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mannitol
http://clinicrowd.info/pd-registry/ Hi everybody, about 5 days ago I got my 5 kilos of mannitol and started taking it. If you want more information on it click on the link above. You can join their trial provide some of the information for their study. You can also look up #ranico posts. I will keep
http://clinicrowd.info/pd-registry/ Hi everybody, about 5 days ago I got my 5 kilos of mannitol and started taking it. If you want more information on it click on the link above. You can join their trial provide some of the information for their study. You can also look up #ranico posts. I will keep
parkie13
in
Cure Parkinson's
8 years ago
Cannabis oil
I've seen couple of videos on FB showing how cannabis oil helps calm tremors. Anyone using it? Also would it be safe to take alongside rasagiline? And is hemp oil the same thing?! Thanks Marc
I've seen couple of videos on FB showing how cannabis oil helps calm tremors. Anyone using it? Also would it be safe to take alongside rasagiline? And is hemp oil the same thing?! Thanks Marc
Marcomando
in
Cure Parkinson's
8 years ago
clearly make the diagnosis by a specialist in movement disorders
Giving a trial of medication too early in the course of the disease has the potential of doing harm.” 28:16 “They may have been taking a particular medication that it self induces
Parkinsonism
and unless that is recognized the disorder will continue and lead to increasing disability.”
Giving a trial of medication too early in the course of the disease has the potential of doing harm.” 28:16 “They may have been taking a particular medication that it self induces
Parkinsonism
and unless that is recognized the disorder will continue and lead to increasing disability.”
Hidden
in
Cure Parkinson's
8 years ago
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Update on high b/p azilect and theanine in Gabba-Plex
About 3 months ago I was struggling to manage elevated b/p and to continue to take a Rx of Azilect and also to continue to take otc Gabba-Plex. Briefly, the history is that theanine in the Gabba-Plex increased the elevation of my b/p a common side-effect to Azilect. The update is that by taking just
About 3 months ago I was struggling to manage elevated b/p and to continue to take a Rx of Azilect and also to continue to take otc Gabba-Plex. Briefly, the history is that theanine in the Gabba-Plex increased the elevation of my b/p a common side-effect to Azilect. The update is that by taking just
BUZZ1397
in
Cure Parkinson's
8 years ago
First appointment at Movement Disorder Clinic
This morning I went to my first appointment at the UAMS Movement Disorder Clinic and I was very impressed. Because it was my first appointment the doctor took a really long time with me. About an hour and a half. He told me so much I didn't know and explained a lot about my symptoms. Parkinson's is
This morning I went to my first appointment at the UAMS Movement Disorder Clinic and I was very impressed. Because it was my first appointment the doctor took a really long time with me. About an hour and a half. He told me so much I didn't know and explained a lot about my symptoms. Parkinson's is
TheresaCurley
in
Cure Parkinson's
8 years ago
One of my best friends got Parkinson's ... this is my journey to find a cure for him...it is going well !
This is how it started 3 years ago, i started to look for every new research or clinical trial on this disease. Luckily, since my friend saw that i m very serious, he started sending me articles that other people sent him and one of them caught my attention. It was a research done at Tel Aviv University
This is how it started 3 years ago, i started to look for every new research or clinical trial on this disease. Luckily, since my friend saw that i m very serious, he started sending me articles that other people sent him and one of them caught my attention. It was a research done at Tel Aviv University
Ranico
in
Cure Parkinson's
8 years ago
Another interesting blog post from Alan Hoffman
Alan Hoffman, one of the participants in the first Georgetown University nilotinib trial for PD, has just added a new post to his blog (17 Nov 2016). In this post he makes reference to the program BIG, and to the drugs Rytary and Tasigna (nilotinib), which he is taking. http://advenventurouslifewithparkinsons.blogspot.com.au
Alan Hoffman, one of the participants in the first Georgetown University nilotinib trial for PD, has just added a new post to his blog (17 Nov 2016). In this post he makes reference to the program BIG, and to the drugs Rytary and Tasigna (nilotinib), which he is taking. http://advenventurouslifewithparkinsons.blogspot.com.au
jeffreyn
in
Cure Parkinson's
8 years ago
Personal Assistants not Care Agencies?
