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Update on Pegasys for ET
White cell count is also down to lower end of normal so we'll need to keep an eye on that too but so far so good - very pleased I decided to try
Pegasys
...😀
White cell count is also down to lower end of normal so we'll need to keep an eye on that too but so far so good - very pleased I decided to try
Pegasys
...😀
AndyT
in
MPN Voice
8 years ago
***Combo therapy Ruxolitinib and Pegasys, ASH 2015.*** - hot off the press!
Here is the abstract from Hasselbalch combo: http://ativsoftware.com/appinfo.php?page=Inthtml&project=ASH15&server=ep70.eventpilotadmin.com&id=85751P I have all the slides from this outstanding presentation, butcould not post from my gallery. Check most of the mpn FB groups or PV Reporter FB page.
Here is the abstract from Hasselbalch combo: http://ativsoftware.com/appinfo.php?page=Inthtml&project=ASH15&server=ep70.eventpilotadmin.com&id=85751P I have all the slides from this outstanding presentation, butcould not post from my gallery. Check most of the mpn FB groups or PV Reporter FB page.
PVReporter
in
MPN Voice
8 years ago
Intron A and Pegasys
Hi, is there anyone who took Intron A and stopped it cause crisis of anxiety/depression and then passed to
Pegasys
without having this adverse effect?
Hi, is there anyone who took Intron A and stopped it cause crisis of anxiety/depression and then passed to
Pegasys
without having this adverse effect?
donatella
in
MPN Voice
8 years ago
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Pegasys and Low Blood Counts
Hi Everyone, Can
Pegasys
(Inteferon) lower your counts too much?
Hi Everyone, Can
Pegasys
(Inteferon) lower your counts too much?
MarieNZ
in
MPN Voice
8 years ago
Hello!
I was diagnosed with PV June 2013, I'm Jak2+, currently taking daily asprin, and have been on
Pegasys
for about a year as the Hyrdrea wasn't working for me.
I was diagnosed with PV June 2013, I'm Jak2+, currently taking daily asprin, and have been on
Pegasys
for about a year as the Hyrdrea wasn't working for me.
MarieNZ
in
MPN Voice
8 years ago
Getting no results with pegasys
Hi I'm new to this post- I have et and pv and have been on
Pegasys
for 6 months with no change in blood counts. Has anyone had the same problem? Don't know if I should continue . Just found this blog and I'm excited to read all the stories that we share alike .
Hi I'm new to this post- I have et and pv and have been on
Pegasys
for 6 months with no change in blood counts. Has anyone had the same problem? Don't know if I should continue . Just found this blog and I'm excited to read all the stories that we share alike .
ggrana
in
MPN Voice
9 years ago
Starting Interferon
Ended up opting for
Pegasys
instead and injecting my first dose there and then in the clinic..! So far so good with no side effects noticeable - back in 2 weeks to see if it's started having any effect on my platelet count of 1100+.
Ended up opting for
Pegasys
instead and injecting my first dose there and then in the clinic..! So far so good with no side effects noticeable - back in 2 weeks to see if it's started having any effect on my platelet count of 1100+.
AndyT
in
MPN Voice
9 years ago
Pegasys Storage Temperature
Now I am paying for weekly doses of
Pegasys
. What I'd like to get some input on, for those of you who may be on
Pegasys
, is regarding the storage temperature of your fridge. Now I know it is meant to be between 5-8 degrees C.
Now I am paying for weekly doses of
Pegasys
. What I'd like to get some input on, for those of you who may be on
Pegasys
, is regarding the storage temperature of your fridge. Now I know it is meant to be between 5-8 degrees C.
dengor
in
MPN Voice
9 years ago
Ruxolitinib and MF without JAK2
After 10 months treatment with
PEGASYS
my condition stabilised without improving. I was strongly advised to go for a BMT. Consequently my
Pegasys
has been stopped now for 6 weeks. 1st month OK then eye infections, thrombosis in arms and legs and general weakness.
After 10 months treatment with
PEGASYS
my condition stabilised without improving. I was strongly advised to go for a BMT. Consequently my
Pegasys
has been stopped now for 6 weeks. 1st month OK then eye infections, thrombosis in arms and legs and general weakness.
crapaud
in
MPN Voice
9 years ago
New to group
Hi my thyroid seems to be getting hit by my
pegasys
injections (interferon) I take 25mcg of Levo per day my plasma free T4 is 7.26 mIu/L (0.4 - 4.00) Can anyone advise on what amount of Levo I may need per day ? Thanks
Hi my thyroid seems to be getting hit by my
pegasys
injections (interferon) I take 25mcg of Levo per day my plasma free T4 is 7.26 mIu/L (0.4 - 4.00) Can anyone advise on what amount of Levo I may need per day ? Thanks
Oakley
in
Thyroid UK
9 years ago
Dryness .. ears, mouth, skin, everything!
