Explain the fatigue : I am always so fatigued... - MPN Voice

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Explain the fatigue

MaryELWoods profile image
11 Replies

I am always so fatigued; that's why I kept going to the doctor and why she finally did a CBC and found my PV (JAK2+). My labs are almost all normal after only two Pegasys injections (RBC, H/H are Normal, platelets were 800s and are now 500s). I'm still so fatigued and often lightheaded. My husband doesn't understand that I still feel this way now that my labs are better. Am I crazy? Does the fatigue ever go

away?

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MaryELWoods profile image
MaryELWoods
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11 Replies
flfair profile image
flfair

Hi

Magnesium deficiency, cured my in 3 days, med's deplete magnesium.

greenmedinfo.com/blog/magne...

ancient-minerals.com/blog-p...

Peter

MaryELWoods profile image
MaryELWoods in reply toflfair

Thanks, Peter. If so many (most? All?) of us experience fatigue why aren't our docs doing something about it?

jane13 profile image
jane13 in reply toMaryELWoods

that is a very very good question. they don't believe us because they can't see a reason why we would b?

flfair profile image
flfair in reply toMaryELWoods

They rely too much on the blood test which is not a good indicator, also check your vitamin d, iron , and iodine levels.

Keep off Magnesium Oxide, it's rubbish.

Peter.

flfair profile image
flfair in reply toflfair

Lots of good videos on YouTube about Magnesium.

Peter

Wyebird profile image
Wyebird in reply toflfair

How did you know you had a magnesium deffinency? I’m nearly always anaemia. Would love a cure

flfair profile image
flfair in reply toWyebird

This lady changed my life for the better.

drcarolyndean.com/start-here/

Peter

ChelseaF profile image
ChelseaF

B12 deficiency is also common in MPNs. Even with normal or high serum B12 we can be functionally deficient. There are multiple studies that have shown this.

Fatigue can be so hard to figure out and that’s why I think doctors tend to ignore it. I get b12 shots, take vitamin D and cofactors, am constantly tweaking my thyroid medications and I still struggle with fatigue. It’s extremely frustrating and difficult for others to sympathize when they can’t be inside our bodies and feel what we feel. I rely on caffeine to be functional because I have a 2,7,12, and 15 year old to keep up with.

flfair profile image
flfair in reply toChelseaF

ChelseaF, are you taking Magnesium.

Peter

ChelseaF profile image
ChelseaF in reply toflfair

Yes. I take Magnesium Glycinate 400 mg x2.

flfair profile image
flfair in reply toChelseaF

drcarolyndean.com/2014/07/y...

Peter

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