Search
Search
About
Log in
Join
Experiences with
Pegasys
Posts
Communities
586 public posts
Filter results
Pegasus and Liver Function
The next day I had a call to say my LFT had been gradually rising and they wanted me to stop
Pegasys
altogether and be reviewed in 4 weeks, as anyone else had this issue, apparently
Pegasys
can cause a problem witn the Liver which I was not aware of. Regards Lynn.
The next day I had a call to say my LFT had been gradually rising and they wanted me to stop
Pegasys
altogether and be reviewed in 4 weeks, as anyone else had this issue, apparently
Pegasys
can cause a problem witn the Liver which I was not aware of. Regards Lynn.
lindyloulou
in
MPN Voice
5 years ago
Pegasys and changing blood results
I am on 90mg weekly
Pegasys
and my counts are in the 300,s. I have had
Pegasys
for almost 2 years. I am due to have my next consultation next week and need to ask some questions. Could these changes in blood counts be due to
Pegasys
? I feel very tired al of the time. Thankyou Lynn
I am on 90mg weekly
Pegasys
and my counts are in the 300,s. I have had
Pegasys
for almost 2 years. I am due to have my next consultation next week and need to ask some questions. Could these changes in blood counts be due to
Pegasys
? I feel very tired al of the time. Thankyou Lynn
lindyloulou
in
MPN Voice
5 years ago
Pegasys results
So I have now completed my first 4 weeks on Peg Interferon and am pleased to report that my platelets dropped lower than ever before 😊 My results this week were a very respectable 460 (down from 820) so we carry on with 45 MCG a week for the next 4 weeks. Not an easy 4 weeks but hopefully the end results
So I have now completed my first 4 weeks on Peg Interferon and am pleased to report that my platelets dropped lower than ever before 😊 My results this week were a very respectable 460 (down from 820) so we carry on with 45 MCG a week for the next 4 weeks. Not an easy 4 weeks but hopefully the end results
Graham7694
in
MPN Voice
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Platelets rise again
Hi all I've been on
Pegasys
for a few months now, 90mcg once a fortnight. Platelets have been dropping a lot but at my regular appointment yesterday they'd risen slightly from 409 to 451. Has anyone else had this happen? Also Hb count was 18.5 which seems high. Previously it was 127.
Hi all I've been on
Pegasys
for a few months now, 90mcg once a fortnight. Platelets have been dropping a lot but at my regular appointment yesterday they'd risen slightly from 409 to 451. Has anyone else had this happen? Also Hb count was 18.5 which seems high. Previously it was 127.
hall2
in
MPN Voice
5 years ago
Pegasys and elevated ALT and Ferritin
Dear fellow MPN patients, I have been on treatment with
Pegasys
for the past 6 months at 65micrograms per week for my ET (CALRins5 - type 2) doing really well up until now with no significant side effects and platelets reducing from 1.3m to within normal range of 300k.
Dear fellow MPN patients, I have been on treatment with
Pegasys
for the past 6 months at 65micrograms per week for my ET (CALRins5 - type 2) doing really well up until now with no significant side effects and platelets reducing from 1.3m to within normal range of 300k.
welshhuw
in
MPN Voice
5 years ago
ET and venesections ???
Since then I've been on
Pegasys
45mg/fortnightly. My problem is that I've got a lot of allergies because of the injections (or at least I suppose they are due to the injections, cause they are different from my other allergies).
Since then I've been on
Pegasys
45mg/fortnightly. My problem is that I've got a lot of allergies because of the injections (or at least I suppose they are due to the injections, cause they are different from my other allergies).
yarrowleaf
in
MPN Voice
5 years ago
Cholesterol
My cholesterol is rising, we think it is linked to
pegasys
and PV. My GP says it’s not my diet. Any thoughts or advice if statins are a good option in general for women with PV. My gp says it’s up to me as the research is inconclusive.
My cholesterol is rising, we think it is linked to
pegasys
and PV. My GP says it’s not my diet. Any thoughts or advice if statins are a good option in general for women with PV. My gp says it’s up to me as the research is inconclusive.
EleanorPV
in
MPN Voice
5 years ago
Is Pegasys controlling your hematocrit?
If you have PV and are using or have used
Pegasys
in the past I'd really like to hear how it worked to control your hemoglobin and hematocrit.
If you have PV and are using or have used
Pegasys
in the past I'd really like to hear how it worked to control your hemoglobin and hematocrit.
jon1972
in
MPN Voice
5 years ago
Pegasys - possibly closer to slowing progression than anything else?
However, recently there has been an increased number of posts from people considering or who have just started
Pegasys
. My view is that if your Hem is willing to offer
Pegasys
, then worth trying to see if you get on with it. Many have no/minimal side effects. Start low and build up.
However, recently there has been an increased number of posts from people considering or who have just started
Pegasys
. My view is that if your Hem is willing to offer
Pegasys
, then worth trying to see if you get on with it. Many have no/minimal side effects. Start low and build up.
Paul123456
in
MPN Voice
5 years ago
Burning finger tips
My dose of
Pegasys
was increased in the week which is probably responsible, just wondered if it’s common.
My dose of
Pegasys
was increased in the week which is probably responsible, just wondered if it’s common.
