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Experiences with
Permanent atrial fibrillation
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Post op concerns
Had partial Thyroidectomy on 20.03.24 to remove large goitre with nodules. Since the operation I have swelling at the incision site and a dull, throbbing headache daily.Some days a take Paracetamol, some days I don't. Neck still feels very stiff. Saw surgeon on 19.04.24. He advised that this is
Had partial Thyroidectomy on 20.03.24 to remove large goitre with nodules. Since the operation I have swelling at the incision site and a dull, throbbing headache daily.Some days a take Paracetamol, some days I don't. Neck still feels very stiff. Saw surgeon on 19.04.24. He advised that this is
Purplesane
in
Thyroid UK
2 months ago
Anyone participated in AMG50 clinical trial?
has anyone here participated in an AMG 50 clinical trial? if so, what were the adverse events? How bad and for how long? And was the treatment successful in stabilizing or reducing PCa?
has anyone here participated in an AMG 50 clinical trial? if so, what were the adverse events? How bad and for how long? And was the treatment successful in stabilizing or reducing PCa?
Farmhand
in
Advanced Prostate Cancer
2 months ago
Replacement pacemaker lead
Hi, I’ve only had my CRT-D since Nov 2020 and already my defibrillator lead has malfunctioned and is going to be taken out and replaced. Has anyone been through or know of someone who has been through this procedure? Is the recovery time similar to that of having a pacemaker put in? I’m a teacher and
Hi, I’ve only had my CRT-D since Nov 2020 and already my defibrillator lead has malfunctioned and is going to be taken out and replaced. Has anyone been through or know of someone who has been through this procedure? Is the recovery time similar to that of having a pacemaker put in? I’m a teacher and
Moweeda
in
British Heart Foundation
10 months ago
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Letter I received today
ANNOVIS ANNOUNCES UNBLINDING OF THE BUNTANETAP PHASE III DATA IN PARKINSON’S DISEASE The Phase III study was completed in 4Q 2023 with an original plan for data announcement in 1Q 2024, however the Company faced a delay in the process of data cleaning beyond the original prognosis. Maria Maccecchini
ANNOVIS ANNOUNCES UNBLINDING OF THE BUNTANETAP PHASE III DATA IN PARKINSON’S DISEASE The Phase III study was completed in 4Q 2023 with an original plan for data announcement in 1Q 2024, however the Company faced a delay in the process of data cleaning beyond the original prognosis. Maria Maccecchini
mauigirl18
in
Cure Parkinson's
2 months ago
Ovacome clinical update day 18 May 2024 London
Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by ovarian cancer including family and friends and is being held at the Ovacome office in London. The day will be a combination of talks from clinicians
Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by ovarian cancer including family and friends and is being held at the Ovacome office in London. The day will be a combination of talks from clinicians
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
2 months ago
Update on STEM-PD clinical trial – stem cell-based transplant for Parkinson’s disease
Higher dose cohort initiated after positive early safety evaluation in Parkinson's therapy. After a positive initial safety evaluation, the pioneering STEM-PD clinical trial has advanced to higher dose testing. STEM-PD is a first-in-human clinical trial testing a new investigational therapy for Parkinson
Higher dose cohort initiated after positive early safety evaluation in Parkinson's therapy. After a positive initial safety evaluation, the pioneering STEM-PD clinical trial has advanced to higher dose testing. STEM-PD is a first-in-human clinical trial testing a new investigational therapy for Parkinson
nednedned
in
Cure Parkinson's
2 months ago
TRAP trial: radiotherapy combined with hormone therapy can help some advanced prostate cancer patients avoid chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
Maxone73
in
Advanced Prostate Cancer
2 months ago
Webinar: Exploring Valeda light therapy for AMD
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
Carol_MacularSociety
Partner
in
Macular Society
2 months ago
My experience with Docetaxel
I know everyone doesn’t respond the same but here is my experience and what I went through with 10 rounds of chemo. Before I started I had already been on Lupron for five years, I had radiation to multiple bone Mets, took zytiga/xtandi, had Provenge and did a clinical trial. October 26 2023 I started
I know everyone doesn’t respond the same but here is my experience and what I went through with 10 rounds of chemo. Before I started I had already been on Lupron for five years, I had radiation to multiple bone Mets, took zytiga/xtandi, had Provenge and did a clinical trial. October 26 2023 I started
Oct18
in
Advanced Prostate Cancer
2 months ago
Can you do too much exercise?
I wonder if any one else has the same experience as me. We all know how important exercise is for neurological conditions so I followed the conditions of a randomised American clinical trial comparing aerobic training with balance training. The participants spent 30 minutes five times a week for four
I wonder if any one else has the same experience as me. We all know how important exercise is for neurological conditions so I followed the conditions of a randomised American clinical trial comparing aerobic training with balance training. The participants spent 30 minutes five times a week for four
Libra7
in
Ataxia UK
2 months ago
Bonita219 we hardly knew ya, a visit with the angel of death
We all know that there will be an end to our lives. Mostly we push it out of our day to day and ignore it. For most people age and increasing organ damage brings pain and a greater awareness of that long-hidden reality. I got a letter recently from a nurse with a note that said Bonita has passed.