Meds are
Pegasys
inteferon and clopidegrel. i am suffering from extreme dryness. Does this sound familiar? Sherry
Meds are
Pegasys
inteferon and clopidegrel. i am suffering from extreme dryness. Does this sound familiar? Sherry
Sherry2
in
MPN Voice
10 years ago
Bone marrow transplant with MF
I have been recently diagnosed with MF and am in the initial phase (being treated with
PEGASYS
). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease).
I have been recently diagnosed with MF and am in the initial phase (being treated with
PEGASYS
). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease).
crapaud
in
MPN Voice
10 years ago
I have been taking PEGASYS by injection in the arm ~10 days after injection I get an itchy rash at injection site - how to relieve the itch?
PEGASYS
135 millig every 2weeks; I change injection site (left arm then right...). Have been taking
Pegasys
for 3 months. Diagnosed with MF.
PEGASYS
135 millig every 2weeks; I change injection site (left arm then right...). Have been taking
Pegasys
for 3 months. Diagnosed with MF.
crapaud
in
MPN Voice
10 years ago
Interferon 2a or Pegasys----how different are they regarding effect on the body and possible molecular remission?
Would there be any point in switching to
Pegasys
? I am hoping to have fewer side effects/less pain, so does anyone know if this is likely? How differently does
Pegasys
work compared with interferon 2a? How long does each stay in the body? Does anyone know, or can anyone ask someone who knows?
Would there be any point in switching to
Pegasys
? I am hoping to have fewer side effects/less pain, so does anyone know if this is likely? How differently does
Pegasys
work compared with interferon 2a? How long does each stay in the body? Does anyone know, or can anyone ask someone who knows?
graymare
in
MPN Voice
10 years ago
it's nearly been a year
I'm now on 180mg of
Pegasys
once a week and aspirin, and I am over the moon to say that my platelets are at the best levels they have ever been at approx 450... so nearly 'normal' my white blood cell counts and neutrophils are also looking good.
I'm now on 180mg of
Pegasys
once a week and aspirin, and I am over the moon to say that my platelets are at the best levels they have ever been at approx 450... so nearly 'normal' my white blood cell counts and neutrophils are also looking good.
Jennie_Barnes
in
MPN Voice
10 years ago
Interferon negative side effects personal research
Hi, I was wondering if anyone received any kind of treatment with Interferon lika INTRON A, Roferon A, Peginterferon,
Pegasys
....and so on? I was on INTRON A , and i had major side effects. This biological treatment was going on for a year and i lost 35 pounds during that period.
Hi, I was wondering if anyone received any kind of treatment with Interferon lika INTRON A, Roferon A, Peginterferon,
Pegasys
....and so on? I was on INTRON A , and i had major side effects. This biological treatment was going on for a year and i lost 35 pounds during that period.
ClaudeM
in
MPN Voice
11 years ago
Anagrelide and interferon?
I started on
Pegasys
fairly recently but it isn't controlling my platelets on its own and so I have been taking hydroxycarbamide as well. This was a short term measure because I don't get on very well with the HU and I am due to discuss alternatives when I see my haematologist on Thursday.
I started on
Pegasys
fairly recently but it isn't controlling my platelets on its own and so I have been taking hydroxycarbamide as well. This was a short term measure because I don't get on very well with the HU and I am due to discuss alternatives when I see my haematologist on Thursday.
Jo_L
in
MPN Voice
11 years ago
Any tips on injecting interferon (Pegasys)?
I've recently started on
Pegasys
(my third injection will be on the 9th March) and I was wondering if anyone would like to share their experiences of injecting interferon?
I've recently started on
Pegasys
(my third injection will be on the 9th March) and I was wondering if anyone would like to share their experiences of injecting interferon?
Jo_L
in
MPN Voice
11 years ago
Has anyone had a pregnancy with ET?
I am 13 weeks pregnant and on
Pegasys
, consultant just added heparin injection daily as well but happy with me so far. Would love to hear about other people's experience thank you
I am 13 weeks pregnant and on
Pegasys
, consultant just added heparin injection daily as well but happy with me so far. Would love to hear about other people's experience thank you
Dingwall1979
in
MPN Voice
11 years ago
The Beginning of Treatment 2006
My medication is
PEGASYS
* (interferon) and COPEGUS* (ribavirin) One needle a week and six pills a day. Other meds were Tylenol Ultra as needed for headaches; not more than four a day; mostly I needed two.
My medication is
PEGASYS
* (interferon) and COPEGUS* (ribavirin) One needle a week and six pills a day. Other meds were Tylenol Ultra as needed for headaches; not more than four a day; mostly I needed two.
Lucile
in
HepNS
11 years ago
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