Search
Search
About
Log in
Join
Experiences with
Parkinsonism
Posts
Communities
1,683 public posts
Filter results
Fasudil Shows Real Promise
For those of you who haven't heard of this new drug with new promise, check it out...you might be interested. Van Andel Research Institute Testing Fasudil as a Potential Disease Modifying Treatment for Parkinson's By Sue Thoms, The Grand Rapids Press Actor
For those of you who haven't heard of this new drug with new promise, check it out...you might be interested. Van Andel Research Institute Testing Fasudil as a Potential Disease Modifying Treatment for Parkinson's By Sue Thoms, The Grand Rapids Press Actor
jeffjennings
in
Cure Parkinson's
12 years ago
some benefits(?) of having Parkinsons
This morning I thought of a few "benefits". Feel free to add on if you think of any. I do not need an electric toothbrush I do not need to worry about sobriety tests – I can’t walk a straight line anyway I won’t accidently volunteer for something I don’t want to do as I am already shaking my
This morning I thought of a few "benefits". Feel free to add on if you think of any. I do not need an electric toothbrush I do not need to worry about sobriety tests – I can’t walk a straight line anyway I won’t accidently volunteer for something I don’t want to do as I am already shaking my
rch21
in
Cure Parkinson's
12 years ago
Parkinsons awareness bracelet
I saw a post on face book for a "Parkinsons awareness bracelet. The bracelet had the words ,"Be Brave" on it. Something about this seemed unsettling to me. I think that the "Cure" for Cancer is marketed everywhere and so it should be..But why would you want to support Parkinsons research by telling people
I saw a post on face book for a "Parkinsons awareness bracelet. The bracelet had the words ,"Be Brave" on it. Something about this seemed unsettling to me. I think that the "Cure" for Cancer is marketed everywhere and so it should be..But why would you want to support Parkinsons research by telling people
Kat00
in
Cure Parkinson's
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
I have parkinsonism....I fall alot...speak low...and write real small anyone out there like me?
BILLYRAY
in
Cure Parkinson's
12 years ago
Fox Trial Finder - sign up for a webinar
Recruitment into Clinical Trials is one of the largest challenges in developing new therapies and, ultimately, a cure for Parkinson’s disease. Yet, over 80% of clinical trials fail to recruit enough participants. You have the ability to play a pivotal role in overcoming one of the largest challenges
Recruitment into Clinical Trials is one of the largest challenges in developing new therapies and, ultimately, a cure for Parkinson’s disease. Yet, over 80% of clinical trials fail to recruit enough participants. You have the ability to play a pivotal role in overcoming one of the largest challenges
CPT_Helen
Administrator
in
Cure Parkinson's
12 years ago
Who are you calling incurable?
One of the first things we learn about Parkinson's disease, rightly or wrongly, is that it is incurable. Sometimes we learn that from our neurologist, sometimes from the Internet or other sources. But for all patients struggling to come to terms with the diagnosis, incurable is not a word we want to
One of the first things we learn about Parkinson's disease, rightly or wrongly, is that it is incurable. Sometimes we learn that from our neurologist, sometimes from the Internet or other sources. But for all patients struggling to come to terms with the diagnosis, incurable is not a word we want to
JonStamford
in
Cure Parkinson's
13 years ago
What do they mean by atypical, or stage one????
Atypical Parkinson's, or
Parkinsonism
: Parkinson's disease is also called primary
parkinsonism
or idiopathic Parkinson's disease. (Idiopathic is the term for a disorder for which no cause has yet been identified).The other forms of
parkinsonism
, either the cause is known or suspected.
Atypical Parkinson's, or
Parkinsonism
: Parkinson's disease is also called primary
parkinsonism
or idiopathic Parkinson's disease. (Idiopathic is the term for a disorder for which no cause has yet been identified).The other forms of
parkinsonism
, either the cause is known or suspected.
Antonio_Montolio
in
Cure Parkinson's
12 years ago
Are you aware of the Facebook page "Art For Parkinson Disease Research/The Sassy Nail Art Collection?" Open and see my unusual fund raiser.
I developed this art out of my own therapy of painting my nails sassy as a way to control my hand's tremor. With the addition of digital photography and photoshop, I raised over $4000 giving my framed art to people who donate $50 to APDA for funding PD research. If you are interested, I would love
I developed this art out of my own therapy of painting my nails sassy as a way to control my hand's tremor. With the addition of digital photography and photoshop, I raised over $4000 giving my framed art to people who donate $50 to APDA for funding PD research. If you are interested, I would love
Sassynailart
in
Cure Parkinson's
12 years ago
Quality of life are you prepared to make the changes?