I was speaking to the CHC nurse last week about care agencies and the 'deplorable state of the industry' as she put it. There is a complete dearth of Care Agency placements around here and it tends to be get what you are given and be grateful. Then the nurse (and she is a wonderfully on the ball there
I was speaking to the CHC nurse last week about care agencies and the 'deplorable state of the industry' as she put it. There is a complete dearth of Care Agency placements around here and it tends to be get what you are given and be grateful. Then the nurse (and she is a wonderfully on the ball there
Kevin_1
in
PSP Association
8 years ago
Eight Years Trek!
My 1st doc for 5 years diagnosed me with
Parkinsonism
and treated me with Ritalin which helps the dopamine respond through the neuro transmitter norpinhirine. He said there were other meds, like carbo/levo, but wanted to wait because those lose their effectiveness over time.
My 1st doc for 5 years diagnosed me with
Parkinsonism
and treated me with Ritalin which helps the dopamine respond through the neuro transmitter norpinhirine. He said there were other meds, like carbo/levo, but wanted to wait because those lose their effectiveness over time.
Opt8
in
Cure Parkinson's
8 years ago
Been told I have symptoms of Parkinsonism
He told me I had some early symptoms of
Parkinsonism
and arranged for a brain scan which I am due to have next Monday. To say I am a bit shattered is putting it mildly. Other than my gait I have no symptoms. I am tempted to put my head in the sand and not attend the scan.
He told me I had some early symptoms of
Parkinsonism
and arranged for a brain scan which I am due to have next Monday. To say I am a bit shattered is putting it mildly. Other than my gait I have no symptoms. I am tempted to put my head in the sand and not attend the scan.
Scottie99
in
Cure Parkinson's
8 years ago
Beats Medical
Hi. My mother was diagnosed with Parkinson's a year ago and has trouble walking. Consultant has increased her medication but the freezing seems to be getting worse. She's come across the Beats Medical App. Does anyone use this and if so, is it any good?
Hi. My mother was diagnosed with Parkinson's a year ago and has trouble walking. Consultant has increased her medication but the freezing seems to be getting worse. She's come across the Beats Medical App. Does anyone use this and if so, is it any good?
CeeJay12
in
Cure Parkinson's
8 years ago
Glial cell line-Derived Neurotropic Factor (GDNF) a disease-modifying therapy
Over the past two decades, biotech companies and clinicians have tried to develop a cure for Parkinson’s disease based on Glial cell line-Derived Neurotrophic Factor (GDNF), a naturally occurring factor promoting the growth of dopamine neurons. Some clinical results were stunning, with patients experiencing
Over the past two decades, biotech companies and clinicians have tried to develop a cure for Parkinson’s disease based on Glial cell line-Derived Neurotrophic Factor (GDNF), a naturally occurring factor promoting the growth of dopamine neurons. Some clinical results were stunning, with patients experiencing
Hidden
in
Cure Parkinson's
8 years ago
Early Stage Parkinson's and Nilotinib
Hi, I live in Hyderabad, India and have been diagnosed for Parkinson's in October 2014 and my symptoms started with tremors and gradually this has increased and I am also suffering from dystonia (rigidity and body pains). My neurologist has put me on Syndopa 110 mg (L-dopa). Started with half a tablet
Hi, I live in Hyderabad, India and have been diagnosed for Parkinson's in October 2014 and my symptoms started with tremors and gradually this has increased and I am also suffering from dystonia (rigidity and body pains). My neurologist has put me on Syndopa 110 mg (L-dopa). Started with half a tablet
MSashi
in
Cure Parkinson's
8 years ago
What stage?
