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Pelizaeus–Merzbacher disease
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Pianolover101
Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband
Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband
Hidden
in
British Liver Trust
7 days ago
Correct dose of b12 post abdominal surgery/stoma bag
I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell! I would
I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell! I would
Vonni7
in
Pernicious Anaemia Society
7 days ago
No cancer found from TURP tissue ???
My husband had TURP a week ago because of years of issues with peeing . He was supposed to get this done last year but was diagnosed with stage 4 cancer , you may read my profile for his treatment and current PSA . The urologist said they would test all the tissue they take out . We were called by our
My husband had TURP a week ago because of years of issues with peeing . He was supposed to get this done last year but was diagnosed with stage 4 cancer , you may read my profile for his treatment and current PSA . The urologist said they would test all the tissue they take out . We were called by our
positive-thinking
in
Advanced Prostate Cancer
7 days ago
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Cancer that doesn't express PSMA
Hello everyone - thanks in advance for any thoughts or opinions! Here's the abbreviated version of my story: My father was diagnosed at 51 and died at 52 of metastatic prostate cancer (think his PSA at time of diagnosis was in the 40s, but cannot remember for sure). I've been diligent with PSA and
Hello everyone - thanks in advance for any thoughts or opinions! Here's the abbreviated version of my story: My father was diagnosed at 51 and died at 52 of metastatic prostate cancer (think his PSA at time of diagnosis was in the 40s, but cannot remember for sure). I've been diligent with PSA and
Trasmc
in
Advanced Prostate Cancer
7 days ago
Salvage treatment for radiorecurrent PCa
If I’m lucky I’ll soon be facing a decision as to which salvage treatment to have for radiorecurreent PCa. By lucky I mean that if upcoming tests show no spread outside of the prostate and I’m a candidate for salvage treatment. The salvage treatments I’m considering are SBRT, Brachytherapy and Cryotherapy
If I’m lucky I’ll soon be facing a decision as to which salvage treatment to have for radiorecurreent PCa. By lucky I mean that if upcoming tests show no spread outside of the prostate and I’m a candidate for salvage treatment. The salvage treatments I’m considering are SBRT, Brachytherapy and Cryotherapy
hwrjr
in
Advanced Prostate Cancer
8 days ago
Experience with Endoxan 50mg and Alcohol
Hello I am being treated for renal-limited vasculitis from p-ANCA, MPO. eGFR has improved from 23 to 56 over last three months. So many lifestyle and dietary changes implemented. Now I start to miss my weekend beer or two. I get mixed messages from the doctors and internet searches on whether ok
Hello I am being treated for renal-limited vasculitis from p-ANCA, MPO. eGFR has improved from 23 to 56 over last three months. So many lifestyle and dietary changes implemented. Now I start to miss my weekend beer or two. I get mixed messages from the doctors and internet searches on whether ok
Support_helps
in
Vasculitis UK
8 days ago
First Liver Consultant Appointment
Hi I have my first appointment with a consultant in Edinburgh to confirm my diagnosis of 'Probable Cirrhosis' on the 4th October. I was diagnosed via blood tests and scans, that I have alcohol related liver disease. I stopped drinking 5 months ago and have seen a great improvement in my general well
Hi I have my first appointment with a consultant in Edinburgh to confirm my diagnosis of 'Probable Cirrhosis' on the 4th October. I was diagnosed via blood tests and scans, that I have alcohol related liver disease. I stopped drinking 5 months ago and have seen a great improvement in my general well
catmum2
in
British Liver Trust
8 days ago
Finally, weaning off prednisone after 15 years.
I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness
I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness
phebamom
in
PMRGCAuk
8 days ago
Surgery? - Graves disease and thyroid nodule
I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole
I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole
Greggors
in
Thyroid UK
8 days ago
F3/F4 Diagnoses
Hi All. This is my first post. I had a fibroscan back in July and the nurse who performed it told me I had high-level F3, possibly creeping into F4. I’ve been referred to the Cirrosis Surveillance Team at my local hospital, but my first appointment isn’t until the middle of October. I’ve done a lot of
Hi All. This is my first post. I had a fibroscan back in July and the nurse who performed it told me I had high-level F3, possibly creeping into F4. I’ve been referred to the Cirrosis Surveillance Team at my local hospital, but my first appointment isn’t until the middle of October. I’ve done a lot of
Frogman68
in
British Liver Trust
9 days ago
PSA acting very weird
Recurrent prostate cancer after RP in 2018...though seemingly not metastatic...yet. Haven't done treatment. My story is in the profile and bio. Anyway, PSA got as high as the 9's earlier this year...then fell to 7.7 in July...and now in September registers 3.4. No idea what's happening or why.