Charlieapple2018
in
MPN Voice
5 years ago
"Dry skin" and Pegasys
Many people here report that
Pegasys
gives them dry skin. No doubt this is often true because
Pegasys
has a GIGANTIC range of side-effects. But I wanted to call attention to something else
Pegasys
does which could be confused with dry skin.
Many people here report that
Pegasys
gives them dry skin. No doubt this is often true because
Pegasys
has a GIGANTIC range of side-effects. But I wanted to call attention to something else
Pegasys
does which could be confused with dry skin.
pnArt
in
MPN Voice
5 years ago
Pegasys, does it work for you ?
I have noticed lately a lot of people talking about
Pegasys
. Just interested in peoples experience with this drug? For those being treated with the drug, can anyone tell me why their Dr chose this treatment over others, and has it been effective? What are the side effects?
I have noticed lately a lot of people talking about
Pegasys
. Just interested in peoples experience with this drug? For those being treated with the drug, can anyone tell me why their Dr chose this treatment over others, and has it been effective? What are the side effects?
Louforjack
in
MPN Voice
5 years ago
Pegasys - allergic reaction at injection site
I have been on
Pegasys
for seven weeks now (ET) and my haematologist is happy that it's starting to take effect. For the first couple of weeks it was fine, apart from flu like symptoms, but then I started to get an itchy rash at the injection site, which lasts for several days.
I have been on
Pegasys
for seven weeks now (ET) and my haematologist is happy that it's starting to take effect. For the first couple of weeks it was fine, apart from flu like symptoms, but then I started to get an itchy rash at the injection site, which lasts for several days.
Otterfield
in
MPN Voice
5 years ago
Two side effects from Pegasys
Has anyone else had any mood disturbances on
Pegasys
and did they get better or worse over time? What helped to manage them? Thanks in advance.
Has anyone else had any mood disturbances on
Pegasys
and did they get better or worse over time? What helped to manage them? Thanks in advance.
pnArt
in
MPN Voice
5 years ago
Itching during the night
I’m currently on 45mcg
Pegasys
once a week and I’ve previously had itching after showering but nothing as severe as this. I don’t think I’ve had an undisturbed sleep in weeks. Has anyone else experienced anything similar? Any tips on how to stop this would be greatly appreciated.
I’m currently on 45mcg
Pegasys
once a week and I’ve previously had itching after showering but nothing as severe as this. I don’t think I’ve had an undisturbed sleep in weeks. Has anyone else experienced anything similar? Any tips on how to stop this would be greatly appreciated.
Spam1979
in
MPN Voice
5 years ago
Pegasys Interferon side affects
Hi Everyone, Happy Monday Anyone here experienced issues with the skin on your palms peeling on
Pegasys
Interferon? Currently on 45mcg weekly injections and issue only seems to have started since I restarted the injections about 4/5 weeks ago? Thanks Ben
Hi Everyone, Happy Monday Anyone here experienced issues with the skin on your palms peeling on
Pegasys
Interferon? Currently on 45mcg weekly injections and issue only seems to have started since I restarted the injections about 4/5 weeks ago? Thanks Ben
Crofty7
in
MPN Voice
5 years ago
Ruxolitinib plus Pegasys for MF: is anyone in the UK using this combination ?
Having had a sarcomatoid SCC likely triggered by ruxolitinib, and a haematologist v reluctant to reduce the rux and add some
pegasys
to maintain the good control of my MF without exacerbating the skin cancer risk , ( which does seem to me to be worth trying) is there anyone In the UK who is using
Having had a sarcomatoid SCC likely triggered by ruxolitinib, and a haematologist v reluctant to reduce the rux and add some
pegasys
to maintain the good control of my MF without exacerbating the skin cancer risk , ( which does seem to me to be worth trying) is there anyone In the UK who is using
Rachelthepotter
in
MPN Voice
5 years ago
Raction after Pegasys injection
I inject 135 mg
Pegasys
every 3 weeks. Even though I feel very tired I find it hard to get to sleep (and stay asleep) the night of the injection. Does anyone else feel really jangly and agitated? It feels like I’ve drunk far too much coffee.
I inject 135 mg
Pegasys
every 3 weeks. Even though I feel very tired I find it hard to get to sleep (and stay asleep) the night of the injection. Does anyone else feel really jangly and agitated? It feels like I’ve drunk far too much coffee.
Marossi
in
MPN Voice
5 years ago
Newly diagnosed with ET. How to afford Pegasys???
Experiencing eye irritation, lower back problems, mouth ulcers, FATIGUE, hair thinning, etc. so I wanted to try out
Pegasys
. Finally got in with Haris Ali (MPN Specialist) at City of Hope last Weds and he agreed that giving
Pegasys
a try would be a good idea.
Experiencing eye irritation, lower back problems, mouth ulcers, FATIGUE, hair thinning, etc. so I wanted to try out
Pegasys
. Finally got in with Haris Ali (MPN Specialist) at City of Hope last Weds and he agreed that giving
Pegasys
a try would be a good idea.
Kseely
in
MPN Voice
5 years ago
First experiences with Pegasys for Polythycemia Vera
and there's a substantial amount (~50% peak) of
Pegasys
left after 1 week.
and there's a substantial amount (~50% peak) of
Pegasys
left after 1 week.
pnArt
in
MPN Voice
5 years ago
1
...
20
21
22
...
30
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
MPN Voice
577 results
British Liver Trust
3 results
HepNS
3 results
View top 10 communities
Sort by
Most Relevant
Newest