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Experiences with
Pelizaeus–Merzbacher-like disease
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Belimumab treatment
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Spacecadet73
in
LUPUS UK
5 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
7 months ago
Unusual positional ectopics and PAF
A few days ago, on turning onto my right side to go to sleep, after about 30 minutes I noticed palpitations (rather “heavy”ectopics and a slower than usual heartbeat which was “stuttering”) This lasted for several hours until I fell asleep. Last night this pattern repeated again, but this time when
A few days ago, on turning onto my right side to go to sleep, after about 30 minutes I noticed palpitations (rather “heavy”ectopics and a slower than usual heartbeat which was “stuttering”) This lasted for several hours until I fell asleep. Last night this pattern repeated again, but this time when
Samazeuilh2
in
Atrial Fibrillation Support
4 months ago
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Interesting article about curing autoimmune diseases
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
CatsandCars
in
My MSAA Community
5 months ago
Post Ablation follow up.
This site is a wealth of knowledge and common sense so I wonder if people could share their experiences with me.I had a PV ablation for Afib in May 2023 in an excellent Leicestershire hospital and had brilliant care but since then have not been seen by anyone - but I have been given a date of September
This site is a wealth of knowledge and common sense so I wonder if people could share their experiences with me.I had a PV ablation for Afib in May 2023 in an excellent Leicestershire hospital and had brilliant care but since then have not been seen by anyone - but I have been given a date of September
Nakesero
in
Atrial Fibrillation Support
4 months ago
8Fast Regular Heartrate
HiI was diagnosed with Atrial Fibrillation about 3 years ago and I am on a low dose of a betablocker (Bisoprolol 1.25mg daily). I seem to go for quite long gaps without an episode and sometimes I'm not even sure if it is an Afib episode - I have other arrythmias so it can be hard to differentiate. For
HiI was diagnosed with Atrial Fibrillation about 3 years ago and I am on a low dose of a betablocker (Bisoprolol 1.25mg daily). I seem to go for quite long gaps without an episode and sometimes I'm not even sure if it is an Afib episode - I have other arrythmias so it can be hard to differentiate. For
Spangle14
in
Atrial Fibrillation Support
4 months ago
REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
michaellasmith
Administrator
in
LUPUS UK
5 months ago
Focus group with Kuma Health - 8th March 10.30am until 12pm!
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
michaellasmith
Administrator
in
LUPUS UK
5 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
5 months ago
New Blood Thinner for Stroke Prevention
Hi all, Some exciting news for those on Blood Thinners for AF. Abelacimab is a monoclonal antibody given just once a month by subcutaneous injection. It is not cleared by the kidneys, doesn’t require dose adjustments, and is not affected by other drugs. It achieves near-complete 99% inhibition of
Hi all, Some exciting news for those on Blood Thinners for AF. Abelacimab is a monoclonal antibody given just once a month by subcutaneous injection. It is not cleared by the kidneys, doesn’t require dose adjustments, and is not affected by other drugs. It achieves near-complete 99% inhibition of
AustinElliot
in
AF Association
7 months ago
New to in center HD
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
HersheeKisses
in
Kidney Dialysis
7 months ago
tenofovir disoproxil fumarate and weight gain
I was contacted today by a liver nurse. I found out that I have been prescribed tenofovir. I started reading about it. I saw online that it is associated not only with kidney problems, and bone density problems, but also a weight gain and body shape changes!!! What are other peoples experiences?! Have
I was contacted today by a liver nurse. I found out that I have been prescribed tenofovir. I started reading about it. I saw online that it is associated not only with kidney problems, and bone density problems, but also a weight gain and body shape changes!!! What are other peoples experiences?! Have
LittleShrew
in
British Liver Trust
7 months ago
Experience on Propranolol & omeprazole
So iv been experiencing very slight discomfort in my chest recently from getting PVCs a Kardia EKG shown up. Also my stomach/belly area occasionally gets discomfort. I started with palpitations about 2 months ago and all blood tests, chest X-ray and loads of ECGs done by hospital have all came back
So iv been experiencing very slight discomfort in my chest recently from getting PVCs a Kardia EKG shown up. Also my stomach/belly area occasionally gets discomfort. I started with palpitations about 2 months ago and all blood tests, chest X-ray and loads of ECGs done by hospital have all came back
AWhittaker
in
Atrial Fibrillation Support
4 months ago
Help please
Would anyone be able to recommend an endo in North Yorkshire? I've sent my GP lots of research about T3 and bradycardia and other heart problems because he's told me it's not necessary to test. So far he hasn't been in touch. He's also not happy about my TSH which he considers too low at 0.13. I've sent
Would anyone be able to recommend an endo in North Yorkshire? I've sent my GP lots of research about T3 and bradycardia and other heart problems because he's told me it's not necessary to test. So far he hasn't been in touch. He's also not happy about my TSH which he considers too low at 0.13. I've sent
foamfollower
in
Thyroid UK
4 months ago
Blood flow through liver
Hello all I had a ultrasound just over a month ago but got results today showing a fatty liver and slow or low blood through my liver the nurse practitioner giving me my results could give me no reason as to why as by all accounts scarring wasn't seen only fat deposits. My liver enzymes have been rising
Hello all I had a ultrasound just over a month ago but got results today showing a fatty liver and slow or low blood through my liver the nurse practitioner giving me my results could give me no reason as to why as by all accounts scarring wasn't seen only fat deposits. My liver enzymes have been rising
nettiboo1982
in
Thyroid UK
7 months ago
15hour wait for an ambulance
I was told by GP to call an ambulance because I had a chest ache for about 3 weeks and was having AFib at the time. I explained that it was not a pain but an ache and asked if I really did need an ambulance? She was adamant I did. Called 999 at noon - ambulance arrived 3am! Hospital trolley in corridor
I was told by GP to call an ambulance because I had a chest ache for about 3 weeks and was having AFib at the time. I explained that it was not a pain but an ache and asked if I really did need an ambulance? She was adamant I did. Called 999 at noon - ambulance arrived 3am! Hospital trolley in corridor
GrannyE
in
Atrial Fibrillation Support
4 months ago
Half moons on fingers
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
yewotc23
in
Thyroid UK
5 months ago
12 months waiting for nothing.
yesterday I had a telephone appointment from a cardiologist that I’ve waited 12 months for. To say I’m disappointed is an understatement. The last cardiologist I spoke to, said if I lose 10% of my body weight, an ablation would be the best option. The one yesterday, told me I had to have a BMI
yesterday I had a telephone appointment from a cardiologist that I’ve waited 12 months for. To say I’m disappointed is an understatement. The last cardiologist I spoke to, said if I lose 10% of my body weight, an ablation would be the best option. The one yesterday, told me I had to have a BMI
macymoo007
in
Atrial Fibrillation Support
4 months ago
could olaparib raise LDL cholesterol?
I took my master medical couple weeks back and the only blemish (apart from known blood work readings) is my cholesterol is high. My good cholesterol is in good range while the LDL bad cholesterol is in the upper end of the "high" range at 175.22. There is only a very high range after this. i last
I took my master medical couple weeks back and the only blemish (apart from known blood work readings) is my cholesterol is high. My good cholesterol is in good range while the LDL bad cholesterol is in the upper end of the "high" range at 175.22. There is only a very high range after this. i last
Goodgirl98
in
My Ovacome
4 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
5 months ago
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