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Aches and Pains
Hi Lovely ladies. Finished avastin course on 1st of February and now on watch and wait which Is great, but wondered if any one after finishing has terrible joint pains in back, knees hips ,hands intact all over. At night it seems worse or if l have been sitting for a while ,when l get up for the first
Hi Lovely ladies. Finished avastin course on 1st of February and now on watch and wait which Is great, but wondered if any one after finishing has terrible joint pains in back, knees hips ,hands intact all over. At night it seems worse or if l have been sitting for a while ,when l get up for the first
Lmc52
in
My Ovacome
5 years ago
High CA125, chemo/avastin not working
Hi, My mom too is having clear cell 3c ovarian cancer detected in jan 18 with CA-125 of 16k which later raised to 27k after 3 chemo cycles, later she had 3 avastin +chemo cycles which brought CA-125 to 3k, After this she had cyto reductive surgery in mid last year, she continued 4 avastin cycles but
Hi, My mom too is having clear cell 3c ovarian cancer detected in jan 18 with CA-125 of 16k which later raised to 27k after 3 chemo cycles, later she had 3 avastin +chemo cycles which brought CA-125 to 3k, After this she had cyto reductive surgery in mid last year, she continued 4 avastin cycles but
abhijeet9388
in
My Ovacome
5 years ago
Update
I completed my second line chemo in early Feb and this week had my post chemo pet scan. Unfortunately the result is not as good as the first time and the scan shows some cancer in the abdominal cavity, ie basically the chemo was not very effective and there is little change from the pre chemo status.
I completed my second line chemo in early Feb and this week had my post chemo pet scan. Unfortunately the result is not as good as the first time and the scan shows some cancer in the abdominal cavity, ie basically the chemo was not very effective and there is little change from the pre chemo status.
Grace-53
in
My Ovacome
5 years ago
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Sector laser with Lucentis injection for Diabetics Macular edema
Dear all, I am posting this on behalf of my mother. She is suffering from Wet Diabetics Macular edema in her left eye. She is already taken 5 avastin injection, followed by given one ozurdex implant but not sufficient progress. Then she was given accentrix injection and focal laser. After that few progress
Dear all, I am posting this on behalf of my mother. She is suffering from Wet Diabetics Macular edema in her left eye. She is already taken 5 avastin injection, followed by given one ozurdex implant but not sufficient progress. Then she was given accentrix injection and focal laser. After that few progress
Homealone
in
Macular Society
5 years ago
Fed up but no option
I am fed.up with all treatment, painful n results in progressive disease. Avastin n irrinotcan every week.... Blood work. CT. Chemo. Is this our fate. No respite. I am confused.
I am fed.up with all treatment, painful n results in progressive disease. Avastin n irrinotcan every week.... Blood work. CT. Chemo. Is this our fate. No respite. I am confused.
viduanujranu
in
My Ovacome
5 years ago
Acrylic Nails
Morning to you all, I’m au natural short nails girl but Avastin has wrecked them and they seem to spit very easily causing a lot of pain. I wondered if having acrylics (short) over the top would help strengthen and protect them. Do any of you have this done? Any experience would be greatly appreciated
Morning to you all, I’m au natural short nails girl but Avastin has wrecked them and they seem to spit very easily causing a lot of pain. I wondered if having acrylics (short) over the top would help strengthen and protect them. Do any of you have this done? Any experience would be greatly appreciated
Hidden
in
My Ovacome
5 years ago
Recurrence #3
Hello all. It has been awhile since I posted anything on here. After my 2nd recurrence I was on Zejula for the next 14 months. Everything was going good I thought until I started having pain in my abdomen and throwing up at night. By this time my ca125 was starting to rise but not showing up on the ct
Hello all. It has been awhile since I posted anything on here. After my 2nd recurrence I was on Zejula for the next 14 months. Everything was going good I thought until I started having pain in my abdomen and throwing up at night. By this time my ca125 was starting to rise but not showing up on the ct
