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Paroxysmal atrial fibrillation
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Clinical Trial with BGB-11417
Hi all! Would love to hear from anyone who is participating in / has considered and/or has knowledge of the NCT trial 04277637 - the Non-Randomized, Open-Label trial investigating the novel BCL-2 inhibitor BGB-11417? I am approaching my first treatment for CLL and my CLL specialist is a PI in this
Hi all! Would love to hear from anyone who is participating in / has considered and/or has knowledge of the NCT trial 04277637 - the Non-Randomized, Open-Label trial investigating the novel BCL-2 inhibitor BGB-11417? I am approaching my first treatment for CLL and my CLL specialist is a PI in this
Chi-town_Girl
in
CLL Support
1 year ago
RECOVERY FROM PULSED FIELD CATHETER ABLATION – ANYONE HAD ONE YET?
Some of you may have seen my recent update post relating to my decision to have a catheter ablation to try and sort out my early persistent AF (which was tolerable in terms of symptoms at the time). The decision was swayed for an active/invasive intervention when I was offered a relatively new procedure
Some of you may have seen my recent update post relating to my decision to have a catheter ablation to try and sort out my early persistent AF (which was tolerable in terms of symptoms at the time). The decision was swayed for an active/invasive intervention when I was offered a relatively new procedure
FindingCaradoc
in
Atrial Fibrillation Support
2 years ago
Flecainide
I'm taking it for
Paroxysmal
Atrial
Fibrillation
.
I'm taking it for
Paroxysmal
Atrial
Fibrillation
.
PAP48
in
Lung Conditions Community Forum
2 years ago
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Full Blood Count Test Results
Hiya, I’ve had a lot of help on this forum in regards to making some sense of my thyroid blood test results and I was wondering if anyone is able to advise with these results too. They are out of date as they are from December 2022 but they are the tests I was given when my hypothyroid symptoms started
Hiya, I’ve had a lot of help on this forum in regards to making some sense of my thyroid blood test results and I was wondering if anyone is able to advise with these results too. They are out of date as they are from December 2022 but they are the tests I was given when my hypothyroid symptoms started
NiaJayne
in
Thyroid UK
1 year ago
More decisions!!
Well I saw Dr Pepper yesterday and all much as expected. I've moved to persistent AF and a cardioversion would be pointless. I keep self converting the back to AF. Sob. So options are... Live with it as long as my rate comes down to the 80s, so will be trying Digoxin after my holiday in Norfolk.
Well I saw Dr Pepper yesterday and all much as expected. I've moved to persistent AF and a cardioversion would be pointless. I keep self converting the back to AF. Sob. So options are... Live with it as long as my rate comes down to the 80s, so will be trying Digoxin after my holiday in Norfolk.
booboo73
in
AF Association
2 years ago
Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Iron regulation offers new treatment hope for incurable blood cancer
Published April 4, 2023 | Originally published on MedicalXpress Breaking News-and-Events A landmark discovery linking iron regulation to a rare blood cancer has led to clinical trials of a potential new treatment for patients with the incurable disease. The study focused on polycythemia vera (PV),
Published April 4, 2023 | Originally published on MedicalXpress Breaking News-and-Events A landmark discovery linking iron regulation to a rare blood cancer has led to clinical trials of a potential new treatment for patients with the incurable disease. The study focused on polycythemia vera (PV),
PhysAssist
in
MPN Voice
1 year ago
Can a med be cause this reaction
Hello all, I was diagnosed with Afib in July 2020. I had a cardioversion and returned to sinus rhythm. I was put on Eliquis and Diltiazem in Dec 2020. Since that time if I get hot my skin becomes very prickly like someone is snapping elastics all over my body. I then seek out a cool place quickly
Hello all, I was diagnosed with Afib in July 2020. I had a cardioversion and returned to sinus rhythm. I was put on Eliquis and Diltiazem in Dec 2020. Since that time if I get hot my skin becomes very prickly like someone is snapping elastics all over my body. I then seek out a cool place quickly
busybody_yah
in
AF Association
2 years ago
PSA fluctuations on docetaxel?
Hello all, is it normal for the PSA to increase and decrease while on docetaxel? Dad’s enrolled in a clinical trial and is receiving chemotherapy (docetaxel). His PSA was declining but suddenly increased to 1.26 two cycles/doses ago, and to 1.39 last cycle/dose. Wondering if this is indicating his cancer
Hello all, is it normal for the PSA to increase and decrease while on docetaxel? Dad’s enrolled in a clinical trial and is receiving chemotherapy (docetaxel). His PSA was declining but suddenly increased to 1.26 two cycles/doses ago, and to 1.39 last cycle/dose. Wondering if this is indicating his cancer
PHnerd
in
Advanced Prostate Cancer
1 year ago
BTK Inhibitor Therapy for CLL: An International Perspective - Stephan Stilgenbauer, MD
BTK Inhibitor Therapy for CLL: An International Perspective Stephan Stilgenbauer, MD Expert Commentary ClinicalThought™ - Targeted therapies, including BTK inhibitors and combinations incorporating BCL-2 inhibitors, have replaced chemoimmunotherapy as the standard of care for treating CLL.
