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Recap and update
hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was not attempted due to significant disease remaining in mesentry. I’ve had 6 rounds of chemo now and was hoping to have debulking at this stage. However my MDT, having looked at scan have said no. I was still responding to treatment
hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was not attempted due to significant disease remaining in mesentry. I’ve had 6 rounds of chemo now and was hoping to have debulking at this stage. However my MDT, having looked at scan have said no. I was still responding to treatment
Beaver54
in
My Ovacome
9 months ago
Rash when taking avastin
Has anyone experienced an itchy rash while taking this medication.
Has anyone experienced an itchy rash while taking this medication.
Tealgirl7
in
My Ovacome
9 months ago
What should I do next?
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
Mardes
in
SHARE Ovarian Cancer Support
9 months ago
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First recurrence
Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Driebergen
in
My Ovacome
9 months ago
3rd recurrence
Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then 2022. Her CA markers are up again. It has shoot up to 17 from 10. Same pattern was there last time 10,12,17,35,68,140.... Doctors are not going
Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then 2022. Her CA markers are up again. It has shoot up to 17 from 10. Same pattern was there last time 10,12,17,35,68,140.... Doctors are not going
HealthyBeing
in
My Ovacome
9 months ago
1 year since my operation so celebrated on holiday's 🙌🌄 🇬🇷
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Newbery3
in
My Ovacome
10 months ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
10 months ago
Advice please
Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they
Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they
Pitchperfec
in
My Ovacome
10 months ago
Abdominal distension
I was diagnosed with HGSO grade 3 in 2021. Had 4 rounds carbo/plaxi/avastin, followed by debulking. Completed further 2 rounds of chemo. Cancer recurred within 6 months. So I was denied further surgery. I am BRACA-1. Avastin and PARP wasn't effective. Completed carbo/gem in July and subsequent PET scan
I was diagnosed with HGSO grade 3 in 2021. Had 4 rounds carbo/plaxi/avastin, followed by debulking. Completed further 2 rounds of chemo. Cancer recurred within 6 months. So I was denied further surgery. I am BRACA-1. Avastin and PARP wasn't effective. Completed carbo/gem in July and subsequent PET scan
Nov5
in
My Ovacome
10 months ago
What else is available?
Hi girls, I haven’t posted in a while as nothing is working. I have HGSOC diagnosed in April 2021. I had 6 sessions of carbo/taxol with reduction. A year on Avastin and Olaparib with progression. Then my onc tried Carboplatin and then Caelyx neither of which worked and the size of my tumour is what it
Hi girls, I haven’t posted in a while as nothing is working. I have HGSOC diagnosed in April 2021. I had 6 sessions of carbo/taxol with reduction. A year on Avastin and Olaparib with progression. Then my onc tried Carboplatin and then Caelyx neither of which worked and the size of my tumour is what it
Guilane
in
My Ovacome
10 months ago
DDS treatment.
Hi. I saw my oncologist a few dsys ago for the result of my scan which was done after three rounds of chemo. It wasn’t the news I wanted to hear but it wasn’t all bad news. I had a partial response, which is positive, but IDS is not suitable as I still have significant mesenteric disease, which they
Hi. I saw my oncologist a few dsys ago for the result of my scan which was done after three rounds of chemo. It wasn’t the news I wanted to hear but it wasn’t all bad news. I had a partial response, which is positive, but IDS is not suitable as I still have significant mesenteric disease, which they
Beaver54
in
My Ovacome
10 months ago
Summer 2022
hi ladies, It’s not at all like me to post, but I thought this might resonate with some of you ladies, who like me, are so grateful to still be here, be well. I also appreciate that there will be many of you ladies at the beginning of your journey or having a really tough time, I hope this gives you
hi ladies, It’s not at all like me to post, but I thought this might resonate with some of you ladies, who like me, are so grateful to still be here, be well. I also appreciate that there will be many of you ladies at the beginning of your journey or having a really tough time, I hope this gives you
Willowsmum51
in
My Ovacome
10 months ago
Any advice apprecaited
My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started to taper down the steroids to 1 mg but he was sleeping 21 hours a day. His repeat scan showed increased swelling with a midline shift. His steroids
My husband was dx with a grade 4 glioblastoma wild type Feb 2023. Since then the full round of chemo and radiation and 3 five day cycles of TMZ. we started to taper down the steroids to 1 mg but he was sleeping 21 hours a day. His repeat scan showed increased swelling with a midline shift. His steroids
Buffalolove
in
Glioblastoma Support
10 months ago
Cortisol test for Adrenals
Also, another complicating factor is that I am on a once per week
ovestin
cream. Will this affect the test if I am being tested for whether my adrenals are working or not? Thanks for your help.
