Post op concerns : Had partial Thyroidectomy on... - Thyroid UK

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Post op concerns

Purplesane profile image
18 Replies

Had partial Thyroidectomy on 20.03.24 to remove large goitre with nodules. Since the operation I have swelling at the incision site and a dull, throbbing headache daily.Some days a take Paracetamol, some days I don't.

Neck still feels very stiff.

Saw surgeon on 19.04.24. He advised that this is part of the healing process and he didn't appear that concerned.

I just don't feel that well, although post op blood tests state that my thyroid is functioning normally. Thank God.

How long does it take to fully recover from a partial Thyroidectomy?

Is there anything I can do or take to reduce the swelling at the incision site?

Thanks in advance for any responses to my query

Regards

Purplesane

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18 Replies
SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

thyroid and vitamin levels should have been tested BEFORE hemi thyroidectomy…….were they ?

Please add results and ranges

Bloods should be retested 6-8 weeks after operation

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once for autoimmune thyroid disease

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Post all about what time of day to test

healthunlocked.com/thyroidu...

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Purplesane profile image
Purplesane in reply toSlowDragon

Dear SlowDragon

Thanks for your prompt response and a very detailed and comprehensive answer to my query.

Will look at the links you provided, which hopefully will give me reassurance and a better understanding of my post op symptoms.

Regards

Purplesane

SlowDragon profile image
SlowDragonAdministrator in reply toPurplesane

Come back with new post once you get results

If vitamin levels are low, that’s first step to improve

This frequently then improves thyroid levels

Sparklingsunshine profile image
Sparklingsunshine

I just wondered if an ice pack or alternating ice with heat ie a hot water bottle might reduce swelling and aid healing. Obviously dont use directly on skin, use a cover or t towel.

Purplesane profile image
Purplesane in reply toSparklingsunshine

Dear Sparklingsunshine

Thanks for taking the time to respond to my query. I will try your suggestion and pray it works, because I'm really not liking the way my neck looks, six weeks after having the operation.

I have approached my GP and still waiting for an appointment, one week after submitting request for appointment form.

Thanks again

Regards

Purplesane

Hedgeree profile image
Hedgeree

Hi Purplesane,

When I had a hemithyroidectomy the endo nurse said to do gentle neck movements to gradually help ease any stiffness; so side to side head movements, up and down. I found slowly moving my head from side to side and holding for a few seconds really helped to ease any stiffness.

The endo nurse I saw after my operation also said to gently massage my scar to aid the healing process. Once I had my stitches removed I still had a light bandage and steri strips over the wound and would use two fingers to apply gentle pressure and circular movements. Did they suggest the same to you?

You're only six weeks post your op so still early days; it does take time to recover.

Purplesane profile image
Purplesane in reply toHedgeree

Dear Hedgeree,Thanks for replying to my post and hope you've fully recovered from your hemithyroidectomy.

I wasn't given any post op advice. I wasn't even offered any painkillers. All I received was a very brief discharge summary.

Post op consultation with surgeon on 19.04.24, also not helpful. Felt like my concerns were not really acknowledged.

I'll try the neck exercises and massage you suggested.

I'm also getting a dull throbbing headache post op. Was this also your experience?

Do you know if this is common after surgery ?

Really appreciate your suggestions.

Regards

Purplesane

Hedgeree profile image
Hedgeree in reply toPurplesane

Hi Purplesane,

Your post op care sounds like it was virtually nonexistent! You weren't even offered any painkillers? 🤔

Are you experiencing any tingling or numbness in your fingers or feet or around your mouth? Sometimes your parathyroid glands get jiggled about during your operation this can sometimes cause hypocalcaemia (low calcium levels) Was this not mentioned to you prior to your op? So they prescribe you calcium and vitamin D (AdCal) post op if you have these symptoms.

I did have a headache after my operation though not sure how long for? I had some tingling around my mouth but this was only transient. Low vit D can cause daily headaches; I know this from personal experience.

When you see your GP you need to get your vitamin D, calcium and pth (parathyroid) levels checked.

Purplesane profile image
Purplesane in reply toHedgeree

Dear Hedgeree,

Thanks for your reply .

No tingling or numbness. This was not mentioned by the surgeon. However, I did read about this post op. Surgeon only mentioned possible keloid scarring, voice changes and post op bleeding.

I am disappointed by the lack of post op care from the surgeon and my GP.

I take Vit D supplements daily , so will increase my Vit D and see if this makes any difference, regarding the daily headaches.

I never experienced headaches pre op, only after a having a night out, so these daily headaches are concerning.

They're not banging headaches, just a dull throb.

Anyway, thank you so much for taking the time to share your experience.

All the best

Regards

Purplesane

Hedgeree profile image
Hedgeree in reply toPurplesane

Hi Purplesane,

If you start to read other posts on the forum you'll see that it's recommended to have blood tests before you start supplementing so you know what your levels are.

SlowDragon has mentioned this in their reply earlier and the testing protocol suggested by the forum. If your GP isn't any help then testing privately is done by many on the forum. If you're ok with finger prick tests then it's even cheaper and more convenient than going for a venous blood draw.

If you haven't had any post op thyroid blood tests it's important to know your levels and if you then require hormones to be prescribed.

Best wishes.

Purplesane profile image
Purplesane in reply toHedgeree

Dear Hedgeree

Thanks for your reply.

I've had the post op blood tests and practice nurse advised that everything is apparently functioning normally.

Going to contact GP again tomorrow to arrange appointment to discuss the headaches and the incision swelling.

Also going to increase my Vit D and calcium intake.

Thanks so much for assistance with this matter, it is very much appreciated.

Regards

Purplesane

tattybogle profile image
tattybogle in reply toPurplesane

"practice nurse advised that everything is apparently functioning normally".

Ask receptionist for a printout of the actual results and [reference ranges] for that thyroid test.

Always get hold of the numbers for your thyroid blood tests , so you can learn how to understand what they are showing for yourself , or else you'll never know what's really going on ....... 'functioning normally' means very little... size 5 shoes are 'normal' for women , but walking in them won't be great if you have 'normal' size 6 feet.

eg (made up numbers just to show what you are asking for )

TSH 2.5 [0.4 - 4.5]

fT4 15.7 [12 - 22]

fT3 4.2 [3.1 - 6.8]

Same with Calcium /VitD etc .... before taking supplements . you need to know results.

Purplesane profile image
Purplesane in reply totattybogle

Dear Tattbogle

Thanks for taking the time to reply to my query.

I will do as you suggested and ask for a print-out of my test results and ask GP to explain what they mean.

I have to gain a better understanding of my post op condition and will be doing my own research, as I can't be reliant on receiving assistance from my GP.

I am grateful to the HealthUnlocked community, including yourself, for sharing their experiences and knowledge.

Thanks again

Regards

Purplesane

tattybogle profile image
tattybogle in reply toPurplesane

usually there is little point in asking GP what thyroid results mean (you'll just get more of the ' it's normal' blah blah" ) ... good idea to ask here first , so you know what's what .

lanky profile image
lanky

Hi some times you have to continue with the tablets for a while for them to work

Purplesane profile image
Purplesane in reply tolanky

Dear Lanky,Thanks for your response.

I take a variety of supplements consistently and have done for years, so I'm going to increase my daily Vit D and hope that works to stop these headaches.

I can only assume that my body is lacking something, which is why I getting these headaches.

Thanks again

Regards

Purplesane

lanky profile image
lanky in reply toPurplesane

Hi have you had your bloods checked for any deficiency of any kind?

lanky profile image
lanky

Hi sometimes you have to continue taking the tablets for a while do not stop and start as my doctor said,if that helps

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