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hole in windpipe
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
Von66
in
Oesophageal & Gastric Cancer
3 months ago
After Radiation, what should PSA be?
intermediate pc, with 3+4, 3+4, and 4+3. PSMA clean. Went through SBRT, am on Lupron. Seven months in. usual side effects, especially exhaustion. I went for a PSA and testosterone test today. Should my PSA be undetectable?
intermediate pc, with 3+4, 3+4, and 4+3. PSMA clean. Went through SBRT, am on Lupron. Seven months in. usual side effects, especially exhaustion. I went for a PSA and testosterone test today. Should my PSA be undetectable?
Photographerhere
in
Prostate Cancer Network
6 months ago
where to donate unused meds
hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new meds that I want to donate. Unfortunately nobody that I have asked (breast cancer society / oncologist/ community organizer friend ) knows of
hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new meds that I want to donate. Unfortunately nobody that I have asked (breast cancer society / oncologist/ community organizer friend ) knows of
Georgelila
in
SHARE Metastatic Breast Cancer
2 months ago
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Long complicated paper on gut microbiome and PCa, human and mouse studies.
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
Graham49
in
Advanced Prostate Cancer
2 months ago
Precancerous polyps removed, new symptoms 8 years later
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
Incogkneetoe
in
Colon Cancer Connected
6 months ago
I would like to update my dad's situation (type 4 prostate cancer and bone metastasis) - LIMA PERU
Good afternoon, I thank everyone for the answers you gave me in my previous post. I would like to update my dad's situation (type 4 prostate cancer and bone metastasis) perhaps it will serve someone's experience later and your advice will help me a lot. The medications you take: Omeprazole 7 AM Predisona
Good afternoon, I thank everyone for the answers you gave me in my previous post. I would like to update my dad's situation (type 4 prostate cancer and bone metastasis) perhaps it will serve someone's experience later and your advice will help me a lot. The medications you take: Omeprazole 7 AM Predisona
DiegoFerruaPE
in
Advanced Prostate Cancer
6 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
2 months ago
What's on at Ovacome next week? (week commencing Monday 6 May 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Pluvicto Treatment
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
Parscore
in
Advanced Prostate Cancer
2 months ago
Tamoxifen v Acid Reflux
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Calamintha
in
My Breast Cancer Community
7 months ago
interesting concepts (not applicable yet): Modulating extracellular matrix stiffness - a strategic approach to boost cancer immunotherapy
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
Maxone73
in
Advanced Prostate Cancer
2 months ago
tp53 mutation
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Fortheloveoffarming
in
CLL Support
2 months ago
liquid biopsy lung cancer
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Clark74517796
in
The Roy Castle Lung Cancer Foundation
2 months ago
Different mutation?
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
lizzziep
in
MPN Voice
2 months ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
2 months ago
Always hit pca hard especially in the beginning and follow your instincts, You are Your Own Best Advocate.
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Can sibo cause bloody stools
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Sooty712
in
IBS Network
5 months ago
Today was a good day
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
EvFC
in
Advanced Prostate Cancer
2 months ago
better delivery for better results: nanolipid particles work well in vivo
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
Maxone73
in
Advanced Prostate Cancer
2 months ago
Surgery or radiotheraphy?
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is
Zhad
in
Acoustic Neuroma Support
2 months ago
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