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Travel coolers
Hello everyone, I am planning to travel for 6 weeks and it will be the first time after I have been diagnosed with ET-jack2. I live in Australia and going to Europe so a 24 hour plane journey. I am on 90mcg of pegasys every second week. Looking for a recommendation please on a good travel pack to keep
Hello everyone, I am planning to travel for 6 weeks and it will be the first time after I have been diagnosed with ET-jack2. I live in Australia and going to Europe so a 24 hour plane journey. I am on 90mcg of pegasys every second week. Looking for a recommendation please on a good travel pack to keep
Adamidis
in
MPN Voice
2 years ago
Best Information.
I took out a subscription to the Macular Society after a 6 months free trial. I have been a member for over 3 years. You receive a magazines in large print and it’s the most comprehensive and informative magazine on AMD. Interesting personal stories, It keeps you informed of all the latest trials
I took out a subscription to the Macular Society after a 6 months free trial. I have been a member for over 3 years. You receive a magazines in large print and it’s the most comprehensive and informative magazine on AMD. Interesting personal stories, It keeps you informed of all the latest trials
Whitegoose
in
Macular Society
2 years ago
Thyroid eye disease
Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I have all the symptoms of it. I’m really confused though as the GP did loads of blood tests that came back fine for thyroid function. I have an appt with a thyroid eye specialist at the end of July and in
Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I have all the symptoms of it. I’m really confused though as the GP did loads of blood tests that came back fine for thyroid function. I have an appt with a thyroid eye specialist at the end of July and in
Solstice11
in
Thyroid UK
2 years ago
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Time to decide about leaving the initial NON TIME LIMITED Captivate trial because of potential toxicity
Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until MRD. When MRD was achieved, a blind was set up for placebo vs Ibrutinib indefinitely, or until progression/toxicity. Since MRD, we have settled
Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until MRD. When MRD was achieved, a blind was set up for placebo vs Ibrutinib indefinitely, or until progression/toxicity. Since MRD, we have settled
I282much
in
CLL Support
2 years ago
Graves' Ophthalmopathy in the Setting of Primary Hypothyroidism
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Adalimumab effect only lasting 10 days
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
vonniesims
in
NRAS
2 years ago
Taking Flecainide even when in Permanent Afib
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Malhouse
in
Atrial Fibrillation Support
2 years ago
Am I heading for a PMR flareup?
After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild symptoms in the mornings until the preds had kicked in for the day. My last blood test showed my inflammation had reduced down to nearly nothing
After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild symptoms in the mornings until the preds had kicked in for the day. My last blood test showed my inflammation had reduced down to nearly nothing
Washingup
in
PMRGCAuk
2 years ago
Scared
Had my eye test today I’ve had glaucoma for 6 years so far my pressure has been good today was up to 36 my dr was not very happy and used some very negative words like aggressive glaucoma . I was very upset and told him so . He put my on 2x drops a day and potentially laser surgery in a few months .
Had my eye test today I’ve had glaucoma for 6 years so far my pressure has been good today was up to 36 my dr was not very happy and used some very negative words like aggressive glaucoma . I was very upset and told him so . He put my on 2x drops a day and potentially laser surgery in a few months .
pinks223
in
Glaucoma UK
2 years ago
Recent new Glaucoma diagnosis - should I wait 3mths for next appointment?
Hello all, hope you are all keeping well as can be and enjoying the pleasant recent weather. New to the site as only recently been diagnosed. Apologies in advance if this becomes a long post, but I think I'll bullet point my story and questions in order to make this post more easily digestible. *
Hello all, hope you are all keeping well as can be and enjoying the pleasant recent weather. New to the site as only recently been diagnosed. Apologies in advance if this becomes a long post, but I think I'll bullet point my story and questions in order to make this post more easily digestible. *
glauca
in
Glaucoma UK
2 years ago
Low IOP and blurred vision after Trab
It's been nearly three weeks after Trab and my blurred vision is coming back frustratingly and worryingly slow. I have a double vision and difficult to read my phone however close it is. Meanwhile, I had a check up and the doctor confirmed the op went well and the bleb is working fine and eye is healing
It's been nearly three weeks after Trab and my blurred vision is coming back frustratingly and worryingly slow. I have a double vision and difficult to read my phone however close it is. Meanwhile, I had a check up and the doctor confirmed the op went well and the bleb is working fine and eye is healing
charles555
in
Glaucoma UK
2 years ago
Second Pegasys injection and I’m weak as a kitten!
