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Pegasys
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Really struggling on pegasys
Hi everyone I have been on peg for around three months and have slowly had them increased every visit to guys I am now on 180 ug per week and my counts have still not moved I have been taken off Hu now after nearly twenty years on it as it has stopped being an effective treatment, I am not sure if I
Hi everyone I have been on peg for around three months and have slowly had them increased every visit to guys I am now on 180 ug per week and my counts have still not moved I have been taken off Hu now after nearly twenty years on it as it has stopped being an effective treatment, I am not sure if I
Rastavapa
in
MPN Voice
7 years ago
PV joint pain
I'm on
Pegasys
90mcg weekly. Truly, the pain is unbearable. Anyone have any insight? Thanks.
I'm on
Pegasys
90mcg weekly. Truly, the pain is unbearable. Anyone have any insight? Thanks.
MaryELWoods
in
MPN Voice
7 years ago
Interferon A
I am keen to preserve with interferon and did ask about
pegasys
but was told this was only an option if Roferon A is not tolerated. I was symptom free before diagnosis and treatment.
I am keen to preserve with interferon and did ask about
pegasys
but was told this was only an option if Roferon A is not tolerated. I was symptom free before diagnosis and treatment.
Poppy112
in
MPN Voice
7 years ago
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Lyrica (pregabalin), Trepiline
Hi all, I have ET Jak2+ and am on
Pegasys
90 mcg every 3 weeks. Peg is working well, although rather harsh on my liver. What I would like to know is: anyone taking Lyrica (pregabalin) and/or Trepiline? Any tips, what were your experiences?
Hi all, I have ET Jak2+ and am on
Pegasys
90 mcg every 3 weeks. Peg is working well, although rather harsh on my liver. What I would like to know is: anyone taking Lyrica (pregabalin) and/or Trepiline? Any tips, what were your experiences?
Lab-Rat
in
MPN Voice
7 years ago
Severe leg joint pain
I have PV and am on
Pegasys
90 mcg weekly. I have terrible hip and knee joint pain. I also get severe muscle cramps in my feet, calves, and thighs. My oncologist's only response is that I should stretch, which I do regularly. My magnesium levels were normal so he's not concerned.
I have PV and am on
Pegasys
90 mcg weekly. I have terrible hip and knee joint pain. I also get severe muscle cramps in my feet, calves, and thighs. My oncologist's only response is that I should stretch, which I do regularly. My magnesium levels were normal so he's not concerned.
MaryELWoods
in
MPN Voice
7 years ago
Interferon dosage?
I began taking 45 mcg of
Pegasys
, seven weeks ago. I was doing very well, as I have had minimal side effects, have been feeling less fatigued, and have had improving blood levels. Today, I had an appointment, and all numbers have continued to trend in the right direction, except my red blood count.
I began taking 45 mcg of
Pegasys
, seven weeks ago. I was doing very well, as I have had minimal side effects, have been feeling less fatigued, and have had improving blood levels. Today, I had an appointment, and all numbers have continued to trend in the right direction, except my red blood count.
clevemic
in
MPN Voice
7 years ago
Severe Headache
I'm 55 and on
Pegasys
90 mcg weekly. Yesterday I was having a rather normal day except for more than usual red hot flashes....my hands, neck, and face were bright red and tingly for most of the afternoon. Then at 4pm I was hit with the most massive headache I have ever experienced.
I'm 55 and on
Pegasys
90 mcg weekly. Yesterday I was having a rather normal day except for more than usual red hot flashes....my hands, neck, and face were bright red and tingly for most of the afternoon. Then at 4pm I was hit with the most massive headache I have ever experienced.
MaryELWoods
in
MPN Voice
7 years ago
Explain the fatigue
My labs are almost all normal after only two
Pegasys
injections (RBC, H/H are Normal, platelets were 800s and are now 500s). I'm still so fatigued and often lightheaded. My husband doesn't understand that I still feel this way now that my labs are better. Am I crazy? Does the fatigue ever go away?
My labs are almost all normal after only two
Pegasys
injections (RBC, H/H are Normal, platelets were 800s and are now 500s). I'm still so fatigued and often lightheaded. My husband doesn't understand that I still feel this way now that my labs are better. Am I crazy? Does the fatigue ever go away?
MaryELWoods
in
MPN Voice
7 years ago
Pegylated Interferon...starting soon
I’m supposed to start
Pegasys
this week. Can you share your experience with me? Do you get sick? For how long? What helps relieve it? Needless to say, I’m scared.
I’m supposed to start
Pegasys
this week. Can you share your experience with me? Do you get sick? For how long? What helps relieve it? Needless to say, I’m scared.
MaryELWoods
in
MPN Voice
7 years ago
New oncologist new diagnosis
Would love to hear your experiences with
Pegasys
...
Would love to hear your experiences with
Pegasys
...
