Search
Search
About
Log in
Join
Experiences with
Ovestin
Posts
Communities
1,336 public posts
Filter results
Long term avastin...voice gone??
Hi all, my mother was diagnosed with stage 3c primary peritoneal cancer in 2012..chemo+debulking surgery..2year remission..chemo then started avastin Jan 2016 and on it since. Has done very well on it although ca125 rising slowly the whole time, still NED on Ct scan so onc is happy to continue. Since
Hi all, my mother was diagnosed with stage 3c primary peritoneal cancer in 2012..chemo+debulking surgery..2year remission..chemo then started avastin Jan 2016 and on it since. Has done very well on it although ca125 rising slowly the whole time, still NED on Ct scan so onc is happy to continue. Since
Puggle
in
My Ovacome
5 years ago
PET SCAN RESULTS
Good morning/afternoon/evening everyone. Hoping you’re all as well as can be. I had a PET scan this week to see how things are a year after finishing Chemo and stopping Avastin in January. Well it’s good news, no sign of any metastasis and the areas that were affected are still looking clear. So I will
Good morning/afternoon/evening everyone. Hoping you’re all as well as can be. I had a PET scan this week to see how things are a year after finishing Chemo and stopping Avastin in January. Well it’s good news, no sign of any metastasis and the areas that were affected are still looking clear. So I will
JayGeeCee
in
My Ovacome
5 years ago
Concerns about Avastin
Good morning to all. Wishing I could make this cancer just disappear from our lives and give us peace. Because of recurrence, I have been on immunotherapy for the past four months. CA125 has risen, so it’s probably not working. Doc suggested adding Avastin. Has anyone taken these two together for
Good morning to all. Wishing I could make this cancer just disappear from our lives and give us peace. Because of recurrence, I have been on immunotherapy for the past four months. CA125 has risen, so it’s probably not working. Doc suggested adding Avastin. Has anyone taken these two together for
Ryleebrown
in
SHARE Ovarian Cancer Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mom has ovarian cancer in omental cake from ovarian cancer.
My mom has been seeing a gynecological oncologist since she had a hernia and they found signs of cancer in April, she was quickly diagnosed with Ovarian 3c and referred. In April it will be 2 years. She started chemo in April 2017, and did it for 6 months while taking Rick Simpson oils. Her ca125 went
My mom has been seeing a gynecological oncologist since she had a hernia and they found signs of cancer in April, she was quickly diagnosed with Ovarian 3c and referred. In April it will be 2 years. She started chemo in April 2017, and did it for 6 months while taking Rick Simpson oils. Her ca125 went
Kiloj757
in
My Ovacome
5 years ago
My silicone bubble is back.
Some moths ago I reported that the silicone bubble I had gotten in my eye from a Avastin injection, for wet AMD, had floated above my field of vision at last, and was no longer my constant companion. Today I did some intensive "spring cleaning", furniture moving and such too. The bubble left its resting
Some moths ago I reported that the silicone bubble I had gotten in my eye from a Avastin injection, for wet AMD, had floated above my field of vision at last, and was no longer my constant companion. Today I did some intensive "spring cleaning", furniture moving and such too. The bubble left its resting
Jihm
in
Macular Society
5 years ago
Avastin
Three weeks ago had my first injection for wet AMD. I know I experienced extreme fatigue the first week. Don’t know if it was from the avistin or the anesthesia drops So they could give me the injection. Also, since that time, I have had anxiety attacks which is not normal for me. I do not see anxiety
Three weeks ago had my first injection for wet AMD. I know I experienced extreme fatigue the first week. Don’t know if it was from the avistin or the anesthesia drops So they could give me the injection. Also, since that time, I have had anxiety attacks which is not normal for me. I do not see anxiety
Seemeno
in
Macular Society
5 years ago
Clones,what next?.!,
I've been on Olaparib for over 3 years,I'm BRCA positive and advanced stage four on diagnosis I was told then I was inoperable .Thanks to being on the Olaparib,I was able to have surgery last year when the cancer came back.At that stage it was found I had a tumour in my left Fallopian tube and in my
