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Orthostatic hypotension
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24 hour Urine collection.
I have CKD stage4/5. I have just had a Fistula made a couple of weeks ago but getting different opinions from the doctors. Kidney function is 15%. Now, I am told because I am only 4.11 tall or short, My readings may not be accurate due to less muscle mass than a taller person. I now need to do a 24 hour
I have CKD stage4/5. I have just had a Fistula made a couple of weeks ago but getting different opinions from the doctors. Kidney function is 15%. Now, I am told because I am only 4.11 tall or short, My readings may not be accurate due to less muscle mass than a taller person. I now need to do a 24 hour
elithomson
in
Early CKD Support
11 years ago
Breastfeeding an alagilles baby
My little man is 14 weeks and was diagnosed with alagilles 4 weeks, suspected in pregnancy as his dad has alagilles. He also had a VSD ( hole in heart) until last week when he had surgery to repair it. I have breastfed him since birth as well as ng tube feeding him caprilon and expressed breastmilk from
My little man is 14 weeks and was diagnosed with alagilles 4 weeks, suspected in pregnancy as his dad has alagilles. He also had a VSD ( hole in heart) until last week when he had surgery to repair it. I have breastfed him since birth as well as ng tube feeding him caprilon and expressed breastmilk from
Ellec93
in
Children's Liver Disease Foundation
11 years ago
Travelling by Car with Oxygen Cylinders, is there any restrictions on the amount you can carry in a vehicle.
Hi, i have recently posted on another thread about getting out and about more, maybe for a short holiday. I suffer from Neurofibramatosis and Pulmonary Hypertension, and therefore require 12 litres of oxygen per minute 24 hours a day. We would like to know if there are any restrictions etc on carrying
Hi, i have recently posted on another thread about getting out and about more, maybe for a short holiday. I suffer from Neurofibramatosis and Pulmonary Hypertension, and therefore require 12 litres of oxygen per minute 24 hours a day. We would like to know if there are any restrictions etc on carrying
Eileen25
in
Lung Conditions Community Forum
11 years ago
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Anyone with Pulmonary Arterial Hypertension (PAH) and APS that started with high hypertension?
After I started Warfarin my hypertension has normalized. I have had a PAH-pressure of 50 the last two years. No breathlessness. Waiting for a heartcateterization (?). Any thoughts? have you had the same?
After I started Warfarin my hypertension has normalized. I have had a PAH-pressure of 50 the last two years. No breathlessness. Waiting for a heartcateterization (?). Any thoughts? have you had the same?
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Medications
I take Madopar rapid for my RLS. But every 6 months I have to take a 2 week break. Initially I was prescribed Paxam but have to take so many that I am like a zombie the following day. I've recently been prescribed Pregabalin for these breaks, but the effects are worse - I have difficulty waking & the
I take Madopar rapid for my RLS. But every 6 months I have to take a 2 week break. Initially I was prescribed Paxam but have to take so many that I am like a zombie the following day. I've recently been prescribed Pregabalin for these breaks, but the effects are worse - I have difficulty waking & the
Pabula
in
Restless Legs Syndrome
12 years ago
Idiopathic Intercranial Hypertension
Helloooo and a happy new year to all, Just wondering if anyone else has the above condition. Was told I probably had it at the beginning of December and they tried and failed to do a lumbar puncture on 18th but succeeded today and my pressure was 27 when should be 12 so they think this is what is
Helloooo and a happy new year to all, Just wondering if anyone else has the above condition. Was told I probably had it at the beginning of December and they tried and failed to do a lumbar puncture on 18th but succeeded today and my pressure was 27 when should be 12 so they think this is what is
Hidden
in
Asthma Community Forum
12 years ago
Stemetil 5mg
I dont suffer that bad with panic attacks,its the lightheadedness that i get and get it all day everyday,my doc gave me some tablets called stemetil 5mg,ive had bad side affects to other meds and dont know whether to take them or not,the tablets say there for dizzyness,will they work with suffering from
I dont suffer that bad with panic attacks,its the lightheadedness that i get and get it all day everyday,my doc gave me some tablets called stemetil 5mg,ive had bad side affects to other meds and dont know whether to take them or not,the tablets say there for dizzyness,will they work with suffering from
warkie
in
Anxiety Support
12 years ago
Does anyone have any ideas they can offer as to when and how to discuss their child's liver disease with them?
My daughter has Biliary Atresia, portal hypertension with grade 3 oesophageal varies. Sophie is 3 years old and has a twin sister. With recent visits to KCH it seems she is headed for a transplant and I want to know if anyone has dealt with discussing these things with their child, if so how?
My daughter has Biliary Atresia, portal hypertension with grade 3 oesophageal varies. Sophie is 3 years old and has a twin sister. With recent visits to KCH it seems she is headed for a transplant and I want to know if anyone has dealt with discussing these things with their child, if so how?
LouTub
in
Children's Liver Disease Foundation
12 years ago
Balance Problems...
I already know I suffer from
orthostatic
hypotension
, possibly from my medications or my cardiac-related problems. But this balance issue is not dizzyness, nor would I describe it as light-headedness. It only bothers me when I am walking and then only once or twice a day, if it all.
