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Permanent atrial fibrillation
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Update on Failing Calquence-Pirtobrutinib Next
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
ReneeSusan
in
CLL Support
1 year ago
Pluvicto increases radiographic progression-free survival (rPFS) before chemo
This is the early topline results from the
PSMAfore
trial. https://clinicaltrials.gov/ct2/show/NCT04689828 It tested whether giving Pluvicto increases radiographic progression-free survival (rPFS) in men who: (1) have failed one of the second-line hormonals (abiraterone, enzalutamide, darolutamide
This is the early topline results from the
PSMAfore
trial. https://clinicaltrials.gov/ct2/show/NCT04689828 It tested whether giving Pluvicto increases radiographic progression-free survival (rPFS) in men who: (1) have failed one of the second-line hormonals (abiraterone, enzalutamide, darolutamide
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Update on failing Calquence - Pirtobrutinib is Next
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
ReneeSusan
in
CLL America Support
1 year ago
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Post Ablation change in meds
I have/had PAF and had been taking Sotalol 120 2x daily, Diltiazem 120 1x and Eliquis before my ablation which occurred in January 2022. Since I had no further occurrences of Afib, my EP reduced the Sotalol to 80 2x in April. During my follow up visit with my EP this week he discontinued the Sotalol
I have/had PAF and had been taking Sotalol 120 2x daily, Diltiazem 120 1x and Eliquis before my ablation which occurred in January 2022. Since I had no further occurrences of Afib, my EP reduced the Sotalol to 80 2x in April. During my follow up visit with my EP this week he discontinued the Sotalol
MJZaw
in
AF Association
2 years ago
How bad is it?
Does anyone understand BNP levels mine is 2963ng/L I think normal is between 0.0. 150. I think it indicates heart failure but not sure. Before I can have echocardiogram privately I need referral from GP who would you believe it is off sick!!
Does anyone understand BNP levels mine is 2963ng/L I think normal is between 0.0. 150. I think it indicates heart failure but not sure. Before I can have echocardiogram privately I need referral from GP who would you believe it is off sick!!
Florence-Nightingale
in
Atrial Fibrillation Support
2 years ago
Has anyone used a TENS machine to stimulate the Vagus nerve via the ear to reduce Afib?
I have Vagal Afib and recently started using a tens machine on my left ear twice daily for 15 minutes. Applied to the Concha in the ear and the ear lobe to complete the circuit. 20hZ at 200 microseconds, wetting the ear and contacts with some saliva to get a good connection. I discovered 2 months ago
I have Vagal Afib and recently started using a tens machine on my left ear twice daily for 15 minutes. Applied to the Concha in the ear and the ear lobe to complete the circuit. 20hZ at 200 microseconds, wetting the ear and contacts with some saliva to get a good connection. I discovered 2 months ago
OzRob
in
Atrial Fibrillation Support
2 years ago
Abiraterone vs Docetaxel
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
In the CHAARTED trial, metastatic burden was divided into low burden (4 lesions). CHAARTED’s criteria seems to have become the standard for evaluating how metastatic burden affects choices of treatment and outcome. I bring up the metastatic burden, because I could not find a clinical trial where ADT
TMcgee
in
Advanced Prostate Cancer
1 year ago
Afib has reared its ugly head again big time, for me.
After years of calm, when I only had an occasional flutter , Afib started again in April following which I had three or four episodes lasting a few hours. On Sunday I was sitting down reading and it started again, expecting it to last just the usual six of seven hours I was still in Af on Tuesday
After years of calm, when I only had an occasional flutter , Afib started again in April following which I had three or four episodes lasting a few hours. On Sunday I was sitting down reading and it started again, expecting it to last just the usual six of seven hours I was still in Af on Tuesday
Hidden
in
AF Association
2 years ago
RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
Targeting Glutamine Metabolism
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
New paper below [1a]. Full text: [1b]. First, a few notes. "Studies have indicated the importance of glutamine in certain tumors. For example, the inhibition of glutamine metabolism was reported to prevent growth of several tumors such as breast, liver, kidney and T-cell lymphoblastic leukemia." Wiki
pjoshea13
in
Fight Prostate Cancer
1 year ago
How to stop irregular heartbeat and is there medicine to take for this
I just had an irregular heartbeat for 14 ½ hours. My blood pressure was down during part of this time. Lowest point 78/60 my heart beat was not above 93 at the highest point, it was fluctuating. I didn’t know how to get this to stop and return to normal. Is there medicine that I can take for this
I just had an irregular heartbeat for 14 ½ hours. My blood pressure was down during part of this time. Lowest point 78/60 my heart beat was not above 93 at the highest point, it was fluctuating. I didn’t know how to get this to stop and return to normal. Is there medicine that I can take for this
kitttycat
in
AF Association
2 years ago
Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
New Clinical Trial for Non-diabetic CKD
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Researchers are looking for a better way to treat people who have nondiabetic chronic kidney disease (non-diabetic CKD). The trial treatment, finerenone, is being developed to help people who have chronic kidney disease (CKD). It works by blocking a certain hormone called aldosterone that causes injury
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
NT-proBNP Level query
Trying to line up a few questions for a Cardio call in December and cannot seem to find this bit out. My last Se N-term pro BNP conc result was 444 ng/L, is this the same as pg/mL? It came back as abnormal with normal given as 0-400, I`m 66, so could I have Heart failure as no one has said I have.
