Search
Search
About
Log in
Join
Experiences with
Permanent atrial fibrillation
Posts
Communities
10,890 public posts
Filter results
Advice please
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Karendeena
in
AF Association
1 year ago
Berberine - does anyone have experience of taking this for PAF?
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
Dippy22
in
AF Association
1 year ago
Clinical Trial PT 112 ?
I’m writing for my husband who is French (I’m English : we live in France ) He’s 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
I’m writing for my husband who is French (I’m English : we live in France ) He’s 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Enilorac63
in
Advanced Prostate Cancer
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anything new on sabizabulin?
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have. Also posted on Fight Prostate Cancer board.
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have. Also posted on Fight Prostate Cancer board.
SuppWife
in
Advanced Prostate Cancer
4 months ago
Anything new on sabizabulin?
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have.
I can't find any current info on clinical trials continuing on this drug. Here's a link about the Phase Ib/II Study of Sabizabulin. Thanks for any info anyone may have.
SuppWife
in
Fight Prostate Cancer
4 months ago
Differences in Clinical Outcomes Between Hydroxyurea-Resistant and-Intolerant Polycythemia Vera Patients
Differences in Clinical Outcomes Between Hydroxyurea-Resistant and -Intolerant Polycythemia Vera Patients ABSTRACT Background: Previous studies have suggested that patients with polycythemia vera (PV) who exhibit hydroxyurea-resistance (HU-R) and -intolerance (HU-I) may have distinct characteristics
Differences in Clinical Outcomes Between Hydroxyurea-Resistant and -Intolerant Polycythemia Vera Patients ABSTRACT Background: Previous studies have suggested that patients with polycythemia vera (PV) who exhibit hydroxyurea-resistance (HU-R) and -intolerance (HU-I) may have distinct characteristics
PhysAssist
in
MPN Voice
4 months ago
Update on Clinical Trial
I started 2nd line treatment about 9 weeks ago here in Charlotte. It is a clinical trial for ER+, Her2- with pik3ca mutation. Drugs are Inavolisib and Giredestrant (SERD). First scans last week were stable, with tiny bit of shrinkage... cautiously optimistic. Side effects not bad.
I started 2nd line treatment about 9 weeks ago here in Charlotte. It is a clinical trial for ER+, Her2- with pik3ca mutation. Drugs are Inavolisib and Giredestrant (SERD). First scans last week were stable, with tiny bit of shrinkage... cautiously optimistic. Side effects not bad.
Trissh
in
SHARE Metastatic Breast Cancer
4 months ago
Kenai Therapeutics Secures $82M for Parkinson's Cell Therapy, Eyes Clinical Trials
https://bnnbreaking.com/breaking-news/health/kenai-therapeutics-secures-82m-for-parkinsons-cell-therapy-eyes-clinical-trials
https://bnnbreaking.com/breaking-news/health/kenai-therapeutics-secures-82m-for-parkinsons-cell-therapy-eyes-clinical-trials
Farooqji
in
Cure Parkinson's
4 months ago
Clinical Trial
I stumbled across this recent article about a new clinical trial - will be asking about it on our next clinic appointment https://www.clinicaltrialsarena.com/news/amylyx-psp-treatment-trial/ Hopeful that prevention and cure will be found 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻
I stumbled across this recent article about a new clinical trial - will be asking about it on our next clinic appointment https://www.clinicaltrialsarena.com/news/amylyx-psp-treatment-trial/ Hopeful that prevention and cure will be found 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻
Bergenser
in
PSP Association
4 months ago
Feasibility of someone from out of USA joining a clinical trial in USA?
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
RindaMan
in
Advanced Prostate Cancer
4 months ago
Amazing
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
DawnTX
in
AF Association
1 year ago
Ambroxol clinical trials.
I have been taking ambroxol 1200 mg/d with some success. There are clinical trials taking place in the UK, but I am not officially involved because I live in the US. My neurologists has no knowledge concerning this drug. Will anyone share with me any news about success or failures with this drug? Thank
I have been taking ambroxol 1200 mg/d with some success. There are clinical trials taking place in the UK, but I am not officially involved because I live in the US. My neurologists has no knowledge concerning this drug. Will anyone share with me any news about success or failures with this drug? Thank
Badmouth
in
Cure Parkinson's
4 months ago
First afib incident since dx 3 years ago
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Bikedennis
in
AF Association
1 year ago
Senolytics - “senolytic” drugs, dasatinib (D) and quercetin (Q) disapointing results in small test- Peter Attia
January 13, 2024 COGNITIVE HEALTH & NEURODEGENERATIVE DISEASE Targeting senescent cells for cognitive health With the recent publication of the first clinical trial of senolytics for AD treatment, popular interest in these drugs has swelled, but is the excitement justified? PETER ATTIA
January 13, 2024 COGNITIVE HEALTH & NEURODEGENERATIVE DISEASE Targeting senescent cells for cognitive health With the recent publication of the first clinical trial of senolytics for AD treatment, popular interest in these drugs has swelled, but is the excitement justified? PETER ATTIA
Scout4answers
in
Fight Prostate Cancer
6 months ago
My Home ECG reading? AF or Ectopics
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
wendy6
in
AF Association
1 year ago
Whatever happened to the pill in the pocket?
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
Singingforever
in
Atrial Fibrillation Support
1 year ago
Coast Clinical Trial
Has anyone heard of this CT? Trial number is NCT05036226. ET
Has anyone heard of this CT? Trial number is NCT05036226. ET
Echotango51
in
Advanced Prostate Cancer
4 months ago
Transdermal estrogen/estradiol as monotherapy for Prostate Cancer
Does anyone know of recent studies, clinical trials or Standard of Care (SoC) protocols using or studying estrogen gels, sprays, ointments or patches as hormone therapy for Prostate Cancer, particularly micrometastatic cancer that has not spread beyond the pelvic region? I am in discussions with my
Does anyone know of recent studies, clinical trials or Standard of Care (SoC) protocols using or studying estrogen gels, sprays, ointments or patches as hormone therapy for Prostate Cancer, particularly micrometastatic cancer that has not spread beyond the pelvic region? I am in discussions with my
Lost_Sheep
in
Prostate Cancer Network
4 months ago
CELC-G-201 Phase 1b/2 clinical trial: gedatolisib plus darolutamide in mCRPC
Currently enrolling! Two different AR inhibitors, nubeqa producer (you know who I am taking about) entered an agreement with this biotech company to supply nubeqa for free...they don't usually partner easily if they do not think that something good may come out of the trial... https://www.biospace.com
Currently enrolling! Two different AR inhibitors, nubeqa producer (you know who I am taking about) entered an agreement with this biotech company to supply nubeqa for free...they don't usually partner easily if they do not think that something good may come out of the trial... https://www.biospace.com
Maxone73
in
Advanced Prostate Cancer
4 months ago
Blue rock therapeutic clinical trials
has anyone participated in this and what is your experience
has anyone participated in this and what is your experience
Prakash1
in
Cure Parkinson's
4 months ago
1
...
52
53
54
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4187 results
Advanced Prostate Cancer
1382 results
CLL Support
681 results
View top 10 communities
Sort by
Most Relevant
Newest