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In Shock!
Hi all Around a year ago I was diagnosed, via a fibroscan with a score of 20, as my gastro consultant said, borderline cirrhosis. I’ve never been happy with the lack of anything I have received from him so I pushed for a referral to Kings College. I ended up there yesterday and they did a second
Hi all Around a year ago I was diagnosed, via a fibroscan with a score of 20, as my gastro consultant said, borderline cirrhosis. I’ve never been happy with the lack of anything I have received from him so I pushed for a referral to Kings College. I ended up there yesterday and they did a second
Honeysuckle123
in
British Liver Trust
8 months ago
ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
RupertW-SUMS
in
LUPUS UK
6 months ago
Lupus information and stories
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
MrsMarigold
in
LUPUS UK
6 months ago
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What is the best app for lupus diet.
I’m struggling with my weight and what to avoid .
I’m struggling with my weight and what to avoid .
Gabriel8
in
LUPUS UK
6 months ago
Why not give Hyperbaric Oxygen Therapy (HBOT) as Adjunctive Therapy a Try?
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
Isthistheone
in
Cure Parkinson's
8 months ago
liver chrosis
Hi folks today I was diagnosed with early stage liver chrosis, I was massively overweight and managed to loose 10 stone although in a recent blood test showed platelets were low , I am 32 and now very scared about what the future my hold and what my life expectancy is. I have a young daughter at 3 and
Hi folks today I was diagnosed with early stage liver chrosis, I was massively overweight and managed to loose 10 stone although in a recent blood test showed platelets were low , I am 32 and now very scared about what the future my hold and what my life expectancy is. I have a young daughter at 3 and
Anxiousboy18
in
British Liver Trust
8 months ago
Update: re my "draining fluid" post
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
taar
in
British Liver Trust
8 months ago
Fibroscan results
Hi, My husband’s fibroscan came back with a KPA of 21.5 and the hepetologist has said he has significant bridging fibrosis - she actually said that he doesn’t have cirrhosis (said multiple times) and that at this stage he can still reverse it if he loses weight? What confuses me is that everywhere
Hi, My husband’s fibroscan came back with a KPA of 21.5 and the hepetologist has said he has significant bridging fibrosis - she actually said that he doesn’t have cirrhosis (said multiple times) and that at this stage he can still reverse it if he loses weight? What confuses me is that everywhere
Whatta
in
British Liver Trust
8 months ago
Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
Charts
in
LUPUS UK
6 months ago
Supraventricular Ectopies
I’m looking for reassurance, my friends. I am plagued by many palpitations these days, which my Kardia says are mostly SVEs, with a bit of Afib thrown in - unless of course Kardia is incorrect and they are all Afib ! I see a cardiologist annually and actually, because I complained of these palpitations
I’m looking for reassurance, my friends. I am plagued by many palpitations these days, which my Kardia says are mostly SVEs, with a bit of Afib thrown in - unless of course Kardia is incorrect and they are all Afib ! I see a cardiologist annually and actually, because I complained of these palpitations
Tellingfibs
in
Atrial Fibrillation Support
5 months ago
Verapamil and effects on thyroid
I have been wondering if my long term use of heart drug Verapamil has had any affect on my thyroid. I have been on Thyroxine for 22 years and Verapamil for about 18 years. I stumble across the following article and wondered if anyone can make head or tail of it. It says at the end it was safe for the
I have been wondering if my long term use of heart drug Verapamil has had any affect on my thyroid. I have been on Thyroxine for 22 years and Verapamil for about 18 years. I stumble across the following article and wondered if anyone can make head or tail of it. It says at the end it was safe for the
destiny234
in
Thyroid UK
5 months ago
yellow tongue
Hi All. My partner has been diagnosed with cirrhosis. he has a few mild symptoms, bloated stomach, spider veins, erectile dysfuction, loss of appetite. He has now developed a yellow tongue with fissures. Has anyone else had this? Is it related to cirrhosis as I cant find anything about it online
Hi All. My partner has been diagnosed with cirrhosis. he has a few mild symptoms, bloated stomach, spider veins, erectile dysfuction, loss of appetite. He has now developed a yellow tongue with fissures. Has anyone else had this? Is it related to cirrhosis as I cant find anything about it online
pussycat66
in
British Liver Trust
8 months ago
feeding tube decision
hi everyone my precious 81 yr old dad 20 years with PD my hero Is sadly losing his battle with PD He has had a very rough couple of weeks first fell broke his hip & had surgery to repair in hospital over a week Then while recovering from that contracted RSV and double pneumonia. Back to hospital
hi everyone my precious 81 yr old dad 20 years with PD my hero Is sadly losing his battle with PD He has had a very rough couple of weeks first fell broke his hip & had surgery to repair in hospital over a week Then while recovering from that contracted RSV and double pneumonia. Back to hospital
Joy_gitt
in
Cure Parkinson's
8 months ago
Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
6 months ago
updated Sjögren’s leaflet
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
weathervane
in
LUPUS UK
6 months ago
when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
6 months ago
So fed up
I keep getting a pain in the bottom of my chest / top of stomach area. I ended up in a&e last week after 2 hours of pain. I had an ecg, blood tests, chest xray, ct scan & an ultrasound on my stomach, after initial worries everything seems fine apart from 1 dr wanting me to have an echocardiogram & 24
I keep getting a pain in the bottom of my chest / top of stomach area. I ended up in a&e last week after 2 hours of pain. I had an ecg, blood tests, chest xray, ct scan & an ultrasound on my stomach, after initial worries everything seems fine apart from 1 dr wanting me to have an echocardiogram & 24
Gilly61
in
Anxiety Support
5 months ago
Short synacthen test results
I had a second SST in June at the insistence of my endo, and have been meaning to post for comment. My results were:- 8.55am 245 nmol/l 9.25am 592 nmol/l (Adrenal insufficiency indicated by cortisol <440 30 mins post synacthen) I am aware that my starting cortisol is fairly dire, although my GP
I had a second SST in June at the insistence of my endo, and have been meaning to post for comment. My results were:- 8.55am 245 nmol/l 9.25am 592 nmol/l (Adrenal insufficiency indicated by cortisol <440 30 mins post synacthen) I am aware that my starting cortisol is fairly dire, although my GP
CornishChick
in
Thyroid UK
8 months ago
Pharmacist denied medication
Hesitant to post this. Opinions run strong on subject. My regular (+1yr) pharmacist called to tell me she was denying my regular pain med fill due to increased usage of thc. Shocked. She advised me to find another pharmacy that sells both THC and pain medication (doesn’t exist) and talk to my doctor.
Hesitant to post this. Opinions run strong on subject. My regular (+1yr) pharmacist called to tell me she was denying my regular pain med fill due to increased usage of thc. Shocked. She advised me to find another pharmacy that sells both THC and pain medication (doesn’t exist) and talk to my doctor.
Wtfisup
in
My MSAA Community
8 months ago
Hello - I'm a new member
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
WendyB123
in
NRAS
6 months ago
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