Search
Search
About
Log in
Join
Experiences with
Permanent atrial fibrillation
Posts
Communities
10,943 public posts
Filter results
Abiraterone vs Docetaxel
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
TMcgee
in
Advanced Prostate Cancer
1 year ago
Are Anticoagulants necessary?
I was diagnosed with PAF over two years ago following two episodes of fast AF which lasted for less than six hours. I was given IV Metoprolol in A&E and discharged on Bisoprolol 1.25mg daily. I have been well and active since but my cardiologist is keen for me to take anticoagulants as my CHADsVASc
I was diagnosed with PAF over two years ago following two episodes of fast AF which lasted for less than six hours. I was given IV Metoprolol in A&E and discharged on Bisoprolol 1.25mg daily. I have been well and active since but my cardiologist is keen for me to take anticoagulants as my CHADsVASc
anxiousgran
in
AF Association
2 years ago
RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Targeting Glutamine Metabolism
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
pjoshea13
in
Fight Prostate Cancer
1 year ago
Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
RECOVERY FROM PULSED FIELD CATHETER ABLATION – ANYONE HAD ONE YET?
Some of you may have seen my recent update post relating to my decision to have a catheter ablation to try and sort out my early persistent AF (which was tolerable in terms of symptoms at the time). The decision was swayed for an active/invasive intervention when I was offered a relatively new procedure
Some of you may have seen my recent update post relating to my decision to have a catheter ablation to try and sort out my early persistent AF (which was tolerable in terms of symptoms at the time). The decision was swayed for an active/invasive intervention when I was offered a relatively new procedure
FindingCaradoc
in
Atrial Fibrillation Support
2 years ago
New Clinical Trial for Non-diabetic CKD
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
More decisions!!
Well I saw Dr Pepper yesterday and all much as expected. I've moved to persistent AF and a cardioversion would be pointless. I keep self converting the back to AF. Sob. So options are... Live with it as long as my rate comes down to the 80s, so will be trying Digoxin after my holiday in Norfolk.
Well I saw Dr Pepper yesterday and all much as expected. I've moved to persistent AF and a cardioversion would be pointless. I keep self converting the back to AF. Sob. So options are... Live with it as long as my rate comes down to the 80s, so will be trying Digoxin after my holiday in Norfolk.
booboo73
in
AF Association
2 years ago
Stuck between deciding on IMRT CONDENSED and SBRT with 4 months ORGOVXY- Have Jan 12th date to make decision for UCLA (meet with Dr. Kishan)
I will give you the facts as I know them and who recommends each therapy:
1. I live near UCLA so convenience is not a factor ,however 20 IMRT treatments is more than 5 SBRT Treatments.
2.
Dr. Howard Sandler, (Cedars -Sinai) -RO,
Dr. Rana McKAY
-
UCSD -MO ,
Dr.
I will give you the facts as I know them and who recommends each therapy:
1. I live near UCLA so convenience is not a factor ,however 20 IMRT treatments is more than 5 SBRT Treatments.
2.
Dr. Howard Sandler, (Cedars -Sinai) -RO,
Dr. Rana McKAY
-
UCSD -MO ,
Dr.
JWS13
in
Prostate Cancer Network
2 years ago
A study record is now available on the Clinical Trials website for the big (N=330) Ambroxol Phase 3 trial (NCT05778617)
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
jeffreyn
in
Cure Parkinson's
1 year ago
Using modified virus to awaken your immune system to attack tumor
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
chemotherapy
I had 3 round of taxol developed neuropathy and discontinued treatment but completed the 6 rounds of carboplatin. Neither treatments helped my cancer. Did Keytruda infusion with Lenvima pills not working. No approved therapists left, except for a clinical trial if I qualify and am accepted? Good luck
I had 3 round of taxol developed neuropathy and discontinued treatment but completed the 6 rounds of carboplatin. Neither treatments helped my cancer. Did Keytruda infusion with Lenvima pills not working. No approved therapists left, except for a clinical trial if I qualify and am accepted? Good luck
blondiec
in
British Heart Foundation
1 year ago
Can a med be cause this reaction
Hello all, I was diagnosed with Afib in July 2020. I had a cardioversion and returned to sinus rhythm. I was put on Eliquis and Diltiazem in Dec 2020. Since that time if I get hot my skin becomes very prickly like someone is snapping elastics all over my body. I then seek out a cool place quickly
Hello all, I was diagnosed with Afib in July 2020. I had a cardioversion and returned to sinus rhythm. I was put on Eliquis and Diltiazem in Dec 2020. Since that time if I get hot my skin becomes very prickly like someone is snapping elastics all over my body. I then seek out a cool place quickly
busybody_yah
in
AF Association
2 years ago
Possibly Failing Calquence - what’s next?
Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008 with cll, Started treatment in 2011 after biopsy of mass in nasopharynx turned out to be CLL related. Had 6 cycles of B& R, then maintenance Rituxan
Turning to this very informative group for answers while waiting for my follow up visit after recent pet scan. Long story short hopefully… diagnosed in 2008 with cll, Started treatment in 2011 after biopsy of mass in nasopharynx turned out to be CLL related. Had 6 cycles of B& R, then maintenance Rituxan
ReneeSusan
in
CLL Support
1 year ago
Clinical trial discussion with Black and African American men in the USA
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
Darryl
Partner
in
Advanced Prostate Cancer
1 year ago
Buntanetap Clinical Trial
Is anyone participating at this trial, or knows someone that is. What's the lastest news. Are any results already published?
Is anyone participating at this trial, or knows someone that is. What's the lastest news. Are any results already published?
Veravrida
in
Cure Parkinson's
1 year ago
Pacemaker looming
Hi I have had Paroxysmal AF for about 5 years and had a rocky ride meds wise with betablockers and calcium channel. To cut a long story short I was placed on Digoxin 125mg last year by GP which initially worked well but worsened over time. In March 22 Hereford Cardios reduced Digoxin to 62.5mg od and
Hi I have had Paroxysmal AF for about 5 years and had a rocky ride meds wise with betablockers and calcium channel. To cut a long story short I was placed on Digoxin 125mg last year by GP which initially worked well but worsened over time. In March 22 Hereford Cardios reduced Digoxin to 62.5mg od and
Aikonbizz
in
AF Association
2 years ago
Gains seen in Parkinson’s with Symbyx’s red light therapy helmet
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Baron1
in
Cure Parkinson's
1 year ago
Ablation on Monday!
I recd a telephone call from Cardiology offering me an Ablation for Monday 26 Sept 2022. My husband advised me to take it, so I accepted the offer. I did query why I had been offered this so quickly as only diagnosed with Atrial Flutter in June 2022. Apparently it is due to the fact I am unable to
I recd a telephone call from Cardiology offering me an Ablation for Monday 26 Sept 2022. My husband advised me to take it, so I accepted the offer. I did query why I had been offered this so quickly as only diagnosed with Atrial Flutter in June 2022. Apparently it is due to the fact I am unable to
fairyfeathers
in
Atrial Fibrillation Support
2 years ago
PSMA PET-CT Ga68 Scan results
Profile recap: family history of PCa; RALP 5/18/09; post-surgery pathology Gleason 3+3; no evidence of PCa extracapsular or in pelvic lymph nodes. Post-surgery PSA undetectible until 2013, then reached 0.20 in 2017. Most recent PSA 0.56 in January 2023. Scan was performed on 3/9/23 by Department
Profile recap: family history of PCa; RALP 5/18/09; post-surgery pathology Gleason 3+3; no evidence of PCa extracapsular or in pelvic lymph nodes. Post-surgery PSA undetectible until 2013, then reached 0.20 in 2017. Most recent PSA 0.56 in January 2023. Scan was performed on 3/9/23 by Department
KeyboardGuy
in
Advanced Prostate Cancer
1 year ago
1
...
95
96
97
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4216 results
Advanced Prostate Cancer
1391 results
CLL Support
683 results
View top 10 communities
Sort by
Most Relevant
Newest