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Pegasys
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Pegasys Left in Syringe?
I noticed that there was a small amount of Peg left in the Syringe that I didn’t get. How can I avoid that waste?
I noticed that there was a small amount of Peg left in the Syringe that I didn’t get. How can I avoid that waste?
russkatt
in
MPN Voice
1 year ago
pegasys
good morning everyone just saw Dr Mesa finally have answers he wants to start me on a low dose one
Pegasys
I heard a lot of good things and bad about this medication any advice would be helpful I’m relieved and worried at the same time
good morning everyone just saw Dr Mesa finally have answers he wants to start me on a low dose one
Pegasys
I heard a lot of good things and bad about this medication any advice would be helpful I’m relieved and worried at the same time
Nc3500
in
MPN Voice
1 year ago
Pegasys, EMA application Extension of indication to include treatment of Polycythaemia Vera (PV) and Essentialthrombocytosis
Pegasys
is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information available on how this is treated?
Pegasys
is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many countries. What would be the motivation for Pharma& to start this procedure in this stage? And has the application been accepted, or is there information available on how this is treated?
Bariton
in
Fight MPN
5 months ago
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Has anyone gone from Pegasys to Besremi?
So, has anyone been on
Pegasys
and then been switched to Besremi? What was that like? And what is it like to go on Besremi and were people started at that dose?
So, has anyone been on
Pegasys
and then been switched to Besremi? What was that like? And what is it like to go on Besremi and were people started at that dose?
ET625
in
MPN Voice
5 months ago
Starting Pegasys soon
I should be starting
Pegasys
sometime in January and I have a few questions : - anything I should do before? I read somewhere that I should get an eye exam. - what side effects are you experiencing? I saw the list… should I be worried? Thanks!
I should be starting
Pegasys
sometime in January and I have a few questions : - anything I should do before? I read somewhere that I should get an eye exam. - what side effects are you experiencing? I saw the list… should I be worried? Thanks!
IsabelleHo
in
MPN Voice
6 months ago
Traveling with Besremi or Pegasys
Hi, If you are currently taking Besremi or
Pegasys
and planning a vacation during the summer you may have concerns about traveling and keeping your medicine cool and within the recommended temperature range.
Hi, If you are currently taking Besremi or
Pegasys
and planning a vacation during the summer you may have concerns about traveling and keeping your medicine cool and within the recommended temperature range.
JohnSC
in
MPN Voice
28 days ago
platelets are in normal range
hi everybody I wanted to give an update I’ve been on
pegasys
for a month today. I will take my fifth treatment. I took blood work yesterday and I saw the results today. My platelets are in normal range for the first time in over a year probably two years they were 376.
hi everybody I wanted to give an update I’ve been on
pegasys
for a month today. I will take my fifth treatment. I took blood work yesterday and I saw the results today. My platelets are in normal range for the first time in over a year probably two years they were 376.
Nc3500
in
MPN Voice
1 year ago
PE with ET
I am recently been feeling well and tolerating
Pegasys
for few months month . This has improved my quality of life an also my platelets are normal. Unfortunately I had a rough week with right rib / abdomen pain which then worsened and left me Breathless , tachycardia and nauseated.
I am recently been feeling well and tolerating
Pegasys
for few months month . This has improved my quality of life an also my platelets are normal. Unfortunately I had a rough week with right rib / abdomen pain which then worsened and left me Breathless , tachycardia and nauseated.
Afya23
in
MPN Voice
1 year ago
myelofibrosis and interferon
I was put onto Interferon
Pegasys
June 2022 to slow down platelets which reached a high of 776. White blood count had reached 22. I had very mild side effects which only lasted a single day, but my blood counts crashed (pancytopenia) after 16 weeks on 90mcg injections.
I was put onto Interferon
Pegasys
June 2022 to slow down platelets which reached a high of 776. White blood count had reached 22. I had very mild side effects which only lasted a single day, but my blood counts crashed (pancytopenia) after 16 weeks on 90mcg injections.
Pragmaticone
in
MPN Voice
1 year ago
Anyone else out there with both ET & MBL?
In addition to my ET (diagnosed in 2003 and now well controlled on
Pegasys
) I’ve recently been diagnosed with Monoclonal B-Cell Lymphocytosis (MBL).
In addition to my ET (diagnosed in 2003 and now well controlled on
Pegasys
) I’ve recently been diagnosed with Monoclonal B-Cell Lymphocytosis (MBL).
AndyT
in
MPN Voice
6 months ago
LDH Test with ET
Hello Family, I am on my 8th week of
pegasys
treatment which I seem to be tolerating well @ 45mcg. I am also in the process of seen an MPN Specialist in few weeks who has ordered bloods tests including LDH . I had a BMB 8 weeks ago and waiting results for same which is nerve wrecking.
