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Experiences with
Pilocarpine
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Sinus and cough
Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started taking
Pilocarpine
along with Hydroxychloroquine and other meds for Raynaurds. One of my biggest issues was painful sinus headache and catarrh build up in my throat, which had been quite settled.
Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started taking
Pilocarpine
along with Hydroxychloroquine and other meds for Raynaurds. One of my biggest issues was painful sinus headache and catarrh build up in my throat, which had been quite settled.
Mctd
in
LUPUS UK
5 months ago
Never ending circle
On hearing this, he diagnosed sjogren's and prescribed
Pilocarpine
along with my other meds. This seems to have helped, especially with my sore mouth. Since then he has directed me to a Sjogrens clinic.
On hearing this, he diagnosed sjogren's and prescribed
Pilocarpine
along with my other meds. This seems to have helped, especially with my sore mouth. Since then he has directed me to a Sjogrens clinic.
Mctd
in
LUPUS UK
4 months ago
Advice Please: Pilocarpine Eye Drops 2.0%
Can anyone please advise me on when is best to administer the eye drops. I have to have 1 drop in each eye per day. I've been advised my vision may be limited and wondered if it might be better to take them at night as not to interrupt my day. I am worried however, if I were to take them at night and
Can anyone please advise me on when is best to administer the eye drops. I have to have 1 drop in each eye per day. I've been advised my vision may be limited and wondered if it might be better to take them at night as not to interrupt my day. I am worried however, if I were to take them at night and
LakeFriend
in
Glaucoma UK
10 months ago
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Pilocarpine 2%
Hello everyone, The Helpline has been receiving calls and emails regarding problems obtaining
Pilocarpine
2% Callers have been told by their pharmacists that
Pilocarpine
1% is still available.
Pilocarpine
is licenced, so there are many different manufacturer who can produce it.
Hello everyone, The Helpline has been receiving calls and emails regarding problems obtaining
Pilocarpine
2% Callers have been told by their pharmacists that
Pilocarpine
1% is still available.
Pilocarpine
is licenced, so there are many different manufacturer who can produce it.
Trish_GlaucomaUK
Partner
in
Glaucoma UK
1 year ago
Pilocarpine eye drops
Can't get
pilocarpine
drops from pharmacy as no stocks and no date for return. Tried other pharmacies and same. Consultant not answered email from Dr regarding alternatives. My bottle nearly empty and should be replaced tomorrow. Any ideas as to what I can do now anyone.
Can't get
pilocarpine
drops from pharmacy as no stocks and no date for return. Tried other pharmacies and same. Consultant not answered email from Dr regarding alternatives. My bottle nearly empty and should be replaced tomorrow. Any ideas as to what I can do now anyone.
Crafted
in
Glaucoma UK
1 year ago
What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis
Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine &
Pilocarpine
). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well.
Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine &
Pilocarpine
). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well.
Jules1821
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Secondary Sjogrens
I have been prescribed
Pilocarpine
for dry mouth and throat which has been really helpful. Currently use hylo eye gel on a night and Xailin drops throughout the day for dry eye, but they just don’t seem to be getting any better. Any suggestions welcome. thanks x
I have been prescribed
Pilocarpine
for dry mouth and throat which has been really helpful. Currently use hylo eye gel on a night and Xailin drops throughout the day for dry eye, but they just don’t seem to be getting any better. Any suggestions welcome. thanks x
Alexia01
in
LUPUS UK
4 months ago
Storing eye drops in the heat
The drops are
Pilocarpine
Cosopt Lantanaprost - the unopened ones of these are kept in the fridge already. thanks in advance.
The drops are
Pilocarpine
Cosopt Lantanaprost - the unopened ones of these are kept in the fridge already. thanks in advance.
KBIOW
in
Glaucoma UK
1 year ago
Help please is it possible in a month for the angle to change from narrow to wide open angles? This just doesn’t make sense to me.
.), I was then asked to just take only
pilocarpine
3 times a day and cosopt twice a day and have a follow up in a week. On my next visit a week later 23rd May my pressures 21 and 20, and I was asked to take
Pilocarpine
3 times a day, lantaprost at night.
.), I was then asked to just take only
pilocarpine
3 times a day and cosopt twice a day and have a follow up in a week. On my next visit a week later 23rd May my pressures 21 and 20, and I was asked to take
Pilocarpine
3 times a day, lantaprost at night.
