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Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
7 months ago
CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
CatsandCars
in
My MSAA Community
4 months ago
Difference in levels-stress?
I've been on leventhyroxine for years for underactive thyroid. Had yearly check muddle of Feb. TSH 2.09. Had full bloods for something else (WRS) and levels are 0.36 by middle if April. I'm wondering if stress can cause TSH to go up or down? Dr. Says this is in normal range for lab- but normal
I've been on leventhyroxine for years for underactive thyroid. Had yearly check muddle of Feb. TSH 2.09. Had full bloods for something else (WRS) and levels are 0.36 by middle if April. I'm wondering if stress can cause TSH to go up or down? Dr. Says this is in normal range for lab- but normal
Itsallaboutcheese
in
Thyroid UK
4 months ago
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Graves disease and Pregnancy
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Candice197
in
Thyroid UK
7 months ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
7 months ago
GCA, Afib, heart failure
I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had bouts of fatigue which have up to now been linked to adrenals following a Syncathen test. The CRP came back as 15, ESR 14. Rheumatology helpline suggested
I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had bouts of fatigue which have up to now been linked to adrenals following a Syncathen test. The CRP came back as 15, ESR 14. Rheumatology helpline suggested
Bluey-1
in
PMRGCAuk
2 months ago
Is vitamin K2 ok with edoxaban?
I'm in the UK I'll keep it brief but I take edoxaban and bisoprolol for afib. I'm aware that historically Warfarin has a question mark over vitamin K1 for various reasons Some people seem to monitor using inr testing but my question is that more modern anti coagulants use a different mechanism of action
I'm in the UK I'll keep it brief but I take edoxaban and bisoprolol for afib. I'm aware that historically Warfarin has a question mark over vitamin K1 for various reasons Some people seem to monitor using inr testing but my question is that more modern anti coagulants use a different mechanism of action
Nogginuk
in
Atrial Fibrillation Support
2 months ago
"When to Hold, When to Fold"...or "a Bird in the Hand..."
Since first experiencing Afib 4 years ago, I have been advised off and on to consider ablation. Many people seem to think that ablation cured or reduced their Afib, while others have reported disappointing ineffectiveness and complications. It is difficult to pin down statistical assessments because
Since first experiencing Afib 4 years ago, I have been advised off and on to consider ablation. Many people seem to think that ablation cured or reduced their Afib, while others have reported disappointing ineffectiveness and complications. It is difficult to pin down statistical assessments because
fibnum
in
Atrial Fibrillation Support
2 months ago
Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
7 months ago
rheumatoid arthritis
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
65_women
in
NRAS
4 months ago
Do You Know Your Pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
5 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
7 months ago
Measuring force of heart beats?
Hi. I'm Amelia. New here. Age 63. Paroxysmal AFib since at least 2015. Dx in 2018. Rx Metoprolol. Question: is there any way of measuring the force of your irregular heartbeats? Just wondering if that could explain the difference between people who don't feel their Afib and people that feel all of it
Hi. I'm Amelia. New here. Age 63. Paroxysmal AFib since at least 2015. Dx in 2018. Rx Metoprolol. Question: is there any way of measuring the force of your irregular heartbeats? Just wondering if that could explain the difference between people who don't feel their Afib and people that feel all of it
Amelia123_usa
in
Atrial Fibrillation Support
2 months ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
4 months ago
PA and Sjogren’s
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
Lhood08
in
Pernicious Anaemia Society
4 months ago
Is coping with arrhythmia... "strong" or "weak"?
I posted the following in a different thread, edited a little for this post to make more sense. I felt some might not have read it there and might be interested in replying. I wonder what others' views are on "being strong" when faced with illness, well - arrhythmias in our case (for some daily, maybe
I posted the following in a different thread, edited a little for this post to make more sense. I felt some might not have read it there and might be interested in replying. I wonder what others' views are on "being strong" when faced with illness, well - arrhythmias in our case (for some daily, maybe
Ppiman
in
Atrial Fibrillation Support
2 months ago
Symptoms after cardioversion
It's nearly two weeks since I had a successful cardioversion after being in permanent AF following an ablation ten weeks ago. I'm on 5m bisprolol and 200mg amiodarone daily. I'm feeling much better for being in NSR and able to do a lot more (I was very symptomatic in AF). I do still get slightly breathless
It's nearly two weeks since I had a successful cardioversion after being in permanent AF following an ablation ten weeks ago. I'm on 5m bisprolol and 200mg amiodarone daily. I'm feeling much better for being in NSR and able to do a lot more (I was very symptomatic in AF). I do still get slightly breathless
JoDogBlue
in
Atrial Fibrillation Support
2 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
7 months ago
Result of CT angiogram
Heard back from the rapid access chest pain clinic and they confirmed I have a mild to moderate blockage of my coronary arteries. They requested my doctor prescribe amlopidine and aspirin - so more medication! I'm not sure about the aspirin as I've had a stomach ulcer in the past and also bleed very
Heard back from the rapid access chest pain clinic and they confirmed I have a mild to moderate blockage of my coronary arteries. They requested my doctor prescribe amlopidine and aspirin - so more medication! I'm not sure about the aspirin as I've had a stomach ulcer in the past and also bleed very
Roxdale
in
Lung Conditions Community Forum
2 months ago
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