Good news

[Robeets_33]

Hi everyone. Do not post very often. Have been taking pegasys since January 21 after being diagnosed with MF. Total shock as I had never heard of the condition. Platelets were at 1800 over. Strength 45 since then, platelets stable at just over 700. Last 10 weeks increased dose to 90mg. Telephone call with QE hematology today, 3 monthly intervals, platelets reduced to 550. So pleased. Worth sticking with it.

[gilded]

Yes it is a shock and a huge blow to be diagnosed with MPN. I was diagnosed with CALR+ ET 15 months ago after I turned 78, quite by chance after a blood test, (the first in 30 years!) I’d never heard of the condition. Am on Pegasys interferon. I have an excellent, alert Consultant. I first consulted him privately and he diagnosed the condition. Then I switched to the NHS and he still sees me. I try not to dwell on my condition. Que sera sera!

[Robeets_33 in reply to gilded]

That's great you are so positive, I must try to be more positive.

[Hopetohelp]

great to hear it is all going well

[Robeets_33 in reply to Hopetohelp]

Thanks so much

[ainslie]

it’s great to see a post headed Good News, congratulations 😀

[Robeets_33 in reply to ainslie]

Thank you 😊

[MAP44]

Congratulations on your falling numbers! That is so wonderful!! 🎉🍾🥂. Hope you are feeling great. 😎🥇

[Exeter21]

that’s brilliant I am same on Peg & glad I stuck with it. Doses reduced lower & spaced out now after weekly was too harsh. Very pleased I am on this & feel well . But also that I spoke with MPN expert to assist doseage 👍

[Robeets_33 in reply to Exeter21]

That's great, well done. I will be reassessed in three months, as I am seen every three months.

[Exeter21]

me monthly at present until dose ok on levels 👍