Sherryp
in
SHARE Ovarian Cancer Support
5 years ago
**UPDATE ON MY MUMS FIRST SCAN RESULTS FOLLOWING FIRST LINE CHEMO**
My mum finally got her report from the consultant meeting. Her CA125 has dropped down to 50 now but he doesn't seem to concerned about that as she had a problem with her wound and it does say she has some strandling on the peritoneal showing in the CT but it's unclear whether it's from surgery or any
My mum finally got her report from the consultant meeting. Her CA125 has dropped down to 50 now but he doesn't seem to concerned about that as she had a problem with her wound and it does say she has some strandling on the peritoneal showing in the CT but it's unclear whether it's from surgery or any
sjg81
in
My Ovacome
5 years ago
Pain Relief
Hello friends. I had advanced serous ovarian cancer last year, ascities twice, chemo, surgery, more chemo and now in remission I am on Avastin. This is causing me massive pain. I'm taking oramorph and co codamol 30/500 mg prn. The other day I was started on Buprenorphine 10mcg/hr patch and the pain has
Hello friends. I had advanced serous ovarian cancer last year, ascities twice, chemo, surgery, more chemo and now in remission I am on Avastin. This is causing me massive pain. I'm taking oramorph and co codamol 30/500 mg prn. The other day I was started on Buprenorphine 10mcg/hr patch and the pain has
TudorPurr68
in
My Ovacome
5 years ago
Can i go into remission without debunking surgery?
Does anyone know if you can you go into remission when you cannot have the debulking surgery..? I have Stage iv inoperable high grade serious also on liver spleen peritoneal Tec. Had 8 chemo carboplatin and paclitaxol now as not suitable for op because of cancer on liver and they could not get/ me Ned
Does anyone know if you can you go into remission when you cannot have the debulking surgery..? I have Stage iv inoperable high grade serious also on liver spleen peritoneal Tec. Had 8 chemo carboplatin and paclitaxol now as not suitable for op because of cancer on liver and they could not get/ me Ned
Iwillbeatit
in
My Ovacome
5 years ago
Not trying to offend anyone, only trying to help others get through it the best way i know how,
I went through all the treatment, chemo surgery avastin, and i have a good understanding of what it entails, the only reason i post quotes about spiritual realization is to try and help others ,
I went through all the treatment, chemo surgery avastin, and i have a good understanding of what it entails, the only reason i post quotes about spiritual realization is to try and help others ,
broadgodd
in
My Ovacome
5 years ago
Allergic reaction no.3. Advice please.
Over a period of years, I’ve had one Avastin, and many Lucentis and latterly Eylea injections. Both eyes are now treated. The injection procedure itself is usually ok, but on 3 occasions the after effects have been agonising. I hesitate to use the word agony, because I don’t want to upset anyone and
Over a period of years, I’ve had one Avastin, and many Lucentis and latterly Eylea injections. Both eyes are now treated. The injection procedure itself is usually ok, but on 3 occasions the after effects have been agonising. I hesitate to use the word agony, because I don’t want to upset anyone and
Shrimpie
in
Macular Society
5 years ago
Enrolled in trail
Mine case had gone hopeless as cancer spread in abdomen, peritoneal cavity n everywhere within. I had three lines of chemo after debulking O C 3c in 2016 may.Cancer has recurrent type n when CA went up 1240, food intake become two three bites..... N loose motions makes worse situation but I am able to
Mine case had gone hopeless as cancer spread in abdomen, peritoneal cavity n everywhere within. I had three lines of chemo after debulking O C 3c in 2016 may.Cancer has recurrent type n when CA went up 1240, food intake become two three bites..... N loose motions makes worse situation but I am able to
Rimi5
in
My Ovacome
5 years ago
Avastin
Thank you to all the ladies on here, everyone has been so helpful. You all are truly keeping me going. My mom has had 3 out of 6 of her chemo treatments. Oncologist said her scans have been great but have encouraged her to take the Avastin along with her front line treatment. She is worried about the
