Search
Search
About
Log in
Join
Experiences with
Peritoneal cancer
Posts
Communities
30,890 public posts
Filter results
Hello friends. It's me again. Bone Biopsy + Dr. nonsense.
Ok, so I have not posted my situation for awhile because I was/am still waiting for tests. Quick review-Luminal A Hr Es+ 90-100% Pr+80-90%,ki67<10% HER2 neg(2+,sish neg) her2 low, I guess. This was the original in 2016. Had chemo, rads, anastrozle up to 2019 when dx mbc. Ibrance + fasoldex, then xeloda
Ok, so I have not posted my situation for awhile because I was/am still waiting for tests. Quick review-Luminal A Hr Es+ 90-100% Pr+80-90%,ki67<10% HER2 neg(2+,sish neg) her2 low, I guess. This was the original in 2016. Had chemo, rads, anastrozle up to 2019 when dx mbc. Ibrance + fasoldex, then xeloda
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
5 months ago
Please send me some positivity.
I have just had the results of my CT scan and I have been told I have a recurrance in one para-aortic lymph node. I will either need surgery (if they can), chemo or radiotherapy. I'm so scared as this is my first recurrence from Stage 4 ovarian cancer and I'm only 56 and have two teenagers. I can't
I have just had the results of my CT scan and I have been told I have a recurrance in one para-aortic lymph node. I will either need surgery (if they can), chemo or radiotherapy. I'm so scared as this is my first recurrence from Stage 4 ovarian cancer and I'm only 56 and have two teenagers. I can't
Nectirlawone
in
My Ovacome
5 months ago
Abnormalities on the CT 6 months after Chemo (while on Niraparib) CA125 at 4.9, anyone same experience?
Dear ladies, Background : IVB HSOC Jan 2023, Debulking April 23, last chemo June 23, on Niraparib since Aug 23, diagnosed at 40 yo (now 41). Now CT shows small abnormalities: They saw 2 nodular abnormalities on CT scan, (16mm) suspecting local recurrence but they do not know for sure. Also they noticed
Dear ladies, Background : IVB HSOC Jan 2023, Debulking April 23, last chemo June 23, on Niraparib since Aug 23, diagnosed at 40 yo (now 41). Now CT shows small abnormalities: They saw 2 nodular abnormalities on CT scan, (16mm) suspecting local recurrence but they do not know for sure. Also they noticed
Beatyourself
in
My Ovacome
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Post RP/SRT Pelvic Mass?
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
RRP 2/02, SRT 7/16, BCR 9/23 Latest PSA .17 I recently retired and have been spending more time sitting on my ass in front of the computer [like right now] than I should. Over the last couple of months I have begun to feel/sense that I am sitting on something, very similar to what I felt pre-RP. At
bldn10
in
Advanced Prostate Cancer
8 months ago
RP + Radiation Question
I received biopsy confirmation of my advanced prostate cancer on Aug 29 and PET in September confirmed node positivity. I'm 43yo. No distant metastasis. I am working with a multidisciplinary team (UO, MO, and RO) with Kaiser in Anaheim, CA. Based on an analysis of the PET, the team believed it was unlikely
I received biopsy confirmation of my advanced prostate cancer on Aug 29 and PET in September confirmed node positivity. I'm 43yo. No distant metastasis. I am working with a multidisciplinary team (UO, MO, and RO) with Kaiser in Anaheim, CA. Based on an analysis of the PET, the team believed it was unlikely
OCKent
in
Advanced Prostate Cancer
8 months ago
Surgery vs SBRT Cyberknife
Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first, "slow growing, non aggressive" he believes is contained by looking at margins and pathology. Met with Radiology Oncologist, "favorable intermediate risk, non aggressive" he believes it is contained. Both
Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first, "slow growing, non aggressive" he believes is contained by looking at margins and pathology. Met with Radiology Oncologist, "favorable intermediate risk, non aggressive" he believes it is contained. Both
Pride123
in
Advanced Prostate Cancer
5 months ago
Elevated D-Dimmer
Dear all, I would like to ask a question about elevated D-Dimmer. My father is waiting for the Cabazitaxel treatment. Due to some difficulties in getting the therapy he is with no therapy since April. His last round of Docetaxel ( 8 in total). However, his d-dimmer is started to get elevated. He has
Dear all, I would like to ask a question about elevated D-Dimmer. My father is waiting for the Cabazitaxel treatment. Due to some difficulties in getting the therapy he is with no therapy since April. His last round of Docetaxel ( 8 in total). However, his d-dimmer is started to get elevated. He has
pozitronij
in
Advanced Prostate Cancer
8 months ago
clinical trial: ATR inhibitor for ATM mutated solid tumors
in vivo and in vitro studies suggest that ATR inhibitors work better than PARP inhibitors for people with ATM gene mutations…but together they may work even better I hope to find more data about this clinical trial https://www.biospace.com/article/releases/aprea-therapeutics-announces-dosing-of-first-patient-in-phase
in vivo and in vitro studies suggest that ATR inhibitors work better than PARP inhibitors for people with ATM gene mutations…but together they may work even better I hope to find more data about this clinical trial https://www.biospace.com/article/releases/aprea-therapeutics-announces-dosing-of-first-patient-in-phase
Maxone73
in
Advanced Prostate Cancer
5 months ago
Next steps after cabazitaxel
