My little man is 14 weeks and was diagnosed with alagilles 4 weeks, suspected in pregnancy as his dad has alagilles. He also had a VSD ( hole in heart) until last week when he had surgery to repair it. I have breastfed him since birth as well as ng tube feeding him caprilon and expressed breastmilk from a month, now he has the energy to feed he is breast fed and tube fed the caprilon (trying to start him on bottles) just wondered if anyone else had experience of breastfeeding an alagilles baby as I feel like I am fighting with the dieticians to keep him on breastmilk. Thankyou xx
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