Looking for some advice, I was diagnosed with ET/PV in December JAK2 positive. Am awaiting my BMB results next week to clarify. I was started on Hydroxy straight away due to my platelet count but was changed to Interferon (Roferon A) after this due to my age (which I was happier with). I have been on interferon now for 4 weeks and just feel since starting I have felt a bit out of sorts; very tired, feeling a bit fed up, intermittent joint pain. I am keen to preserve with interferon and did ask about pegasys but was told this was only an option if Roferon A is not tolerated. I was symptom free before diagnosis and treatment.
This may be a coincidence my symptoms and may just be the cold miserable time of year, I am a little anxious awaiting my BMB results which I will get at my next haematology appointment on Friday.
Would appreciate any advice/experiences of taking Roferon A and whether there are any thoughts with links to how I am feeling or whether I should preserve a little longer.
Thanks in advance