Explain the fatigue : I am always so fatigued... - MPN Voice

MPN Voice

10,832 members15,125 posts

Explain the fatigue

MaryELWoods profile image
11 Replies

I am always so fatigued; that's why I kept going to the doctor and why she finally did a CBC and found my PV (JAK2+). My labs are almost all normal after only two Pegasys injections (RBC, H/H are Normal, platelets were 800s and are now 500s). I'm still so fatigued and often lightheaded. My husband doesn't understand that I still feel this way now that my labs are better. Am I crazy? Does the fatigue ever go

away?

Written by
MaryELWoods profile image
MaryELWoods
To view profiles and participate in discussions please or .
Read more about...
11 Replies
flfair profile image
flfair

Hi

Magnesium deficiency, cured my in 3 days, med's deplete magnesium.

greenmedinfo.com/blog/magne...

ancient-minerals.com/blog-p...

Peter

MaryELWoods profile image
MaryELWoods in reply toflfair

Thanks, Peter. If so many (most? All?) of us experience fatigue why aren't our docs doing something about it?

jane13 profile image
jane13 in reply toMaryELWoods

that is a very very good question. they don't believe us because they can't see a reason why we would b?

flfair profile image
flfair in reply toMaryELWoods

They rely too much on the blood test which is not a good indicator, also check your vitamin d, iron , and iodine levels.

Keep off Magnesium Oxide, it's rubbish.

Peter.

flfair profile image
flfair in reply toflfair

Lots of good videos on YouTube about Magnesium.

Peter

Wyebird profile image
Wyebird in reply toflfair

How did you know you had a magnesium deffinency? I’m nearly always anaemia. Would love a cure

flfair profile image
flfair in reply toWyebird

This lady changed my life for the better.

drcarolyndean.com/start-here/

Peter

ChelseaF profile image
ChelseaF

B12 deficiency is also common in MPNs. Even with normal or high serum B12 we can be functionally deficient. There are multiple studies that have shown this.

Fatigue can be so hard to figure out and that’s why I think doctors tend to ignore it. I get b12 shots, take vitamin D and cofactors, am constantly tweaking my thyroid medications and I still struggle with fatigue. It’s extremely frustrating and difficult for others to sympathize when they can’t be inside our bodies and feel what we feel. I rely on caffeine to be functional because I have a 2,7,12, and 15 year old to keep up with.

flfair profile image
flfair in reply toChelseaF

ChelseaF, are you taking Magnesium.

Peter

ChelseaF profile image
ChelseaF in reply toflfair

Yes. I take Magnesium Glycinate 400 mg x2.

flfair profile image
flfair in reply toChelseaF

drcarolyndean.com/2014/07/y...

Peter

Not what you're looking for?

You may also like...

Extreme fatigue

New to this, but have been dx with PV for about 3 yrs now. I take HU and low dose aspirin. My labs...
406_living profile image

PV symptoms

My oncologist told me that my fatigue is "impossible " because all my labs are within normal...
MaryELWoods profile image

Trying not to Panic about the possibility of MPN

A month ago I went to the Er with dizziness and chest pain. I thought I was having a heart attack....

Inflammation and Fatigue

68 yo F, with ET , Jak2 mutation, on interferon 45ug every 10 days. I have only been this fatigued...
Planti profile image

Has anyone [else] on Besremi had issues with elevated serum potassium?

My last several chemistry labs have had elevated Potassium levels and my diet hadn't really changed...
PhysAssist profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.