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Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men (MSM),
Please consider being part of the COMPASS Study here: malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men (MSM),
Darryl
Partner
in
Prostate Cancer And Gay Men
8 months ago
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
8 months ago
Latest Treatments for Advanced Prostate Cancer
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
NecessarilySo
in
Advanced Prostate Cancer
10 months ago
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Heat or Light Therapy
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
8 months ago
Had my REMS scan today
Excellent session and good news - REMS shows that I don’t have osteoporosis even though DXA says I did! I am osteopenic which is what I suspected and why I wanted the scan. Advice was to manage with diet and exercise which I am all in favour of and no intention of ever going on the drugs. Dr was very
Excellent session and good news - REMS shows that I don’t have osteoporosis even though DXA says I did! I am osteopenic which is what I suspected and why I wanted the scan. Advice was to manage with diet and exercise which I am all in favour of and no intention of ever going on the drugs. Dr was very
CDreamer
in
Bone Health and Osteoporosis UK
8 months ago
QOL Arm wrestling
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
Scout4answers
in
Advanced Prostate Cancer
8 months ago
"Your thyroid's fine"...what do you think?
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Sleepysparrow
in
Thyroid UK
8 months ago
ADT how long
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
SilverSeppi
in
Advanced Prostate Cancer
8 months ago
sweating with hypothyroidism
hi I posted last month because although on lethvothyrovxine I was getting really dreadful heat sweats (hair, clothes soaked). I now have my complete hormone tests back . It has been found that I am very deficient in testosterone. Consultant is to prescribe a micro dose for me. I am 66 years old and
hi I posted last month because although on lethvothyrovxine I was getting really dreadful heat sweats (hair, clothes soaked). I now have my complete hormone tests back . It has been found that I am very deficient in testosterone. Consultant is to prescribe a micro dose for me. I am 66 years old and
Upanddownlady15
in
Thyroid UK
8 months ago
Advice on halting bone loss following Dexa and hrt or other supplements.
Thyroid cancer at 23, high dose T4 requiring propranolol for 17 years, then battles over dosage post menopause as rules changed. T3, when measured, always seemed to be at a good level. I didn't take HRT as it was at the height of the cancer scare. I regret it now. Sjogrens and very low vitamin D diagnosed
Thyroid cancer at 23, high dose T4 requiring propranolol for 17 years, then battles over dosage post menopause as rules changed. T3, when measured, always seemed to be at a good level. I didn't take HRT as it was at the height of the cancer scare. I regret it now. Sjogrens and very low vitamin D diagnosed
Maztee
in
Thyroid UK
8 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
8 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
8 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
7 months ago
runna app
hello does anyone use runna if so i was wondering if i use apple watch does it tell me what i’m doing intervals ect ? thanks
hello does anyone use runna if so i was wondering if i use apple watch does it tell me what i’m doing intervals ect ? thanks
Duckaroo
Graduate
in
Couch to 5K
10 months ago
Treatment Comparison Tool
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Mike58
in
Prostate Cancer Network
8 months ago
Degarelix and increased diabetes risk?
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
Oatmeal2
in
Prostate Cancer Network
8 months ago
speech and language therapy
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
Maychristine
in
Headway
1 year ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
8 months ago
Hot flushes after ovarian cancer surgery
Hi ladies, struggling with hot flushes keeping me awake most of the night following surgery for ovarian cancer few months back. Anyone found a good supplement that can be used by those of us for whom HRT is contraindicated ( alot I read about have natural ingredients which mimic oestrogen so are advised
Hi ladies, struggling with hot flushes keeping me awake most of the night following surgery for ovarian cancer few months back. Anyone found a good supplement that can be used by those of us for whom HRT is contraindicated ( alot I read about have natural ingredients which mimic oestrogen so are advised
Jholly4
in
Menopause and Perimenopause Support
8 months ago
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