 and 20, and I was asked to take Pilocarpine 3 times a day, lantaprost at night.

Cosopt x 2 a day Pilocarpine x 3 times a day Lumigan x 1 at night Viscotears to help with dry eye at night I’m also taking Acetazolamide tablets x 4 a day thank again

The downside of the meds are the pilocarpine give my a thick head and achy eyes, the Acetazolamide makes me tired (I was previously on the slow release version but you can’t get hold of this at the moment), I also get the tingly hands, face and legs.

Currently there are two prescription drugs available: pilocarpine (Salagen) and cevimeline (Evoxac). However, both have potentially significant side effects that may preclude their usage. Good oral hygiene is critical in preventing dental disease.

HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly

I was on Diamox for 3 days afterwards, then usual drops plus pilocarpine.

I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed pilocarpine in addition (four times a day). Interested to hear from anyone who isusing Pilocarpine especially re side effects.

I'm only on hydroxy and pilocarpine at the moment. Luckily it's mostly in the feet and it's not causing much pain just sore and sensitive. It's a little bit in the fingers. I have read catching it early can help.

I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't be old age thinning skin yet. I'm getting frustrated as walking anywhere just causes pain and soreness and rubbing sores.

She’s been on a lot of eye drops but is now down to just pilocarpine four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist hasn’t really given her any useful advice.

I'm aware it will need a trab in time, so in the meantime he's put me on pilocarpine 4 times a day. Does anyone have experience of this? The information leaflet says it's only used in emergencies and the side affects are worrying, but am trying not to get hung up on these.