MaryELWoods
in
MPN Voice
7 years ago
Peg questions
I am starting
pegasys
in 4 days and am looking for advice. I am a second grade teacher, and am exhausted at the end of every day. Now that I am starting
Pegasys
, I fear that my fatigue will be even worse.
I am starting
pegasys
in 4 days and am looking for advice. I am a second grade teacher, and am exhausted at the end of every day. Now that I am starting
Pegasys
, I fear that my fatigue will be even worse.
clevemic
in
MPN Voice
7 years ago
PEGASYS Interferon and High BP
Just started on
PEGASYS
Interferon and my BP has gone up.... Thoughts?
Just started on
PEGASYS
Interferon and my BP has gone up.... Thoughts?
shiftzz
in
MPN Voice
7 years ago
Not been online for a while
Not been here for a while I switched to interferon and the side effects were very harsh, I am now under guys and just started
pegasys
hopefully it will have less side effects but my tiredness is at an all time high and the pain I seem to be getting in my legs is pretty severe now plus I just feel like
Not been here for a while I switched to interferon and the side effects were very harsh, I am now under guys and just started
pegasys
hopefully it will have less side effects but my tiredness is at an all time high and the pain I seem to be getting in my legs is pretty severe now plus I just feel like
Rastavapa
in
MPN Voice
7 years ago
Pegasys
Just started
Pegasys
last night, so far so good. Dose 45mg, they gave me 90 g, so 50% wasted... Anyone know of the cost of
Pegasys
By the way I attended the meet in Birmingham, PV forum
Just started
Pegasys
last night, so far so good. Dose 45mg, they gave me 90 g, so 50% wasted... Anyone know of the cost of
Pegasys
By the way I attended the meet in Birmingham, PV forum
shiftzz
in
MPN Voice
7 years ago
Hepatitis B
I been abroad in holiday and test there,my DNA is 3980 ui/ml,and I made a fibromax,but my liver is still fine,I been to doctor abroad and he said I should start treatment with interferon
pegasys
,Because is the best for my situation!
I been abroad in holiday and test there,my DNA is 3980 ui/ml,and I made a fibromax,but my liver is still fine,I been to doctor abroad and he said I should start treatment with interferon
pegasys
,Because is the best for my situation!
Paulika1991
in
British Liver Trust
7 years ago
Break from Pegasys
After an 8 week break from
Pegasys
my platelets have only increased from 298 to 366 and reassuringly my other counts have all increased slightly too, still all in normal range.
After an 8 week break from
Pegasys
my platelets have only increased from 298 to 366 and reassuringly my other counts have all increased slightly too, still all in normal range.
AndyT
in
MPN Voice
7 years ago
Pegasys or interferon alpha,
Reading alot of coments about
pegasys
,taken weekly,my interferon i take wen,sun,i know
pegasys
is slow release,i have been on interferon for 8 years,at first 4 times a week,down to two a week,my doctor has never said anything about
pegasys
,but on this forum many are doing well,injection weekly or monthy
Reading alot of coments about
pegasys
,taken weekly,my interferon i take wen,sun,i know
pegasys
is slow release,i have been on interferon for 8 years,at first 4 times a week,down to two a week,my doctor has never said anything about
pegasys
,but on this forum many are doing well,injection weekly or monthy
Jbut
in
MPN Voice
7 years ago
Citalopram and aspirin
Hi All I have ET, and use
Pegasys
to control my platelet numbers and symptoms - which is working very well. However, over recent months I've developed depression so my haematologist reduced my dose and advised me to see my GP to discuss antidepressants.
Hi All I have ET, and use
Pegasys
to control my platelet numbers and symptoms - which is working very well. However, over recent months I've developed depression so my haematologist reduced my dose and advised me to see my GP to discuss antidepressants.
Loubielou
in
MPN Voice
7 years ago
Taking Interferon for the first time - when do you take and why do you take at that time ?
Last time I saw him (in June) he said I would probably be starting
Pegasys
Interferon on my next visit. I understand this is a weekly injection and there may be side effects (feeling a bit crap etc) and therefore my question is...
Last time I saw him (in June) he said I would probably be starting
Pegasys
Interferon on my next visit. I understand this is a weekly injection and there may be side effects (feeling a bit crap etc) and therefore my question is...
Jocko
in
MPN Voice
7 years ago
Fasciitis plantaris in Pegasys users .
But while my physiotherapist and I were speaking about reasons and symptoms, a thought occurred to me--- and to her too---that the disease can have something to do with the
Pegasys
injections (maybe also the other treatments), because after an injection you get a sort of "anaemia" --and there vill be
But while my physiotherapist and I were speaking about reasons and symptoms, a thought occurred to me--- and to her too---that the disease can have something to do with the
Pegasys
injections (maybe also the other treatments), because after an injection you get a sort of "anaemia" --and there vill be
yarrowleaf
in
MPN Voice
7 years ago
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