I've read a little on the 5 stages of Parkinson's (very, very little) trying to determine which stage in the progression I would be considered. I guess that is something I should ask my Neuro next time I see him or when I finally get to the Movement Disorder Clinic. What stage are you in? I just
I've read a little on the 5 stages of Parkinson's (very, very little) trying to determine which stage in the progression I would be considered. I guess that is something I should ask my Neuro next time I see him or when I finally get to the Movement Disorder Clinic. What stage are you in? I just
TheresaCurley
in
Cure Parkinson's
8 years ago
PD and Vision Changes
I'm curious if anyone here experiences vision changes day-to-day. I find that depending upon my pain and/or stress level my vision goes from perfectly sharp to annoyingly blurred. I assume that Parkinson's disease is affecting the eye muscles the way it affects many muscles but when I address this to
I'm curious if anyone here experiences vision changes day-to-day. I find that depending upon my pain and/or stress level my vision goes from perfectly sharp to annoyingly blurred. I assume that Parkinson's disease is affecting the eye muscles the way it affects many muscles but when I address this to
Pauldmd
in
Cure Parkinson's
8 years ago
Cause of Parkinson's as postulated by Noel Batten on blogtalkradio.com and Robert Rogers Ph.D
Hope Springs Eternal. I have not been to blogtalkradio.com since I've been diagnosed with Parkinson's. At that time I bought road to recovery from Parkinson's compiled by Robert Rogers I have Revisited the site now since I wanted to listen to@silvestrove, s (Richard Melvin )presentation on the blog
Hope Springs Eternal. I have not been to blogtalkradio.com since I've been diagnosed with Parkinson's. At that time I bought road to recovery from Parkinson's compiled by Robert Rogers I have Revisited the site now since I wanted to listen to@silvestrove, s (Richard Melvin )presentation on the blog
parkie13
in
Cure Parkinson's
8 years ago
Parkinsons & Amino Acids
Hi All, I was diagnosed with Parkinson's a couple of years ago. A bit of investigating pointed me in the direction of Amino Acids. I tried self medicating for a year or so, while hunting for professional help. My NHS people were very supportive, although they had no idea what I was on about. :-) Eventually
Hi All, I was diagnosed with Parkinson's a couple of years ago. A bit of investigating pointed me in the direction of Amino Acids. I tried self medicating for a year or so, while hunting for professional help. My NHS people were very supportive, although they had no idea what I was on about. :-) Eventually
Harleybob08
in
Cure Parkinson's
8 years ago
What depression meds are the best for someone with psp?
My dad really struggles with depression. When I finally convinced him to take an anti-depressant, I did notice a remarkable change. Now it has leveled out to where he is depressed most days. He currently takes Cymbalta and Lexapro. I wonder if there are certain anti-depressants that work better for
My dad really struggles with depression. When I finally convinced him to take an anti-depressant, I did notice a remarkable change. Now it has leveled out to where he is depressed most days. He currently takes Cymbalta and Lexapro. I wonder if there are certain anti-depressants that work better for
fothergilla
in
PSP Association
8 years ago
Reversing Parkinson's Disease
Yes, I am a newbie here. Looks like a great place to spend some time. At seventy-five, I have had PD for five and a half years. I still don't take medications. It's all about self-directed neuroplasticity. I have developed a training program that I would like to share with others. I have reversed
Yes, I am a newbie here. Looks like a great place to spend some time. At seventy-five, I have had PD for five and a half years. I still don't take medications. It's all about self-directed neuroplasticity. I have developed a training program that I would like to share with others. I have reversed
chrishageseth
in
Cure Parkinson's
8 years ago
Parkinsons Disease and anti-depressants
Hi My mum has early stage parkinsons disease with hand tremor . Currently neurologist has prescribed Madopar in the treatment cycle. She spends most time in bed and has lost a lot of weight ie loss of appetite above all Im thinking that she has depression and need to find out what anti-depressants have
Hi My mum has early stage parkinsons disease with hand tremor . Currently neurologist has prescribed Madopar in the treatment cycle. She spends most time in bed and has lost a lot of weight ie loss of appetite above all Im thinking that she has depression and need to find out what anti-depressants have
PSZ28
in
Cure Parkinson's
8 years ago
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