Recurrent prostate cancer after RP in 2018...though seemingly not metastatic...yet. Haven't done treatment. My story is in the profile and bio. Anyway, PSA got as high as the 9's earlier this year...then fell to 7.7 in July...and now in September registers 3.4. No idea what's happening or why.
Nittany
in
Advanced Prostate Cancer
9 days ago
question about cirrhosis
Has anyone had cirrhosis from Hep C, portal hypertension, enlarged spleen, diabetes. All these diagnoses have my anxiety at a high level.
Has anyone had cirrhosis from Hep C, portal hypertension, enlarged spleen, diabetes. All these diagnoses have my anxiety at a high level.
Brownie1122
in
British Liver Trust
9 days ago
Dad’s latest blood results - PSA down , ALP down , T up
Got dad’s blood work done after almost 8 weeks. Last tests were done on 23 July when he was only on orgovyx. At the time his PSA was 1.177 , testosterone was 26 , ALP 325 Started Xtandi around 6 weeks back- for a month at 80 mg and since the last 2 weeks at 120 mg. Latest results. - PSA
Got dad’s blood work done after almost 8 weeks. Last tests were done on 23 July when he was only on orgovyx. At the time his PSA was 1.177 , testosterone was 26 , ALP 325 Started Xtandi around 6 weeks back- for a month at 80 mg and since the last 2 weeks at 120 mg. Latest results. - PSA
Tinkudi
in
Advanced Prostate Cancer
10 days ago
Zanubrutinib and kidney stones
I have been on Zanubrutinib for four years and my blood results are normal. In the last month, I have been urinating blood and CT scans show kidney stones. Does anyone know if Zanubrutinib contributes to stones?
I have been on Zanubrutinib for four years and my blood results are normal. In the last month, I have been urinating blood and CT scans show kidney stones. Does anyone know if Zanubrutinib contributes to stones?
CorbetCat
in
CLL Support
10 days ago
If PSA decreases in MHsPC but ALP increases , is one still castrate sensitive ?
I know that PSA decreasing or remaining steady while on hormone therapy means one is hormone sensitive but if PSA decreases but ALP increases , does that still mean one is hormone sensitive ?
I know that PSA decreasing or remaining steady while on hormone therapy means one is hormone sensitive but if PSA decreases but ALP increases , does that still mean one is hormone sensitive ?
Tinkudi
in
Advanced Prostate Cancer
10 days ago
Ok to do brisk walking before doing psa test ?
Is it ok to do brisk walking just before doing a PSA test. I know One should avoid cycling for a couple of days.
Is it ok to do brisk walking just before doing a PSA test. I know One should avoid cycling for a couple of days.
Tinkudi
in
Advanced Prostate Cancer
10 days ago
Chromogenic Factor X Blood Test
Does anyone use this blood test, instead of or in conjunction with a Protime, to monitor their level of anti-coagulation? Successful? Many thanks for your responses.
Does anyone use this blood test, instead of or in conjunction with a Protime, to monitor their level of anti-coagulation? Successful? Many thanks for your responses.
mburns1401
in
Hughes Syndrome APS Forum
10 days ago
Lost my mother
Hello everyone I am here to share my story of my mother who lost her battle to sepsis and chronic kidney disease. It was painful to watch her lying on the ICU bed and with ventilator. I lost her on the 18th of April 2024. My heart cannot accept the fact that I have lost her and she is no more with me
Hello everyone I am here to share my story of my mother who lost her battle to sepsis and chronic kidney disease. It was painful to watch her lying on the ICU bed and with ventilator. I lost her on the 18th of April 2024. My heart cannot accept the fact that I have lost her and she is no more with me
saniyash7087
in
ICUsteps
10 days ago
advice
Diagnosed with cirrhosis in2022 from hepatitis C. Got treatment for the hepatitis and cured. Now it’s every 6 months of scans and bloodwork with is always said to be stable. This month the scan showed severe enlarged spleen most likely due to increased portal hypertension. Went from 1 to1.3cm. Still
Diagnosed with cirrhosis in2022 from hepatitis C. Got treatment for the hepatitis and cured. Now it’s every 6 months of scans and bloodwork with is always said to be stable. This month the scan showed severe enlarged spleen most likely due to increased portal hypertension. Went from 1 to1.3cm. Still
Brownie1122
in
British Liver Trust
10 days ago
good news on fibroscan
after worrying about my husband’s fibroscan today, all went well. He was told he has no scarring on his liver and just a little bit of fat (she said to be expected with almost 79 year old). Re his high blood reading (ELF 9.8) the grapher also said that levels can fluctuate and his one high reading
after worrying about my husband’s fibroscan today, all went well. He was told he has no scarring on his liver and just a little bit of fat (she said to be expected with almost 79 year old). Re his high blood reading (ELF 9.8) the grapher also said that levels can fluctuate and his one high reading
Doraflora
in
British Liver Trust
11 days ago
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