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Pernicious anaemia
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Start of B12 treatment but can I do exercise?
I have digestive issues (which I’ve learnt can affect absorption) and family history of
pernicious
anaemia
but have been put on B12 supplements to take until another blood test in 3 months. I was given very little info at the appointment and have found out most of this since.
I have digestive issues (which I’ve learnt can affect absorption) and family history of
pernicious
anaemia
but have been put on B12 supplements to take until another blood test in 3 months. I was given very little info at the appointment and have found out most of this since.
Foodie101
in
Pernicious Anaemia Society
1 year ago
keeping well?
Pernicious
anaemia
fine and I remain on 8 week jabs, used to be 4 weekly. Still controlling what I can in my overall health, and losing weight slowly but surely, but not saying its easy. Also walking more. Focusing on wider health and continuing to feel well both physically and mentally.
Pernicious
anaemia
fine and I remain on 8 week jabs, used to be 4 weekly. Still controlling what I can in my overall health, and losing weight slowly but surely, but not saying its easy. Also walking more. Focusing on wider health and continuing to feel well both physically and mentally.
Miss-guineapig
in
Pernicious Anaemia Society
11 months ago
MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
9 months ago
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how long after beginning injections did you feel better?
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
Merlotponty
in
Pernicious Anaemia Society
9 months ago
Immunoglobin Blood Test.
I asked if it could be to do with
Pernicious
Anaemia
which I have had for 36 years. I am 67 now. Nurse said the GP didn't mention it.
I asked if it could be to do with
Pernicious
Anaemia
which I have had for 36 years. I am 67 now. Nurse said the GP didn't mention it.
dollcat
in
Pernicious Anaemia Society
7 months ago
cholesterol supplements and testing
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Lindsayf
in
Thyroid UK
9 months ago
Another ignorant GP - "is PA forever?" he asked
I wish I had recorded the conversation with the trainee GP this morning, he asked me if
Pernicious
Anaemia
was forever and when could I expect to stop the injections? He also asked how I was managing with self injection.
I wish I had recorded the conversation with the trainee GP this morning, he asked me if
Pernicious
Anaemia
was forever and when could I expect to stop the injections? He also asked how I was managing with self injection.
HKAnne
in
Pernicious Anaemia Society
1 year ago
GP Consultation
One area that I question is that when I mentioned
pernicious
anaemia
, he said ‘no, it’s ok, you are not anaemic’🤔 He was also unaware that a change in brand could cause a problem, but was willing to listen when I respectfully pointed out the problems that could occur with Teva.
One area that I question is that when I mentioned
pernicious
anaemia
, he said ‘no, it’s ok, you are not anaemic’🤔 He was also unaware that a change in brand could cause a problem, but was willing to listen when I respectfully pointed out the problems that could occur with Teva.
SpringerMom
in
Thyroid UK
6 months ago
Cobalt allergy
I have had
pernicious
anaemia
for at least 40 years. My partner and I are now in our 80s. After many years on lanasaprozole she now has B12 deficiency with a high MMA , with symptoms.
I have had
pernicious
anaemia
for at least 40 years. My partner and I are now in our 80s. After many years on lanasaprozole she now has B12 deficiency with a high MMA , with symptoms.
Yingtong22
in
Pernicious Anaemia Society
8 months ago
Vitamin B12 Injections
Hi, I hope you're all hanging on in there and having a better day than me,,, I have just started a loading dose of 6 Vit B12 injection because I've been suffering badly for a year now with Pins and Needles all over my body daily especially my head. I have had 5 injections now and I'm still the same
Hi, I hope you're all hanging on in there and having a better day than me,,, I have just started a loading dose of 6 Vit B12 injection because I've been suffering badly for a year now with Pins and Needles all over my body daily especially my head. I have had 5 injections now and I'm still the same
bubbatetley
in
Pernicious Anaemia Society
10 months ago
Terrified
I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the same time. I was given loading doses of B12 and felt so much better and then went onto 3 monthly injections. I found that towards the end of the
I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the same time. I was given loading doses of B12 and felt so much better and then went onto 3 monthly injections. I found that towards the end of the
Hayley31
in
Pernicious Anaemia Society
10 months ago
B12 Frequency Research
Three months ago I revisited "What you need to know about
PERNICIOUS
ANAEMIA
AND B12 DEFICIENCY" by our wonderful Martyn Hooper.
Three months ago I revisited "What you need to know about
PERNICIOUS
ANAEMIA
AND B12 DEFICIENCY" by our wonderful Martyn Hooper.