Trying to line up a few questions for a Cardio call in December and cannot seem to find this bit out. My last Se N-term pro BNP conc result was 444 ng/L, is this the same as pg/mL? It came back as abnormal with normal given as 0-400, I`m 66, so could I have Heart failure as no one has said I have.
gentryman
in
AF Association
2 years ago
A study record is now available on the Clinical Trials website for the big (N=330) Ambroxol Phase 3 trial (NCT05778617)
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
Recruitment Status: Not yet recruiting Estimated Study Start Date: September 2023 Estimated Study Completion Date: September 2028 Each participant will be taking ambroxol [or placebo] for two years, and it is estimated that it will take two years to recruit 330 PwPs. Ambroxol to Slow Progression
jeffreyn
in
Cure Parkinson's
1 year ago
Using modified virus to awaken your immune system to attack tumor
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
This is a promising future therapy for many cancers. The reason that we (I am) should be open to join clinical trial when possible: https://youtu.be/FEA6BQARqE8
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
How long does Bisoprolol take to work
Hi everyone. New to this forum. Diagnosed with Atrial Fibrillation just this weekend, 19 hours in hospital assessment unit, & treatment with Bisoprolol (10mg). Am on 10mg daily now, and have taken today's. Heart is still way too fast though - 90-110 resting. Any idea when it should revert to normal?
Hi everyone. New to this forum. Diagnosed with Atrial Fibrillation just this weekend, 19 hours in hospital assessment unit, & treatment with Bisoprolol (10mg). Am on 10mg daily now, and have taken today's. Heart is still way too fast though - 90-110 resting. Any idea when it should revert to normal?
Sanekate
in
Arrhythmia Alliance
2 years ago
Do you live in the US? It is your last chance to Preserve Critical Catheter Ablation Access for AFIB Patients
To whom It may concern Last Chance to Preserve Critical Catheter Ablation Access for AFIB Patients. Recently we alerted you to a proposed draconian 40% cut in CMS payments to electrophysiologists (EPs) for performing AF catheter ablations. As previously mentioned, these cuts would cause long term catastrophic
To whom It may concern Last Chance to Preserve Critical Catheter Ablation Access for AFIB Patients. Recently we alerted you to a proposed draconian 40% cut in CMS payments to electrophysiologists (EPs) for performing AF catheter ablations. As previously mentioned, these cuts would cause long term catastrophic
TracyAdmin
Partner
in
AF Association
2 years ago
Do you live in the US? It is your last chance to Preserve Critical Catheter Ablation Access for AFIB Patients
To whom It may concern Last Chance to Preserve Critical Catheter Ablation Access for AFIB Patients. Recently we alerted you to a proposed draconian 40% cut in CMS payments to electrophysiologists (EPs) for performing AF catheter ablations. As previously mentioned, these cuts would cause long term catastrophic
To whom It may concern Last Chance to Preserve Critical Catheter Ablation Access for AFIB Patients. Recently we alerted you to a proposed draconian 40% cut in CMS payments to electrophysiologists (EPs) for performing AF catheter ablations. As previously mentioned, these cuts would cause long term catastrophic
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Palpitations at night
I had a third ablation nearly three weeks ago and am in sinus rhythm, but I'm having trouble sleeping because of an uncomfortable thumping heart when I go to bed, that keeps me awake for a while, though it's OK in the mornings. After the ablation my consultant told me to halve my Bisoprolol dose,
I had a third ablation nearly three weeks ago and am in sinus rhythm, but I'm having trouble sleeping because of an uncomfortable thumping heart when I go to bed, that keeps me awake for a while, though it's OK in the mornings. After the ablation my consultant told me to halve my Bisoprolol dose,
bugswhiskers
in
AF Association
2 years ago
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