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Do you have lupus or another autoimmune condition?
There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). This is to provide valuable insights into the way services are
There is still time to complete the survey conducted by RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) on what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). This is to provide valuable insights into the way services are
nakita_cambow
Moderator
in
LUPUS UK
3 months ago
Strophantus D4 heart arrhythmia
I have already asked recently about heart arrhythmia since Pred. And it seems many people have that problem. I have been taking Strophantus D4 tablets for a few weeks and have had no more heart attacks at night. Sometimes I still have little heart palpitations. I hope it lasts 🤞🏻
I have already asked recently about heart arrhythmia since Pred. And it seems many people have that problem. I have been taking Strophantus D4 tablets for a few weeks and have had no more heart attacks at night. Sometimes I still have little heart palpitations. I hope it lasts 🤞🏻
Swizzly
in
PMRGCAuk
2 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
6 months ago
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Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
6 months ago
I'm new to this community , but not to Health Unlocked
I'm John and for several years have posted in HealthUnlocked about atrial fibrillation and stroke. In 2014 I had pulmonary toxicity (cryptogenic organising pnuemonia) secondary to dronedarone and amiodarone. It took three hospital admissions before it was correctly diagnosed. I had read the American
I'm John and for several years have posted in HealthUnlocked about atrial fibrillation and stroke. In 2014 I had pulmonary toxicity (cryptogenic organising pnuemonia) secondary to dronedarone and amiodarone. It took three hospital admissions before it was correctly diagnosed. I had read the American
john-boy-92
in
Lung Conditions Community Forum
2 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
6 months ago
Sweetened drinks linked to atrial fibrillation risk
Many, many years ago, I used to occasionally have a gin and tonic or angostura and tonic (if driving). And became convinced that, if the tonic contained saccharin, I would likely end up having a relatively high heart rate. But this was long before I had any idea about afib. As I hate the taste of saccharin
Many, many years ago, I used to occasionally have a gin and tonic or angostura and tonic (if driving). And became convinced that, if the tonic contained saccharin, I would likely end up having a relatively high heart rate. But this was long before I had any idea about afib. As I hate the taste of saccharin
Carew
in
Atrial Fibrillation Support
2 months ago
Recent post April Fibrillation
Thanks to everyone who commented on my post. Unfortunately Heart Rate shot up to a very dangerous level and was ambulances to Hospital where I was monitored overnight and at no time did BP RISE and two ECG showed normal rhythm. Unable to sleep as was parked in admissions but well looked after. dIscharged
Thanks to everyone who commented on my post. Unfortunately Heart Rate shot up to a very dangerous level and was ambulances to Hospital where I was monitored overnight and at no time did BP RISE and two ECG showed normal rhythm. Unable to sleep as was parked in admissions but well looked after. dIscharged
JMF1
in
Atrial Fibrillation Support
2 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
6 months ago
Heart Rhythm query…
Please can anyone explain ? My Kardia can show a result of Afib or SVEs even when my heart rhythm appears to be constant. It can show heart rhythm of say 61 throughout a 30 second trace, without fluctuation, yet reveal I have an irregular heart rate. As we are often told to check our pulse and if it’
Please can anyone explain ? My Kardia can show a result of Afib or SVEs even when my heart rhythm appears to be constant. It can show heart rhythm of say 61 throughout a 30 second trace, without fluctuation, yet reveal I have an irregular heart rate. As we are often told to check our pulse and if it’
Tellingfibs
in
Atrial Fibrillation Support
2 months ago
levothyroxine
Diagnosed eight weeks ago underactive thyroid even though I had no symptoms. 25mg given and 12 days later reduced to 12.5 as I was so ill. 4 weeks later I was bedridden, severe headaches and unable to urinate so took myself off them as Surgery would not respond. Informed Surgery what I had done they
Diagnosed eight weeks ago underactive thyroid even though I had no symptoms. 25mg given and 12 days later reduced to 12.5 as I was so ill. 4 weeks later I was bedridden, severe headaches and unable to urinate so took myself off them as Surgery would not respond. Informed Surgery what I had done they
Sunny-time
in
Thyroid UK
3 months ago
Antibody blood test
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Hello I hope everyone is well. I was diagnosed with hashimotos about 9 weeks ago and have been on levothyroxine 50mg, blood test due at 12 weeks. Have also been taking vit d and ferroglobin. I have awful upper back, neck and foot pain. Currently under physio. Doctor did blood tests for rheumatoid arthritis
Nattycake
in
Thyroid UK
3 months ago
Is a Liquid biopsy of ctDNA with PSA = 6 and 4 bone mets, useful?
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Manilo
in
Advanced Prostate Cancer
6 months ago
Hip surgery
I'm due to have a hip replacement but nervous because I have paroxysmal A Fib. I' m on Edoxaban and have bisoprolol as a P I P, told to take after a few hours if it didn't resolve, but haven't had to take it . Would welcome some reassurance 😊
I'm due to have a hip replacement but nervous because I have paroxysmal A Fib. I' m on Edoxaban and have bisoprolol as a P I P, told to take after a few hours if it didn't resolve, but haven't had to take it . Would welcome some reassurance 😊
Normynoo
in
Atrial Fibrillation Support
2 months ago
Advice Please
Please accept apologies if this is not the correct support group - just concerned as having Atrial Fibrillation from first thing in morning until I go to sleep. Not sure if this is related but pulse low at 40 and stays at that with occasional increase to 51. Have thyroid problems and advised to reduce
Please accept apologies if this is not the correct support group - just concerned as having Atrial Fibrillation from first thing in morning until I go to sleep. Not sure if this is related but pulse low at 40 and stays at that with occasional increase to 51. Have thyroid problems and advised to reduce
JMF1
in
Atrial Fibrillation Support
2 months ago
Is musculosketetal condition associated with PMR
I have not written on the form for a while but would like your thoughts on the following: On Sunday night and all day Monday I had chest pain especially when breathing in, and both shoulders and upper back were sore. It was still very painful on Tuesday so I phoned GP and was told as it was chest pains
I have not written on the form for a while but would like your thoughts on the following: On Sunday night and all day Monday I had chest pain especially when breathing in, and both shoulders and upper back were sore. It was still very painful on Tuesday so I phoned GP and was told as it was chest pains
PatB1948
in
PMRGCAuk
2 months ago
adrenal crisis?
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
Reclus
in
PMRGCAuk
7 months ago
Travel while in Afib
There are probably other posts about this but a search isn't turning them up. I've been in persistent AF for probably a year (except for three days in February when I had a successful cardioversion before I fell back out of sinus rhythm). Now waiting for another cardioversion while on the list for an
There are probably other posts about this but a search isn't turning them up. I've been in persistent AF for probably a year (except for three days in February when I had a successful cardioversion before I fell back out of sinus rhythm). Now waiting for another cardioversion while on the list for an
Redactrice
in
Atrial Fibrillation Support
2 months ago
Do you Know Your Pulse?
Do you know what a normal resting heart rhythm is? Do you know what an irregular heart rhythm feels like? Did you know that an irregular pulse can be the very early warning signs of an arrhythmia? It is vital you monitor your heart rhythm by taking regular pulse checks. For further information
Do you know what a normal resting heart rhythm is? Do you know what an irregular heart rhythm feels like? Did you know that an irregular pulse can be the very early warning signs of an arrhythmia? It is vital you monitor your heart rhythm by taking regular pulse checks. For further information
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
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