Wwwdot
in
Pernicious Anaemia Society
2 months ago
low Ferritin
pernicious
anaemia
cannot be ruled out. Palmar erythema new development, hot flushes, cramp in fingers and toes. possibility of peripheral neuropathy. N.b. Not diabetic. Just going round the bend! Many thanks in advance for any help!
pernicious
anaemia
cannot be ruled out. Palmar erythema new development, hot flushes, cramp in fingers and toes. possibility of peripheral neuropathy. N.b. Not diabetic. Just going round the bend! Many thanks in advance for any help!
Beardies2
in
Thyroid UK
1 year ago
B12 Injections stopped as I do not meet crtieria.
Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive B12 injections. 2) Blood tests in 2018 show low B12, but Intrinsic factor and celliac screen were negative. 3) GP Practice direct me to take
Good morning I now have information to identify that; 1) the practice updated their process in November 2022 to " ensure only patients with P.A. receive B12 injections. 2) Blood tests in 2018 show low B12, but Intrinsic factor and celliac screen were negative. 3) GP Practice direct me to take
b12timbo
in
Pernicious Anaemia Society
10 months ago
Latest GP diagnosis is... I’m getting old! I'm 55! Help with next steps please… 😠
My plan, which I’d welcome comments and advice on, is: 1️⃣ Have a private
Pernicious
Anaemia
Profile test for: FBC, Reticulocyte Count, Folate, Iron, TIBC, Active B12, Homocysteine, Methylmalonic Acid, Intrinsic Factor Abs and an autoantibody profile including (Liver Kidney Microsomal Ab, Smooth Muscle
My plan, which I’d welcome comments and advice on, is: 1️⃣ Have a private
Pernicious
Anaemia
Profile test for: FBC, Reticulocyte Count, Folate, Iron, TIBC, Active B12, Homocysteine, Methylmalonic Acid, Intrinsic Factor Abs and an autoantibody profile including (Liver Kidney Microsomal Ab, Smooth Muscle
KBird01
in
Pernicious Anaemia Society
1 year ago
Better Late Than Never
[i]
Pernicious
Anaemia
is an autoimmune disease so inflammation can be everywhere[/i]. The brain is particularly susceptible. So, this can be a complication of PA or any another Autoimmune Disease which we may have. However, the recognition and management of Encephalitis is very poor by medics.
[i]
Pernicious
Anaemia
is an autoimmune disease so inflammation can be everywhere[/i]. The brain is particularly susceptible. So, this can be a complication of PA or any another Autoimmune Disease which we may have. However, the recognition and management of Encephalitis is very poor by medics.
Narwhal10
in
Pernicious Anaemia Society
2 months ago
Bile acid malabsorption
Hi , has anyone here had a seHCAT scan for bile acid malabsorption. Been having bad stomach issues for a while and with back log seeing consultant took ages . In March finally had a consultation and lots of test all clear . Not sure if this is last hope but having seHCAT scan for bile acid malabsorption
Hi , has anyone here had a seHCAT scan for bile acid malabsorption. Been having bad stomach issues for a while and with back log seeing consultant took ages . In March finally had a consultation and lots of test all clear . Not sure if this is last hope but having seHCAT scan for bile acid malabsorption
andepande
in
Pernicious Anaemia Society
10 months ago
Advice about diarrhoea symptoms please
I have had very little assistance from my GP in relation to my
Pernicious
Anaemia
with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms.
I have had very little assistance from my GP in relation to my
Pernicious
Anaemia
with gastric parietal cell antibodies diagnosis earlier this year. GP reluctantly agreed 5 loading doses but no more than three monthly injections after that, even though I have neurological symptoms.
yorkshiregirl4
in
Pernicious Anaemia Society
9 months ago
Ducks in a row
I was first diagnosed with
Pernicious
anaemia
3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position.
I was first diagnosed with
Pernicious
anaemia
3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position.
Whiteways4711
in
Pernicious Anaemia Society
3 months ago
'Malabsorption' - what do doctors mean exactly?
Hello, When reading about causes of deficiences such as iron, folate, B12 etc. the medical information (from whichever source) lists the causes and malabsorption is always one of them. To me this seems vague compared to the other causes: eg. in the[i] Guidance for Primary Care on the Interpretation
Hello, When reading about causes of deficiences such as iron, folate, B12 etc. the medical information (from whichever source) lists the causes and malabsorption is always one of them. To me this seems vague compared to the other causes: eg. in the[i] Guidance for Primary Care on the Interpretation
Sneedle
in
Thyroid UK
10 months ago
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