I've been on Olaparib for over 3 years,I'm BRCA positive and advanced stage four on diagnosis I was told then I was inoperable .Thanks to being on the Olaparib,I was able to have surgery last year when the cancer came back.At that stage it was found I had a tumour in my left Fallopian tube and in my
annieH1
in
My Ovacome
5 years ago
Mother with PPC stage IV
Hello everyone Question from a worried son with a mother diagnoses with ppc stage 4 due to BRCA2 . She has completed chemo and surgery with good results. She first underwent 3 chemos, then surgery and 3 more chemocures. No visible cancer or cancercells in the omentum after sugery and the lastest CA-125
Hello everyone Question from a worried son with a mother diagnoses with ppc stage 4 due to BRCA2 . She has completed chemo and surgery with good results. She first underwent 3 chemos, then surgery and 3 more chemocures. No visible cancer or cancercells in the omentum after sugery and the lastest CA-125
KAIM83
in
My Ovacome
5 years ago
Blocked bile duct & liver mets
Good morning ladies looking for some good tips and advice please I’ve just come out of the Christie after nearly two weeks I was admitted for sickness which was caused by blocked bile ducts which came whilst I was on the Rotterdam Regime my 5th line in four years! I’ve had the works Carbo taxol debunking
Good morning ladies looking for some good tips and advice please I’ve just come out of the Christie after nearly two weeks I was admitted for sickness which was caused by blocked bile ducts which came whilst I was on the Rotterdam Regime my 5th line in four years! I’ve had the works Carbo taxol debunking
Hidden
in
My Ovacome
5 years ago
Mum's latest Oncologist meeting 🙄
My mum last saw her consultant on the 7th Feb to discuss her first scan following the end of her first line treatment. He said the scan showed strandling and nodules but they couldn't be certain if it was just scaring from her op. Her CA125 was 50. 3 weeks ago her CA125 was 49. She went today and her
My mum last saw her consultant on the 7th Feb to discuss her first scan following the end of her first line treatment. He said the scan showed strandling and nodules but they couldn't be certain if it was just scaring from her op. Her CA125 was 50. 3 weeks ago her CA125 was 49. She went today and her
sjg81
in
My Ovacome
5 years ago
Care Oncology Clinic
Hello Ladies. I will finish Avastin in May for stage 3c OC. I've been thinking about going for a consultation at the Care Oncology Clinic with the intention of starting their 'off label' drug regime. I wondered if any ladies on here are currently under their care are if so how are you getting on? How
Hello Ladies. I will finish Avastin in May for stage 3c OC. I've been thinking about going for a consultation at the Care Oncology Clinic with the intention of starting their 'off label' drug regime. I wondered if any ladies on here are currently under their care are if so how are you getting on? How
sticky3006
in
My Ovacome
5 years ago
Post Chemo Memory Loss
Hello all. I need help, I'm getting worried now. I finished my chemo last October but am still experiencing memory and concentration problems. How much longer am I to expect this?? I'm currently on Avastin as you may have read, with massive pain. My new sympton is my nose blocks at night, only at night
Hello all. I need help, I'm getting worried now. I finished my chemo last October but am still experiencing memory and concentration problems. How much longer am I to expect this?? I'm currently on Avastin as you may have read, with massive pain. My new sympton is my nose blocks at night, only at night
TudorPurr68
in
My Ovacome
5 years ago
2 down, 10 to go!
Just finished my second of twelve rounds of Avastin, Gemcitabine, and Cisplatin. So far, so good. Going every two weeks - 4 hours at a clip. Very lucky so far, hair is holding steady. This is excellent because it has just grown back after my last Taxotere/Carbo regiment a year ago. I think I'm going
Just finished my second of twelve rounds of Avastin, Gemcitabine, and Cisplatin. So far, so good. Going every two weeks - 4 hours at a clip. Very lucky so far, hair is holding steady. This is excellent because it has just grown back after my last Taxotere/Carbo regiment a year ago. I think I'm going
Superkim
in
My Ovacome
5 years ago
How quickly does wet AMD progress?