Hello Family, I am on my 8th week of
pegasys
treatment which I seem to be tolerating well @ 45mcg. I am also in the process of seen an MPN Specialist in few weeks who has ordered bloods tests including LDH . I had a BMB 8 weeks ago and waiting results for same which is nerve wrecking.
Afya23
in
MPN Voice
1 year ago
Medication choices after hydroxyurea
I have read here about interferons
Pegasys
and Besremi and the studies on Jakafi and Rusfertide. I have time to figure this out but would appreciate any input or links to the most current research before I see my hematologist in a month. I've printed out a lot of info that has been posted here.
I have read here about interferons
Pegasys
and Besremi and the studies on Jakafi and Rusfertide. I have time to figure this out but would appreciate any input or links to the most current research before I see my hematologist in a month. I've printed out a lot of info that has been posted here.
saltmarsh
in
MPN Voice
1 year ago
MPN, Pegasys and Hypothyroidism
While I've read that thyroid problems can be caused by
Pegasys
in rare cases, I also have a family history of lots of thyroid issues, both over and under active. I'm just curious what this may mean for my beloved
Pegasys
!! I'm part of the
Pegasys
fan club and don't want to have to give it up!
While I've read that thyroid problems can be caused by
Pegasys
in rare cases, I also have a family history of lots of thyroid issues, both over and under active. I'm just curious what this may mean for my beloved
Pegasys
!! I'm part of the
Pegasys
fan club and don't want to have to give it up!
Emmyroos
in
MPN Voice
1 year ago
Pegasys
Hello Family Just started my
pegasys
injections today @ 45mcg. Also had a BMB, waiting for results . Wish me luck 🍀😉
Hello Family Just started my
pegasys
injections today @ 45mcg. Also had a BMB, waiting for results . Wish me luck 🍀😉
Afya23
in
MPN Voice
1 year ago
Changing blood results x
Hi, I'm on 90mcg of
Pegasys
Interferon at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this?
Hi, I'm on 90mcg of
Pegasys
Interferon at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this?
RCBr
in
MPN Voice
1 year ago
Pegasys- lack of response
Hi, I have ET CALR and have started
Pegasys
3 months ago. I am glad that I am not sufferring from any really annoying side effects but I am concerned by my platelet count. They were at 1500-1600 when I started and now seem to stabilize at 1200-1300, quite far from the ultimate goal.
Hi, I have ET CALR and have started
Pegasys
3 months ago. I am glad that I am not sufferring from any really annoying side effects but I am concerned by my platelet count. They were at 1500-1600 when I started and now seem to stabilize at 1200-1300, quite far from the ultimate goal.
Aelle
in
MPN Voice
1 year ago
Good news
Have been taking
pegasys
since January 21 after being diagnosed with MF. Total shock as I had never heard of the condition. Platelets were at 1800 over. Strength 45 since then, platelets stable at just over 700. Last 10 weeks increased dose to 90mg.
Have been taking
pegasys
since January 21 after being diagnosed with MF. Total shock as I had never heard of the condition. Platelets were at 1800 over. Strength 45 since then, platelets stable at just over 700. Last 10 weeks increased dose to 90mg.
Robeets_33
in
MPN Voice
1 year ago
Pegasys Side Effects
On my 7th week (7th dose at 90mcg per dose) of
Pegasys
and noticing massive fatigue and some mood swings. Has anyone experience similar side effects and how early did they occur? Not sure how fast side effects can occur with this medication.
On my 7th week (7th dose at 90mcg per dose) of
Pegasys
and noticing massive fatigue and some mood swings. Has anyone experience similar side effects and how early did they occur? Not sure how fast side effects can occur with this medication.
Zeppelin11
in
MPN Voice
1 year ago
possible Sjögren Syndrome
I have been on
Pegasys
for 11 months. I am taking 67 mcg weekly. Six months ago I started having symptoms of parotid gland swelling. I have had 2 episodes. Then at the end of March I had an episode of peri orbital swelling with fever. I have been overwhelmed with fatigue and joint pain.
I have been on
Pegasys
for 11 months. I am taking 67 mcg weekly. Six months ago I started having symptoms of parotid gland swelling. I have had 2 episodes. Then at the end of March I had an episode of peri orbital swelling with fever. I have been overwhelmed with fatigue and joint pain.
Wewo01
in
MPN Voice
1 year ago
New version of "Pegasys" - have you noticed any changes in your response or side effects?
In recent months my supplies of PEG-Interferon ("
Pegasys
") have changed from those made by Roche to what I presume is a version made under licence by a company called zr pharma& GmbH of Vienna, Austria. A previous post here on MPN Voice had already drawn attention to this change.
In recent months my supplies of PEG-Interferon ("
Pegasys
") have changed from those made by Roche to what I presume is a version made under licence by a company called zr pharma& GmbH of Vienna, Austria. A previous post here on MPN Voice had already drawn attention to this change.
JaK2ET
in
MPN Voice
1 year ago
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