Also, another complicating factor is that I am on a once per week
ovestin
cream. Will this affect the test if I am being tested for whether my adrenals are working or not? Thanks for your help.
Jane185
in
PMRGCAuk
2 years ago
mesenteric tumour?
Hi, I have posted on here before but I’m having trouble navigating the site and can’t find my posts,, so I apologise if I am repeating myself. I have been diagnosed with stage 4 HG ovarian/ peritoneal cancer (they aren’t able to say which). Original scan revealed cysts on one ovary and the other
Hi, I have posted on here before but I’m having trouble navigating the site and can’t find my posts,, so I apologise if I am repeating myself. I have been diagnosed with stage 4 HG ovarian/ peritoneal cancer (they aren’t able to say which). Original scan revealed cysts on one ovary and the other
Beaver54
in
My Ovacome
11 months ago
Recurrence while on Avastin?
Can you recur while on the maintenance of Avastin? My cancer markers have continued to trek upwards lately. On
7/21/23
my CA125 went from
30 to 37.
And my recent CA125 on
8/11/23
went to
43
. All while I was on Avastin Treatment! Can that happen, I thought Avastin treatment
Can you recur while on the maintenance of Avastin? My cancer markers have continued to trek upwards lately. On
7/21/23
my CA125 went from
30 to 37.
And my recent CA125 on
8/11/23
went to
43
. All while I was on Avastin Treatment! Can that happen, I thought Avastin treatment
gta03
in
SHARE Ovarian Cancer Support
11 months ago
Trial with Niraparib and Avastin
I am stage 4 HG SO. I have been living with this disease for over 17 years. I am now considering a drug trial using Niraparib and Avastin combo. I believe it is intended for people who have been taking Niraparib with progression of disease. Would love to hear from anyone. Thank you
I am stage 4 HG SO. I have been living with this disease for over 17 years. I am now considering a drug trial using Niraparib and Avastin combo. I believe it is intended for people who have been taking Niraparib with progression of disease. Would love to hear from anyone. Thank you
Tealgirl7
in
My Ovacome
11 months ago
stage 4
hi, Im new to this forum although I have been reading your posts over recent days, which have been very encouraging, and given me some hope. I wasn’t expecting to read such positivity and positive outcomes. There is a but however . My diagnosis couldn’t be any worse. I’m stage 4 advanced, high grade
hi, Im new to this forum although I have been reading your posts over recent days, which have been very encouraging, and given me some hope. I wasn’t expecting to read such positivity and positive outcomes. There is a but however . My diagnosis couldn’t be any worse. I’m stage 4 advanced, high grade
Beaver54
in
My Ovacome
11 months ago
Avastin and gemzar therapies
Have any of you repeated Avastin and gemzar therapies after a year from last recurrence with success?
Have any of you repeated Avastin and gemzar therapies after a year from last recurrence with success?
Rlenesue
in
My Ovacome
11 months ago
Faricimab side effects
Hi all I have had injections monthly since 2011 for DMO I had Avastin then Lucentis and then since 2016 Eylea. Last Saturday I was switched to Faricimab it’s def thicker than Eylea. Since then I had tiny floaters in the eye that was injected it’s been a week now and although the number of floaters has
Hi all I have had injections monthly since 2011 for DMO I had Avastin then Lucentis and then since 2016 Eylea. Last Saturday I was switched to Faricimab it’s def thicker than Eylea. Since then I had tiny floaters in the eye that was injected it’s been a week now and although the number of floaters has
tallyho
in
Macular Society
1 year ago
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