Thank you to all the ladies on here, everyone has been so helpful. You all are truly keeping me going. My mom has had 3 out of 6 of her chemo treatments. Oncologist said her scans have been great but have encouraged her to take the Avastin along with her front line treatment. She is worried about the
Lind58
in
My Ovacome
5 years ago
CA125 stress
Hello everyone I was diagnosed grade 3c ovarian cancer last year. A year of chemo, and de bulked. Praise God (and wonderful NHS) am in remission. now on Avastin until July. Finding the CA125 test every three weeks very stressful. Mine was through the roof before treatment and now it’s at 11.5. What
Hello everyone I was diagnosed grade 3c ovarian cancer last year. A year of chemo, and de bulked. Praise God (and wonderful NHS) am in remission. now on Avastin until July. Finding the CA125 test every three weeks very stressful. Mine was through the roof before treatment and now it’s at 11.5. What
Lou_UK
in
SHARE Ovarian Cancer Support
5 years ago
Reccurence on avastin
Hi Ladies, i just wondered if anyone else has had a reccurence whilst on maintenance avastin? I got scan results yesterday which have showed new tumours on my stomach wall 1.5/1cm and enlarged lymph nodes in my abdomen. I was due to continue avastin for another 9 months but they have now stopped it and
Hi Ladies, i just wondered if anyone else has had a reccurence whilst on maintenance avastin? I got scan results yesterday which have showed new tumours on my stomach wall 1.5/1cm and enlarged lymph nodes in my abdomen. I was due to continue avastin for another 9 months but they have now stopped it and
Loverosie
in
My Ovacome
5 years ago
First scan result post first line, not sure what to make of it 🤔
I don't write on here often but visit daily to see how everyone is doing. My mum finished first line treatment on Dec 27th (she had her debulking ok 23rd nov) following a diagnosis of stage 3c OC/PPC in June 2018 (they can't decide which) she is on avastin until around Sept. Anyway her first appointment
I don't write on here often but visit daily to see how everyone is doing. My mum finished first line treatment on Dec 27th (she had her debulking ok 23rd nov) following a diagnosis of stage 3c OC/PPC in June 2018 (they can't decide which) she is on avastin until around Sept. Anyway her first appointment
sjg81
in
My Ovacome
5 years ago
How often do you see your Oncologist?
Just a quick question as to how often you all see your Oncologist, either in the UK or elsewhere. Is it every three weeks whilst undergoing chemo or Avastin and then less frequently when not receiving treatment. Do you see an Oncology nurse or Pharmacist if you don't see your Oncologist? thank you,
Just a quick question as to how often you all see your Oncologist, either in the UK or elsewhere. Is it every three weeks whilst undergoing chemo or Avastin and then less frequently when not receiving treatment. Do you see an Oncology nurse or Pharmacist if you don't see your Oncologist? thank you,
sticky3006
in
My Ovacome
5 years ago
Is it the end?
Hello. My mother 5 years from diagnose. We live in Spain. She has been in constant treatment since may 2018. The oncologist commented that there were not many treatment alternatives. She is BRCA negative. The treatments received were: 1. CARBO + TAXOL. ** NED 10 months 2. CARBO + TAXOL + AVASTIN **
Hello. My mother 5 years from diagnose. We live in Spain. She has been in constant treatment since may 2018. The oncologist commented that there were not many treatment alternatives. She is BRCA negative. The treatments received were: 1. CARBO + TAXOL. ** NED 10 months 2. CARBO + TAXOL + AVASTIN **
Dolores43
in
My Ovacome
5 years ago
Avastin and 2nd line chemo, Aurelia trial?
Hi there I'm on 2nd line weekly Taxol for recurrance 2 months after end of first line treatment. I am considering whether to self fund Avastin to be added to the Taxol. My oncologist has said that the benefit will be minimal and may not delay the progression much and has pointed me in the direction of
Hi there I'm on 2nd line weekly Taxol for recurrance 2 months after end of first line treatment. I am considering whether to self fund Avastin to be added to the Taxol. My oncologist has said that the benefit will be minimal and may not delay the progression much and has pointed me in the direction of
Phuket
in
My Ovacome
5 years ago
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