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My trajectory after a "vacation" and a new metastasis
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
My backgound briefly (full details in Profile): aggressive form, BRCA2 mutation, RP in 2017, then 39 sessions of radiation, and 3 yrs of Lupron. All at Smilow Cancer Hospital. As a result, my PSA was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then PSA started
Istomin
in
Advanced Prostate Cancer
7 months ago
I am the delivery man these days! Optimizing existing therapies!
The study explores a new method for cancer treatment combining light-activated therapy with a special drug that targets low-oxygen areas in tumors. This approach uses tiny tiny tiny capsules to deliver both the light-sensitive agent and the drug directly to the tumor, enhancing the treatment's effectiveness
The study explores a new method for cancer treatment combining light-activated therapy with a special drug that targets low-oxygen areas in tumors. This approach uses tiny tiny tiny capsules to deliver both the light-sensitive agent and the drug directly to the tumor, enhancing the treatment's effectiveness
Maxone73
in
Advanced Prostate Cancer
3 months ago
Decipher Results
I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25% chance of death in 15. Not happy. It’s out of my hands. They will ADT me then prostate bed and lymph node radiation. I guess I kinda always knew. I’m assuming someone has determined these steps are required
I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25% chance of death in 15. Not happy. It’s out of my hands. They will ADT me then prostate bed and lymph node radiation. I guess I kinda always knew. I’m assuming someone has determined these steps are required
Elbers123
in
Advanced Prostate Cancer
3 months ago
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a new way to deliver platinum chemo works greatly in vivo
"The new type of chemotherapeutic drug PtNC@BSA-iRGD exhibits excellent antitumor activity in vitro/vivo, in comparison to clinical commercial first-line carboplatin. " "More impressively, compared to first-line platinum chemotherapy drugs, PtNC@BSA-iRGD has superior biocompatibility while possessing
"The new type of chemotherapeutic drug PtNC@BSA-iRGD exhibits excellent antitumor activity in vitro/vivo, in comparison to clinical commercial first-line carboplatin. " "More impressively, compared to first-line platinum chemotherapy drugs, PtNC@BSA-iRGD has superior biocompatibility while possessing
Maxone73
in
Advanced Prostate Cancer
3 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
7 months ago
Signatera tumor dna test
Has anyone heard of using the Signatera test from Natera to detect the presence of prostate cancer recurrence when PSA is rising but the PSMA PET scan is negative?
Has anyone heard of using the Signatera test from Natera to detect the presence of prostate cancer recurrence when PSA is rising but the PSMA PET scan is negative?
shihtzu124
in
Advanced Prostate Cancer
7 months ago
PSA Dropped after 22 days of Zytiga
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
dac500
in
Advanced Prostate Cancer
7 months ago
Here we go again
I was doing better, now the stomach pain is back worse than before. I guess its my own fault for eating McDonald's I was reading that unexplained weight loss could be colon cancer. I'm not sure it is unexplained as I have cut a lot of foods out. Processed foods . I'm just so scared to go to the
I was doing better, now the stomach pain is back worse than before. I guess its my own fault for eating McDonald's I was reading that unexplained weight loss could be colon cancer. I'm not sure it is unexplained as I have cut a lot of foods out. Processed foods . I'm just so scared to go to the
Ceasersalad
in
IBS Network
7 months ago
Diagnosed Age, and Current Age?