Hi All! I was diagnosed with wet AMD in September of 2017 ( one and a half years ago) in my left eye. I have been receiving injections ( 4 Avastin and 9 Eylea) at , sometimes irregular, intervals. My affected eye has continued to get worse. I developed fuzzy/ faded vision over the entire visual field
Hi All! I was diagnosed with wet AMD in September of 2017 ( one and a half years ago) in my left eye. I have been receiving injections ( 4 Avastin and 9 Eylea) at , sometimes irregular, intervals. My affected eye has continued to get worse. I developed fuzzy/ faded vision over the entire visual field
Ikansea
in
Macular Society
5 years ago
Avastin side effects?
Hi. I just had a question with others on avastin about joint pain muscle pain and exhaustion. My chemo treatment ended 10 months ago and after trying opdivo I was put on avastin only to treat the ovarian cancer that progressed while under chemo. I am finding that I have some very strange side effects
Hi. I just had a question with others on avastin about joint pain muscle pain and exhaustion. My chemo treatment ended 10 months ago and after trying opdivo I was put on avastin only to treat the ovarian cancer that progressed while under chemo. I am finding that I have some very strange side effects
Natsmb
in
My Ovacome
5 years ago
Avastin Doxil
I’m a newbie here ......Scheduled to start 6 rounds of these 3/26/19 ..’’finished 6 rounds of carboplatin/Taxol 11/2018 scheduled for echo gram 3/22 I’ve read up on possible heart side effects and I am undecided on whether to have new treatment ...anybody dealt with side effects?
I’m a newbie here ......Scheduled to start 6 rounds of these 3/26/19 ..’’finished 6 rounds of carboplatin/Taxol 11/2018 scheduled for echo gram 3/22 I’ve read up on possible heart side effects and I am undecided on whether to have new treatment ...anybody dealt with side effects?
LAKGS
in
SHARE Ovarian Cancer Support
5 years ago
Ascites and drain
Hello lovely ladies I had started olaparib after second line chemotherapy in January I was taking it for 7 weeks and started to feel very bloated. I went for an ultrasound 9 days ago and they said the fluid was moderate and not enough to drain however in the last few days I am in severe pain I look heavily
Hello lovely ladies I had started olaparib after second line chemotherapy in January I was taking it for 7 weeks and started to feel very bloated. I went for an ultrasound 9 days ago and they said the fluid was moderate and not enough to drain however in the last few days I am in severe pain I look heavily
coksd
in
OvaCare
5 years ago
Dry eyes?
Has anyone suffered from horrendous dry eyes and feeling of ear pressure after carbo/taxol and Avastin.
Has anyone suffered from horrendous dry eyes and feeling of ear pressure after carbo/taxol and Avastin.
Hidden
in
My Ovacome
5 years ago
CA125 levels
Hi everyone, my mum was diagnosed stage 4 ovarian cancer in January 2018 she is currently on Avastin maintenance and her CA125 has slowly been going up however she had a result today and it has doubled to over 300 😢😢 she had a scan a few weeks ago and they said they couldn’t see anything. Does anything
Hi everyone, my mum was diagnosed stage 4 ovarian cancer in January 2018 she is currently on Avastin maintenance and her CA125 has slowly been going up however she had a result today and it has doubled to over 300 😢😢 she had a scan a few weeks ago and they said they couldn’t see anything. Does anything
eh11g11
in
My Ovacome
5 years ago
Aches and Pains
Hi Lovely ladies. Finished avastin course on 1st of February and now on watch and wait which Is great, but wondered if any one after finishing has terrible joint pains in back, knees hips ,hands intact all over. At night it seems worse or if l have been sitting for a while ,when l get up for the first
Hi Lovely ladies. Finished avastin course on 1st of February and now on watch and wait which Is great, but wondered if any one after finishing has terrible joint pains in back, knees hips ,hands intact all over. At night it seems worse or if l have been sitting for a while ,when l get up for the first
Lmc52
in
My Ovacome
5 years ago
1
...
25
26
27
...
67
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
My Ovacome
978 results
Macular Society
112 results
OvaCare
90 results
View top 10 communities
Sort by
Most Relevant
Newest