Hello again - I've completed six chemo treatments with cabazitaxel alone. PSA has fallen from 83 in early July at the start to 5.1 a couple of weeks ago (after five treatments). I live in Nicosia, Cyprus, and am being treated here but I'm also a Mayo patient of Drs. Kwon and Orme. They have identified
Hello again - I've completed six chemo treatments with cabazitaxel alone. PSA has fallen from 83 in early July at the start to 5.1 a couple of weeks ago (after five treatments). I live in Nicosia, Cyprus, and am being treated here but I'm also a Mayo patient of Drs. Kwon and Orme. They have identified
Arcticfox44
in
Advanced Prostate Cancer
8 months ago
Asking for advice
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
ventusbella
in
Advanced Prostate Cancer
8 months ago
Update – surgery tomorrow, then on to Xeloda
Hello all – hope that the new year is finding you all on a good journey to healing and wellness. I unfortunately have been in and out of the hospital for 21 days with seven new MRIs as they are trying to discover the root cause of my back pain and inability to walk. In addition to the extensive bone
Hello all – hope that the new year is finding you all on a good journey to healing and wellness. I unfortunately have been in and out of the hospital for 21 days with seven new MRIs as they are trying to discover the root cause of my back pain and inability to walk. In addition to the extensive bone
Saltandlight
in
SHARE Metastatic Breast Cancer
5 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
8 months ago
Heart Issues post Ivor Lewis
Hi, wondering if any of you that have had the Ivor Lewis surgery have had heart issues post surgery? At 3 years post surgery I started having atrial fibralation. Now 5 years post surgery and the afib is worse but I also have Braychardia ( very low heart rate) Looks like I will need a cardiac ablation
Hi, wondering if any of you that have had the Ivor Lewis surgery have had heart issues post surgery? At 3 years post surgery I started having atrial fibralation. Now 5 years post surgery and the afib is worse but I also have Braychardia ( very low heart rate) Looks like I will need a cardiac ablation
Janashlin
in
Oesophageal & Gastric Cancer
5 months ago
Anyone have a success story with Dr. Gary Onik?
Hello, Have any of you had success being treated by Dr. Gary Onik metastatic stage 4 prostate cancer with immuno and cryotherapy? Would greatly appreciate any success stories on getting into remission or being cured by his treatments. Also, if you had a bad experience or got worse from his treatment
Hello, Have any of you had success being treated by Dr. Gary Onik metastatic stage 4 prostate cancer with immuno and cryotherapy? Would greatly appreciate any success stories on getting into remission or being cured by his treatments. Also, if you had a bad experience or got worse from his treatment
Jgk914
in
Advanced Prostate Cancer
8 months ago
Radiotherapy for prostate local and retroperitoneal nodes
ADT of lupron and abiraterone has been pretty tolerable so far, almost four months - maybe I got cocky. Started my SBRT 28 fraction 70 Gy radiotherapy four days ago, mild to moderate urinary urgency and some burn started almost immediately. Diarrhea started at night after day four, mild so far. How
ADT of lupron and abiraterone has been pretty tolerable so far, almost four months - maybe I got cocky. Started my SBRT 28 fraction 70 Gy radiotherapy four days ago, mild to moderate urinary urgency and some burn started almost immediately. Diarrhea started at night after day four, mild so far. How
pj1121
in
Advanced Prostate Cancer
8 months ago
Another miracle cure :)
Any opinions on sodium chloro acetate. I am anxious to try an herbicide on my cancer :) but seriously if you google a bit there is some sense to the explanations as to how it might help to reduce cancer. Anyone try this
Any opinions on sodium chloro acetate. I am anxious to try an herbicide on my cancer :) but seriously if you google a bit there is some sense to the explanations as to how it might help to reduce cancer. Anyone try this
spencoid2
in
Advanced Prostate Cancer
8 months ago
bumped up moms scans
So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only twice in 6 months. But her ribs have started being sore. So she goes into tomorrow for ultra sound to see if the fluid has built back up. So her
So I had shared that her markers had went up last week. When she had the progression in July she also had a plural effusion. Which she’s had drained only twice in 6 months. But her ribs have started being sore. So she goes into tomorrow for ultra sound to see if the fluid has built back up. So her
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
lung ca and Crizotinib
hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been
hi I had been actually diagnosed with leimyosarcoma in calf muscle two years ago and successfully it was surgically removed and later no chemo was given. However in my scans there was a lung lesion that was there is scans but it was missed and left untreated till it reached stage 4. Now that I have been
Hassan786
in
Lung Cancer Support
5 months ago
Taste Issues and finger neuropathy on Xtandi( enzalutamide) ?
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
bandgeek
in
Advanced Prostate Cancer
5 months ago
my cancer comic…
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
Jpburns
in
Advanced Prostate Cancer
5 months ago
1
...
93
94
95
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
12167 results
My Ovacome
3612 results
SHARE Metastatic Breast Cancer
2181 results
View top 10 communities
Sort by
Most Relevant
Newest