I was diagnosed with Parkinson’s 8 years ago and for the first two years wallowed in self pity ( perfectly understandable ).I had been told I had an incurable degenerative disease I was 47 .So how did I get from that place to completing the Dublin Marathon 2011 and walking it in 6 hours 54 mins and
I was diagnosed with Parkinson’s 8 years ago and for the first two years wallowed in self pity ( perfectly understandable ).I had been told I had an incurable degenerative disease I was 47 .So how did I get from that place to completing the Dublin Marathon 2011 and walking it in 6 hours 54 mins and
move4parkinsons
in
Cure Parkinson's
12 years ago
GDNF - Back to the future?
In the early part of this decade Stephen Gill at Frenchay Hospital in Bristol conducted a small clinical trial that should have changed the face of pharmacotherapy for Parkinson's. The drug in question was GDNF (Glial Derived Neurotrophic Factor), a naturally occurring brain constituent, administered
In the early part of this decade Stephen Gill at Frenchay Hospital in Bristol conducted a small clinical trial that should have changed the face of pharmacotherapy for Parkinson's. The drug in question was GDNF (Glial Derived Neurotrophic Factor), a naturally occurring brain constituent, administered
JonStamford
in
Cure Parkinson's
13 years ago
Children of the Corn who smoked Weed in the 70's or How I encountered PD causing Neuro-toxins
I grew up in central Illinois and like many Midwest kids, I de-tassled corn every Summer. Now I wonder if the Summer job that paid for my first car, also contributed to my PD or if it was the pot i smoked in the 70's? Research shows a link between exposure to two pesticides, rotenone and paraquat
I grew up in central Illinois and like many Midwest kids, I de-tassled corn every Summer. Now I wonder if the Summer job that paid for my first car, also contributed to my PD or if it was the pot i smoked in the 70's? Research shows a link between exposure to two pesticides, rotenone and paraquat
Jerebet
in
Cure Parkinson's
12 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
The health-related, social, and economic consequences of parkinsonism: a controlled national study
Parkinson's disease (PD) and atypical
parkinsonism
(AP) cause a significant socioeconomic burden, but there is insufficient information about the total disease burden at a national level.
Parkinson's disease (PD) and atypical
parkinsonism
(AP) cause a significant socioeconomic burden, but there is insufficient information about the total disease burden at a national level.
CPT_Helen
Administrator
in
Cure Parkinson's
13 years ago
A New - Old Drug That Is Making a Major Difference for Me
I have long been convinced that there are nuggets of gold buried in the massive accumulation of 40 years of research that has built up since Ldopa took the stage. Common sense tells me that it is not possible for such a huge amount of data spread over several disciplines to build up without overlooking
I have long been convinced that there are nuggets of gold buried in the massive accumulation of 40 years of research that has built up since Ldopa took the stage. Common sense tells me that it is not possible for such a huge amount of data spread over several disciplines to build up without overlooking
reverett123
in
Cure Parkinson's
13 years ago
Parkinson's: progressing the cure in haste but with patients
When I was diagnosed with Parkinson’s, I was relieved to be told that it was not terminal and that it was possible a cure could be identified before too long. Fifteen years later, there has been no real marked improvement in the treatment of the condition let alone a cure. Parkinson’s may not be a “killer
When I was diagnosed with Parkinson’s, I was relieved to be told that it was not terminal and that it was possible a cure could be identified before too long. Fifteen years later, there has been no real marked improvement in the treatment of the condition let alone a cure. Parkinson’s may not be a “killer
CPT_Tom
in
Cure Parkinson's
13 years ago
PARKINSON’S MOVEMENT: A movement for change
PARKINSON’S MOVEMENT (www.parkinsonsmovement.com) and its community website (www.parkinsonsmovement.healthunlocked.com) is a new concept within the Parkinson’s community, based around the most important resource available — ourselves! Nobody understands Parkinson’s better than us, the patients.
PARKINSON’S MOVEMENT (www.parkinsonsmovement.com) and its community website (www.parkinsonsmovement.healthunlocked.com) is a new concept within the Parkinson’s community, based around the most important resource available — ourselves! Nobody understands Parkinson’s better than us, the patients.
JonStamford
in
Cure Parkinson's
13 years ago
As easy as riding a bike
One of the most striking aspects of Parkinson's disease is the capacity for cerebral compensation. By that I mean that alternative pathways and strategies are found to ensure that function is preserved. We already know for instance that between 80 and 90% of all striatal dopamine must be lost before
One of the most striking aspects of Parkinson's disease is the capacity for cerebral compensation. By that I mean that alternative pathways and strategies are found to ensure that function is preserved. We already know for instance that between 80 and 90% of all striatal dopamine must be lost before
JonStamford
in
Cure Parkinson's
13 years ago
I have to fight the Beast
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
Hidden
in
Cure Parkinson's
13 years ago
Has anyone else had this problem?
This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of
parkinsonism
. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway.
This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of
parkinsonism
. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway.
LauraDunn
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
1
...
83
84
85
Next page
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
1339 results
PSP Association
122 results
Thyroid UK
71 results
View top 10 communities
Sort by
Most Relevant
Newest