Eight Years Trek!: Because I tremor very... - Cure Parkinson's

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Eight Years Trek!

Opt8 profile image
Opt8
9 Replies

Because I tremor very little; however, have many other symptoms it has been a challenge to get a good diagnoses until recently. It is a quandary for the neurologist and myself. My 1st doc for 5 years diagnosed me with Parkinsonism and treated me with Ritalin which helps the dopamine respond through the neuro transmitter norpinhirine. He said there were other meds, like carbo/levo, but wanted to wait because those lose their effectiveness over time. I felt much better on a low dose of Ritalin until I develop a rash and he retired. So was on another doc trek with doc saying I looked healthy so he did not think I was ill!! What does PD look like? Because of lack of tremors I told one doc you don't get it. Found another good doctor this year. Symptoms keep increasing. I have deep fatigue, hard to stand up and get out of car due to extreme stiffness, pains in back of knees and legs. Anxiety in crowds and a lot of other strange symptoms. Now am taking carbo/levo with new neuro which is very helpful with walking a little longer distance. New doc is seeing difference with my gait. We so need a blood test for those who do not have a lot of outward symptoms so the doc can better diagnose. All I know is how I feel and am sooo greatful for carbo/levo able to walk better and less pains.

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9 Replies
Astra7 profile image
Astra7

Sounds like PD to me! If the c-l is helping then that is probably the right diagnosis. Do you arms swing when you walk and how is your sense of smell?

Opt8 profile image
Opt8 in reply toAstra7

Lost my sense of smell mostly a few years ago. Arms swing some.

camper1 profile image
camper1

They can do a dat scan (nuclear scan) to look at the dopamine receptors in the brain.

TheresaCurley profile image
TheresaCurley

I too am grateful I finally got diagnosed and am on the correct medication. If the carb/levo relieves your symptoms there is no doubt you have Parkinson's. That's how my GP and Neuro diagnosed me. The Sinemet (carb/levo) has been a life saver for me. Welcome to the group.

Opt8 profile image
Opt8 in reply toTheresaCurley

Thank you. I am trying to get in some exercise daily and stay positive.

JohnPepper profile image
JohnPepper

Hi Opt8. I am sure I can help you, but I need to ask you questions and get the full picture.

I have had Pd symptoms since 1963. I was finally diagnosed with Pd in 1992. In 1994 my symptoms had got so much worse I had to change everything.

That is when I started doing Fast Walking. In 2002, my condition had improved so much, I was able to come off my Pd medication and have been off it ever since.

If you would like to discuss it with me then visit my website - reverseparkinsons.net and write to me.

Opt8 profile image
Opt8 in reply toJohnPepper

I will look into that.

JohnPepper profile image
JohnPepper

Hi Opt8. Your name tells me that you might be South African. Am I right?

Opt8 profile image
Opt8

No. It is short for Optimistic

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