BTK Inhibitor Therapy for CLL: An International Perspective Stephan Stilgenbauer, MD Expert Commentary ClinicalThought™ - Targeted therapies, including BTK inhibitors and combinations incorporating BCL-2 inhibitors, have replaced chemoimmunotherapy as the standard of care for treating CLL.
lankisterguy
Volunteer
in
CLL Support
1 year ago
Pacemaker looming
Hi I have had Paroxysmal AF for about 5 years and had a rocky ride meds wise with betablockers and calcium channel. To cut a long story short I was placed on Digoxin 125mg last year by GP which initially worked well but worsened over time. In March 22 Hereford Cardios reduced Digoxin to 62.5mg od and
Hi I have had Paroxysmal AF for about 5 years and had a rocky ride meds wise with betablockers and calcium channel. To cut a long story short I was placed on Digoxin 125mg last year by GP which initially worked well but worsened over time. In March 22 Hereford Cardios reduced Digoxin to 62.5mg od and
Aikonbizz
in
AF Association
2 years ago
Chemo vs Xofigo
I am seven years from diagnosis (PSA 1,666). Still have my prostate. Firmagon brought PSA to undetectable in five months. After continuous Eligard, Xtandi, and Clinical Trial, back up to 800 PSA. My decision now is this: Chemo or XOFIGO (RA 223). Anyone out there that can help me with their experiences
I am seven years from diagnosis (PSA 1,666). Still have my prostate. Firmagon brought PSA to undetectable in five months. After continuous Eligard, Xtandi, and Clinical Trial, back up to 800 PSA. My decision now is this: Chemo or XOFIGO (RA 223). Anyone out there that can help me with their experiences
fsiefert
in
Advanced Prostate Cancer
1 year ago
Ablation on Monday!
I recd a telephone call from Cardiology offering me an Ablation for Monday 26 Sept 2022. My husband advised me to take it, so I accepted the offer. I did query why I had been offered this so quickly as only diagnosed with Atrial Flutter in June 2022. Apparently it is due to the fact I am unable to
I recd a telephone call from Cardiology offering me an Ablation for Monday 26 Sept 2022. My husband advised me to take it, so I accepted the offer. I did query why I had been offered this so quickly as only diagnosed with Atrial Flutter in June 2022. Apparently it is due to the fact I am unable to
fairyfeathers
in
AF Association
2 years ago
Thyroid Blood Test Results
Hi all, I finally managed to get a copy of my thyroid blood test results but there is so little information on there that I’m unsure of what I should do next. I’ve posted before but my situation is that I had a partial thyroidectomy back in July 2022 and I’ve been getting symptoms such as tiredness
Hi all, I finally managed to get a copy of my thyroid blood test results but there is so little information on there that I’m unsure of what I should do next. I’ve posted before but my situation is that I had a partial thyroidectomy back in July 2022 and I’ve been getting symptoms such as tiredness
NiaJayne
in
Thyroid UK
1 year ago
Excessive urination
Does anyone here suffer with excessive urination when having an afib episode,? I am very symptomatic and although I take sotalol and apixaban I still get some afib episodes (usuly 1 every 4 months). When this happens I am urinating every 10 mins or so and then when I come out of afib I can sleep most
Does anyone here suffer with excessive urination when having an afib episode,? I am very symptomatic and although I take sotalol and apixaban I still get some afib episodes (usuly 1 every 4 months). When this happens I am urinating every 10 mins or so and then when I come out of afib I can sleep most
Karendeena
in
AF Association
2 years ago
Oregovomab Clinical Trial
Hello, I was recently approved to participate in the Phase III trial. I am wondering if anyone has participated in the Phase II trial and what their experience has been. Also, do you think participation may exclude me from future treatments? https://clinicaltrials.gov/ct2/show/NCT04498117?term=oregovomab
Hello, I was recently approved to participate in the Phase III trial. I am wondering if anyone has participated in the Phase II trial and what their experience has been. Also, do you think participation may exclude me from future treatments? https://clinicaltrials.gov/ct2/show/NCT04498117?term=oregovomab
iqbalmel
in
My Ovacome
1 year ago
Thyroid or AFib Symptom
I’ve been reading Greygoose advice to another member re discomfort in the neck possibly being Thyroid related. I have had discomfort - not pain as such - in the hollow in the front of my neck just above the clavicle. It feels like I’ve swallowed a golf ball! No swelling. I am in continuous AFib and
I’ve been reading Greygoose advice to another member re discomfort in the neck possibly being Thyroid related. I have had discomfort - not pain as such - in the hollow in the front of my neck just above the clavicle. It feels like I’ve swallowed a golf ball! No swelling. I am in continuous AFib and
Loafinabout
in
Thyroid UK
2 years ago
Early phase Clinical trial results offer new hope for Levadopa induced dyskinesia.
Sounds a step in the right direction for the many who suffer from levadopa induced dyskinesia. My husband being one of them. https://www.parkinsons.org.uk/news/early-phase-clinical-trial-results-offer-new-hope-dyskinesia-treatment
Sounds a step in the right direction for the many who suffer from levadopa induced dyskinesia. My husband being one of them. https://www.parkinsons.org.uk/news/early-phase-clinical-trial-results-offer-new-hope-dyskinesia-treatment
Zella23
in
Cure Parkinson's
1 year ago
Ecg results
I had an ecg this morning and it said that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a bit low 88/50mmhg. I don't know what will happen whether or not I will be put on medication or not. I am really worried. I just hope when I see the doctor
I had an ecg this morning and it said that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a bit low 88/50mmhg. I don't know what will happen whether or not I will be put on medication or not. I am really worried. I just hope when I see the doctor
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Skipped Beats
Well--I have written on this forum before and appreciate all the feedback about my heart palpitations, anxiety, skipped beats, etc. I have had them since I was 9 on and off and now I am 70. Went to the cardiologist in June and said I was "exceptionally fit". EKG, ECHO, Halter all good. I know exactly
Well--I have written on this forum before and appreciate all the feedback about my heart palpitations, anxiety, skipped beats, etc. I have had them since I was 9 on and off and now I am 70. Went to the cardiologist in June and said I was "exceptionally fit". EKG, ECHO, Halter all good. I know exactly
babejoemickey
in
Anxiety Support
2 years ago
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