I already know I suffer from
orthostatic
hypotension
, possibly from my medications or my cardiac-related problems. But this balance issue is not dizzyness, nor would I describe it as light-headedness. It only bothers me when I am walking and then only once or twice a day, if it all.
wordworks2001
in
Cure Parkinson's
12 years ago
York mum in limbo.
Hi Here I am introducing myself. My 12 year old son took ill in may this year. He had haematuria an enlarged spleen, portal hypertension , varacies in the portal vein and one kidney smaller than the other. As yet I still don't know why this is happening ? His biopsy didn't look
Hi Here I am introducing myself. My 12 year old son took ill in may this year. He had haematuria an enlarged spleen, portal hypertension , varacies in the portal vein and one kidney smaller than the other. As yet I still don't know why this is happening ? His biopsy didn't look
Yorkmum
in
Children's Liver Disease Foundation
12 years ago
have to stop reading tablet side affects
went to the doctor today and had a good chat with him .he has giving me haloperidol serenace 500 micrograms but i read the possible side affects and one was sudden death so not taking these id rather be anxious
went to the doctor today and had a good chat with him .he has giving me haloperidol serenace 500 micrograms but i read the possible side affects and one was sudden death so not taking these id rather be anxious
andy37
in
Anxiety Support
12 years ago
hello
Hi my name is Jackie and my son's name is Aaron he has Portal Hypertension, varacis and blocked splenic vein, we only found out in April of this year, Aaron is 9. Sadly Aaron cannot have the shunt done due to the blocked splenic vein and now sadly we are investigating if this is genetic. My first son
Hi my name is Jackie and my son's name is Aaron he has Portal Hypertension, varacis and blocked splenic vein, we only found out in April of this year, Aaron is 9. Sadly Aaron cannot have the shunt done due to the blocked splenic vein and now sadly we are investigating if this is genetic. My first son
cookies897
in
Children's Liver Disease Foundation
12 years ago
Virtigo
Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick and fainty it's all over in a few minutes but it's horrible anyone got it or have any advice for me x
Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick and fainty it's all over in a few minutes but it's horrible anyone got it or have any advice for me x
taffydaffy
in
Hughes Syndrome APS Forum
12 years ago
some good news!
Hi everyone , after 3 appointments in the same week I feel like I am a step closer to the transplant list. I spoke to a cardiologist who specialises in heart transplants on friday who told me my pulmonary hypertension is purely down to my IPF and has not damaged the chambers in my heart although there
Hi everyone , after 3 appointments in the same week I feel like I am a step closer to the transplant list. I spoke to a cardiologist who specialises in heart transplants on friday who told me my pulmonary hypertension is purely down to my IPF and has not damaged the chambers in my heart although there
mrWheezy
in
Lung Conditions Community Forum
12 years ago
Please see question below. Sorry i wasnt sur ehow to enter this
Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared
Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared
lovemyheart
in
Hughes Syndrome APS Forum
12 years ago
Hate having asthma how it stops other treatment.
The doctor put me on a medication Gabapentin for another problem.My chest went tight then really puffed and blue lips at work for 15 minutes.Had to ring doctor and stop the meds.Asthma puffed now and big Nellie on my chest.My Hospital asthma team know about my blue lips and pic of me in my notes with
The doctor put me on a medication Gabapentin for another problem.My chest went tight then really puffed and blue lips at work for 15 minutes.Had to ring doctor and stop the meds.Asthma puffed now and big Nellie on my chest.My Hospital asthma team know about my blue lips and pic of me in my notes with
Hidden
in
Asthma Community Forum
12 years ago
Asthma med and high blood pressure
Hi all, Has anyone had any raised blood pressure problems from asthma meds, I have read that LABAs (salmeterol, seretide, advair, symbicort, oxis, formeterol) can raise blood pressure. It would be good to know if anyone has a problem with this. Cheers RI
Hi all, Has anyone had any raised blood pressure problems from asthma meds, I have read that LABAs (salmeterol, seretide, advair, symbicort, oxis, formeterol) can raise blood pressure. It would be good to know if anyone has a problem with this. Cheers RI
Hidden
in
Asthma Community Forum
16 years ago
Blue lips?
Hi, Hope everyone is keeping reasonably well at the moment? I have a problem and was just wondering if anyone else has the same or could help? I quite often get told that i have blue lips, infact, as recently as this morning in class, but although i dont feel like death, but as i look at at mirror
Hi, Hope everyone is keeping reasonably well at the moment? I have a problem and was just wondering if anyone else has the same or could help? I quite often get told that i have blue lips, infact, as recently as this morning in class, but although i dont feel like death, but as i look at at mirror
Hidden
in
Asthma Community Forum
14 years ago
complementary therapies
I am interested if anyone has tried various therapies such as reflexology, reiki,aromatherapy, to help with either their asthma or other health problems. I have been told that i am not a suitable candidate for reflexology by a qualified practioner which is disappointing. I have had reiki although it
I am interested if anyone has tried various therapies such as reflexology, reiki,aromatherapy, to help with either their asthma or other health problems. I have been told that i am not a suitable candidate for reflexology by a qualified practioner which is disappointing. I have had reiki although it
Hidden
in
Asthma Community Forum
18 years ago
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