Update/ I took my second Pegasys yesterday evening. I sweat ALL night long. I feel fatigued and so weak. Also had a headache and some nausea last night. I have planted myself on the couch, today, and am depending on my husband to keep refilling my water glass. I am hoping this passes by tomorrow, when
Update/ I took my second Pegasys yesterday evening. I sweat ALL night long. I feel fatigued and so weak. Also had a headache and some nausea last night. I have planted myself on the couch, today, and am depending on my husband to keep refilling my water glass. I am hoping this passes by tomorrow, when
Wewo01
in
MPN Voice
2 years ago
newbie & fearful
Hello everyone, Im new here but been reading the posts with interest. I had high eye pressures as was referred to the eye hospital, they told me I had glaucoma and cataracts in both eyes and suggested operation. I was so shocked and terrified of an op on eyes whilst your awake so they said they would
Hello everyone, Im new here but been reading the posts with interest. I had high eye pressures as was referred to the eye hospital, they told me I had glaucoma and cataracts in both eyes and suggested operation. I was so shocked and terrified of an op on eyes whilst your awake so they said they would
Gilly1959
in
Glaucoma UK
2 years ago
Antibiotic eye drops- dosage and side effects
After a trab, I was given boxes of antibiotic eye drops called Dexafree. I was diligently taking them but after five days or so, the discomfort and inflammation is gone. Still a blurred vision, which is a concern... Am I supposed to take them until doctors say otherwise? Since this is a steroid eye
After a trab, I was given boxes of antibiotic eye drops called Dexafree. I was diligently taking them but after five days or so, the discomfort and inflammation is gone. Still a blurred vision, which is a concern... Am I supposed to take them until doctors say otherwise? Since this is a steroid eye
charles555
in
Glaucoma UK
2 years ago
Tube surgery
Hello. I am a new member. Last Thursday I had Baerveldt tube surgery to my left eye. Still some blurring and discomfort from the stitches and the eye is watery. There was scar tissue to remove from previous surgery. I saw my consultant the following day and he wasn't surprised when I told him I had
Hello. I am a new member. Last Thursday I had Baerveldt tube surgery to my left eye. Still some blurring and discomfort from the stitches and the eye is watery. There was scar tissue to remove from previous surgery. I saw my consultant the following day and he wasn't surprised when I told him I had
Hollyberry3
in
Glaucoma UK
2 years ago
GCA steady
After being diagnosed with GCA due to partial sight loss in right eye I started on 50 mg prednisone. Seven days later back to ophthalmologist to check swelling of optic nerve. It has reduced slightly and now on 30 mg for next month. I am so grateful to my optometrist and her expertise in picking up
After being diagnosed with GCA due to partial sight loss in right eye I started on 50 mg prednisone. Seven days later back to ophthalmologist to check swelling of optic nerve. It has reduced slightly and now on 30 mg for next month. I am so grateful to my optometrist and her expertise in picking up
Triumph650
in
PMRGCAuk
2 years ago
Update reappointment with Eye Consultant post cataract surgery.
Dear All, Photo is my quilting of my current quilt I am doing very slowly due to my eyes. Just to update all of you . Yesterday has been a horrendous day for my husband and I after spending nearly 6 hours at the hospital we left our home at 7.45 for an appointment for 9.15 only to be seen at 11ish after
Dear All, Photo is my quilting of my current quilt I am doing very slowly due to my eyes. Just to update all of you . Yesterday has been a horrendous day for my husband and I after spending nearly 6 hours at the hospital we left our home at 7.45 for an appointment for 9.15 only to be seen at 11ish after
KnitSewPurl
in
LUPUS UK
2 years ago
allergic to most eye drops
I had a cataract operation to help lower my eye pressure as I am so allergic to the drops but unfortunately it didn't work and my pressure has remained the same at 20 in that eye and for some reason gone up to 23 in the other one that still has a cataract.I am going back to the clinic next week and think
I had a cataract operation to help lower my eye pressure as I am so allergic to the drops but unfortunately it didn't work and my pressure has remained the same at 20 in that eye and for some reason gone up to 23 in the other one that still has a cataract.I am going back to the clinic next week and think
booktwo
in
Glaucoma UK
2 years ago
Istents and cataract surgery but pressures still high
Hi, I'm new here and looking for some support and advice. I was diagnosed with glaucoma 12 years ago at 38. My pressures have always varied from 18 to 35 (when I was first diagnosed). The last 3 months they have gone up to 45 despite new drops. As a result I had a cataract operation in both eyes and
Hi, I'm new here and looking for some support and advice. I was diagnosed with glaucoma 12 years ago at 38. My pressures have always varied from 18 to 35 (when I was first diagnosed). The last 3 months they have gone up to 45 despite new drops. As a result I had a cataract operation in both eyes and
BetiB
in
Glaucoma UK
2 years ago
Fear of losing drivers licence
Hello My husband who has glaucoma is currently struggling mentally. He had an appointment yesterday and was advised to inform DVLA. He didnt have a field test this time however she advised that based on the results of his previous visual field test months ago he should inform DVLA His pressures
Hello My husband who has glaucoma is currently struggling mentally. He had an appointment yesterday and was advised to inform DVLA. He didnt have a field test this time however she advised that based on the results of his previous visual field test months ago he should inform DVLA His pressures
Nyasham
in
Glaucoma UK
2 years ago
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