We all know that there will be an end to our lives. Mostly we push it out of our day to day and ignore it. For most people age and increasing organ damage brings pain and a greater awareness of that long-hidden reality. I got a letter recently from a nurse with a note that said Bonita has passed.
nash2
Partner
in
Living with Fatty Liver and NASH
2 months ago
living emotionally and mentally with afib
I am 82 and have had paroxysmal afib for2+ yrs. I have always been terrified by an attack or waiting for one. They gradually increased to the point that I had cryoablation last September. That helped in that they are more mild and less common. Lately they have been increasing in frequency so I am
I am 82 and have had paroxysmal afib for2+ yrs. I have always been terrified by an attack or waiting for one. They gradually increased to the point that I had cryoablation last September. That helped in that they are more mild and less common. Lately they have been increasing in frequency so I am
Geeps527
in
AF Association
1 year ago
Disappointing News from CT and Clinical Trial
Well folks, I went for my fourth dose in the Phase 1 clinical at Sarah Cannon Research this week and had first follow-up CT since treatment started. Met with Dr. prior to treatment and he shared the scan results which showed progression in liver and abdomen in general. He strongly advised I needed
Well folks, I went for my fourth dose in the Phase 1 clinical at Sarah Cannon Research this week and had first follow-up CT since treatment started. Met with Dr. prior to treatment and he shared the scan results which showed progression in liver and abdomen in general. He strongly advised I needed
Pmann
in
Advanced Prostate Cancer
2 months ago
Clinical trial news
Has anyone been 'volunteered ' for this new trial from Astra Zanaca? Saruparib (AZD5305) vs Placebo in Men with Metastatic Castration-Sensitive Prostate Cancer Receiving Physician's Choice New Hormonal Agents - EvoPAR-PR01 This is looking at whether adding a new drug on top of taking an Androgen Receptor
Has anyone been 'volunteered ' for this new trial from Astra Zanaca? Saruparib (AZD5305) vs Placebo in Men with Metastatic Castration-Sensitive Prostate Cancer Receiving Physician's Choice New Hormonal Agents - EvoPAR-PR01 This is looking at whether adding a new drug on top of taking an Androgen Receptor
Max24
in
Advanced Prostate Cancer
2 months ago
Graphene: could be ready for our therapies by 2030
Graphene and his siblings are gaining attention for their role in drug delivery systems, photothermal, and photodynamic cancer therapy, and as platforms for combined therapies. In vivo it's working already, with some potential for a fast development to clinical trials. https://www.dovepress.com/chasing-graphene-based-anticancer-drugs-where-are-we-now-on-the-biomed-peer-reviewed-fulltext-article-IJN
Graphene and his siblings are gaining attention for their role in drug delivery systems, photothermal, and photodynamic cancer therapy, and as platforms for combined therapies. In vivo it's working already, with some potential for a fast development to clinical trials. https://www.dovepress.com/chasing-graphene-based-anticancer-drugs-where-are-we-now-on-the-biomed-peer-reviewed-fulltext-article-IJN
Maxone73
in
Advanced Prostate Cancer
2 months ago
#AskChatGPT : list of immunotherapy drugs for prostate cancer
As of my last update in January 2022, several immunotherapy drugs have been studied or are currently being investigated for the treatment of prostate cancer. Here are some of the notable ones: Sipuleucel-T (Provenge): Sipuleucel-T is an autologous cellular immunotherapy approved for the treatment
As of my last update in January 2022, several immunotherapy drugs have been studied or are currently being investigated for the treatment of prostate cancer. Here are some of the notable ones: Sipuleucel-T (Provenge): Sipuleucel-T is an autologous cellular immunotherapy approved for the treatment
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Afib and bradicardia
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Corrie12
in
AF Association
1 year ago
EXERCISE is our best med.
I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and
I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and
Scout4answers
in
Advanced Prostate Cancer
2 months ago
Limosilactobacillus reuteri DSM 17938 and ATCC PTA 6475 for the treatment of moderate to severe irritable bowel syndrome in adults: a RCT
Research: Limosilactobacillus reuteri DSM 17938 and ATCC PTA 6475 for the treatment of moderate to severe irritable bowel syndrome in adults: a randomized controlled trial Source: https://www.frontiersin.org/journals/gastroenterology/articles/10.3389/fgstr.2023.1296048/full Background: Irritable
Research: Limosilactobacillus reuteri DSM 17938 and ATCC PTA 6475 for the treatment of moderate to severe irritable bowel syndrome in adults: a randomized controlled trial Source: https://www.frontiersin.org/journals/gastroenterology/articles/10.3389/fgstr.2023.1296048/full Background: Irritable
Meleber
in
IBS Network
2 months ago
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