KBIOW
in
Glaucoma UK
1 year ago
Preservative free v preservative drops
Cosopt x 2 a day
Pilocarpine
x 3 times a day Lumigan x 1 at night Viscotears to help with dry eye at night I’m also taking Acetazolamide tablets x 4 a day thank again
Cosopt x 2 a day
Pilocarpine
x 3 times a day Lumigan x 1 at night Viscotears to help with dry eye at night I’m also taking Acetazolamide tablets x 4 a day thank again
KBIOW
in
Glaucoma UK
1 year ago
Referral to another hospital
The downside of the meds are the
pilocarpine
give my a thick head and achy eyes, the Acetazolamide makes me tired (I was previously on the slow release version but you can’t get hold of this at the moment), I also get the tingly hands, face and legs.
The downside of the meds are the
pilocarpine
give my a thick head and achy eyes, the Acetazolamide makes me tired (I was previously on the slow release version but you can’t get hold of this at the moment), I also get the tingly hands, face and legs.
KBIOW
in
Glaucoma UK
1 year ago
Just diagnosed
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on
pilocarpine
drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on
pilocarpine
drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
Paula1710
in
Glaucoma UK
2 years ago
Dry Mouth & the Advanced PC Patient (for those on Pluvicto or meds or ICI, where a side effect is dry mouth) - A Guide
Currently there are two prescription drugs available:
pilocarpine
(Salagen) and cevimeline (Evoxac). However, both have potentially significant side effects that may preclude their usage. Good oral hygiene is critical in preventing dental disease.
Currently there are two prescription drugs available:
pilocarpine
(Salagen) and cevimeline (Evoxac). However, both have potentially significant side effects that may preclude their usage. Good oral hygiene is critical in preventing dental disease.
rsgdmd
in
Advanced Prostate Cancer
1 year ago
Visual field deterioration 6 weeks after cataract and Hydrus stent surgery?
I was on Diamox for 3 days afterwards, then usual drops plus
pilocarpine
.
I was on Diamox for 3 days afterwards, then usual drops plus
pilocarpine
.
Iona57
in
Glaucoma UK
2 years ago
Pilocarpine
I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed
pilocarpine
in addition (four times a day). Interested to hear from anyone who isusing
Pilocarpine
especially re side effects.
I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed
pilocarpine
in addition (four times a day). Interested to hear from anyone who isusing
Pilocarpine
especially re side effects.
Machicado
in
Glaucoma UK
2 years ago
sore feet possible peripheral neuropathy.
I'm only on hydroxy and
pilocarpine
at the moment. Luckily it's mostly in the feet and it's not causing much pain just sore and sensitive. It's a little bit in the fingers. I have read catching it early can help.
I'm only on hydroxy and
pilocarpine
at the moment. Luckily it's mostly in the feet and it's not causing much pain just sore and sensitive. It's a little bit in the fingers. I have read catching it early can help.
dg70
in
LUPUS UK
2 years ago
sensitive feet?
I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or
pilocarpine
. I'm early fifties so it can't be old age thinning skin yet. I'm getting frustrated as walking anywhere just causes pain and soreness and rubbing sores.
I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or
pilocarpine
. I'm early fifties so it can't be old age thinning skin yet. I'm getting frustrated as walking anywhere just causes pain and soreness and rubbing sores.
dg70
in
LUPUS UK
2 years ago
Eye Drops
She’s been on a lot of eye drops but is now down to just
pilocarpine
four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist hasn’t really given her any useful advice.
She’s been on a lot of eye drops but is now down to just
pilocarpine
four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist hasn’t really given her any useful advice.
Glos35
in
Glaucoma UK
2 years ago
Follow up from trab
I'm aware it will need a trab in time, so in the meantime he's put me on
pilocarpine
4 times a day. Does anyone have experience of this? The information leaflet says it's only used in emergencies and the side affects are worrying, but am trying not to get hung up on these.
I'm aware it will need a trab in time, so in the meantime he's put me on
pilocarpine
4 times a day. Does anyone have experience of this? The information leaflet says it's only used in emergencies and the side affects are worrying, but am trying not to get hung up on these.
Petrolblue
in
Glaucoma UK
3 years ago
Preservative free pilocarpine
Pilocarpine
eye drops prescribed preservative free but pharmacy not been able to get me any so stuck with non preservative kind it seems. Anyone know why they are not available or is it just in my region?
Pilocarpine
eye drops prescribed preservative free but pharmacy not been able to get me any so stuck with non preservative kind it seems. Anyone know why they are not available or is it just in my region?
Crafted
in
Glaucoma UK
3 years ago
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