Can we re familiarize ourselves a bit by providing age at diagnosis, years treating, current age, and where you live if possible? I was diagnosed at 55 yrs old. Stage IV nodes outside prostate, RP, Triplet Therapy! Currently I am 61 years old. I live in Utah, 🇺🇸
Can we re familiarize ourselves a bit by providing age at diagnosis, years treating, current age, and where you live if possible? I was diagnosed at 55 yrs old. Stage IV nodes outside prostate, RP, Triplet Therapy! Currently I am 61 years old. I live in Utah, 🇺🇸
RCR38
in
Advanced Prostate Cancer
3 months ago
Advice
I have metastatic breast cancer. I am taking Ibrance and fulvestrant. After a gastroscopy, I was diagnosed with an esophageal ulcer. The gastroenterologist prescribed me pantaprozole. After many studies and a call to Fizer, I discovered that Ibrance does not work fully with ppi. I do not know how to
I have metastatic breast cancer. I am taking Ibrance and fulvestrant. After a gastroscopy, I was diagnosed with an esophageal ulcer. The gastroenterologist prescribed me pantaprozole. After many studies and a call to Fizer, I discovered that Ibrance does not work fully with ppi. I do not know how to
yevgeniakoretskaya
in
SHARE Metastatic Breast Cancer
3 months ago
What is the next step
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
old64horn
in
Advanced Prostate Cancer
6 months ago
Survival rate of esophageal cancer.
Dxd 2 weeks ago. Did a CT scan and ultra sound. Have a mass at bottom of esophagus. Some lymph nodes involved nearby. Did a PET scan .Results not back yet. What is my fate?
Dxd 2 weeks ago. Did a CT scan and ultra sound. Have a mass at bottom of esophagus. Some lymph nodes involved nearby. Did a PET scan .Results not back yet. What is my fate?
Messiah6980
in
Oesophageal & Gastric Cancer
3 months ago
Best Salvage Brachytherapy and SBRT locations
I'm trying to find top hospitals that have an experienced RO in salvage treatments for radio-recurrent PCa. I'm close to Duke Cancer Center and they have a RO there who does salvage Brachytherapy but he's only been practicing for 5 years so I doubt he has as much experience as I'd like. I think my
I'm trying to find top hospitals that have an experienced RO in salvage treatments for radio-recurrent PCa. I'm close to Duke Cancer Center and they have a RO there who does salvage Brachytherapy but he's only been practicing for 5 years so I doubt he has as much experience as I'd like. I think my
hwrjr
in
Prostate Cancer Network
3 months ago
Jaw necrosis. Check up. Better safe than sorry. Thought I would get away with dying from my PC before I would need to be at a dentist lol.
4 plus years on Zometa so getting a check up for necrosis to be on the safe side. One of the members of my oncology team who I see about every other appointment finally for about the 3rd time bringing it up with me I agreed best to get a dental check for any signs of jaw necrosis. So delayed my Zometa
4 plus years on Zometa so getting a check up for necrosis to be on the safe side. One of the members of my oncology team who I see about every other appointment finally for about the 3rd time bringing it up with me I agreed best to get a dental check for any signs of jaw necrosis. So delayed my Zometa
CAMPSOUPS
in
Advanced Prostate Cancer
3 months ago
Possible Problems With Bladder Cancer Treatment
My treatment now seems to be - Flexy Cystoscopy first - If anything is found then booked for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid cystoscopy. As a BTY - I am unsure if my BCG treatment has ended, or have I one more go. I am not allowed "general
My treatment now seems to be - Flexy Cystoscopy first - If anything is found then booked for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid cystoscopy. As a BTY - I am unsure if my BCG treatment has ended, or have I one more go. I am not allowed "general
Ern007
in
Lung Conditions Community Forum
3 months ago
Lung Biopsy - Lucky?
During my 1st PEt scan for PC a shadow was revealed on my lung. Subsequent to my PC treatment I did a CT scan of the area and am undergoing a biopsy of that node in a few days. The pulmonary Dr. had doubts that it was from the PC since it was so far removed from the prostate and my cancer was not advanced
During my 1st PEt scan for PC a shadow was revealed on my lung. Subsequent to my PC treatment I did a CT scan of the area and am undergoing a biopsy of that node in a few days. The pulmonary Dr. had doubts that it was from the PC since it was so far removed from the prostate and my cancer was not advanced
Eadgbe
in
Prostate Cancer Network
3 months ago
2 acoustic neuromas
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Operalovers
in
Acoustic Neuroma Support
3 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
3 months ago
Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
3 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
3 months ago
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