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Introduction: Shaunjon, 47, I went through pelvic radiation in 2009. I have been through a lot, unnecessarily, unfortunately.
My profile kinda goes over the just of my situation. I've been through pelvic radiotherapy in 2009. Chemotherapy in 2014. I've learned a lot so feel free to ask anything. I have questions but nothing that important. In my situation, which would be considered pretty standard, I know without a doubt
My profile kinda goes over the just of my situation. I've been through pelvic radiotherapy in 2009. Chemotherapy in 2014. I've learned a lot so feel free to ask anything. I have questions but nothing that important. In my situation, which would be considered pretty standard, I know without a doubt
Shaunjon
in
Pelvic Radiation Disease Association
9 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Had a very brief scare there
As you can imagine I’ve been super paranoid about my hearing/ears since my mental health crisis back in May when I had a tinnitus worsening due to chemo, I never want to go back to that as long as I live. I was playing Final Fantasy XIV Online with some friends and randomly one of the people in the
As you can imagine I’ve been super paranoid about my hearing/ears since my mental health crisis back in May when I had a tinnitus worsening due to chemo, I never want to go back to that as long as I live. I was playing Final Fantasy XIV Online with some friends and randomly one of the people in the
Masterfox66
in
Tinnitus UK
9 months ago
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Temozolomide Side Effects
My dad is on his 2nd cycle of TMZ (300mg)5 days on, 3 weeks off regime. He had GBM located on his left frontal lobe but due to size and depth could not be operated on. Therefore he had 3 weeks of radiotherapy along with 155mg daily TMZ. He has poor speech and his right arm is paralysed. However this
My dad is on his 2nd cycle of TMZ (300mg)5 days on, 3 weeks off regime. He had GBM located on his left frontal lobe but due to size and depth could not be operated on. Therefore he had 3 weeks of radiotherapy along with 155mg daily TMZ. He has poor speech and his right arm is paralysed. However this
Casper438
in
Glioblastoma Support
9 months ago
Stage 4
Hi just wanted to pop on and connect with others. I was diagnosed in March 2022, I’ve had 6 rounds of chemo and debulking surgery. Like many I was told it will come back 🤦♀️. So I decided to radically change my life (I didn’t have a healthy lifestyle prior to my diagnosis). There’s lots we can do to
Hi just wanted to pop on and connect with others. I was diagnosed in March 2022, I’ve had 6 rounds of chemo and debulking surgery. Like many I was told it will come back 🤦♀️. So I decided to radically change my life (I didn’t have a healthy lifestyle prior to my diagnosis). There’s lots we can do to
JacciJones
in
My Ovacome
9 months ago
diagnosed HGSOC stage 3A2
Hi everyone, I’m new to this group as recently diagnosed and currently having 6 sessions of chemo (paclitaxel & carboplatin) every 3 weeks, although just had a delay on my 3rd session as white blood count too low 🤦♀️ and awaiting genetic testing results. I just wondered if anyone else has same diagnosis
Hi everyone, I’m new to this group as recently diagnosed and currently having 6 sessions of chemo (paclitaxel & carboplatin) every 3 weeks, although just had a delay on my 3rd session as white blood count too low 🤦♀️ and awaiting genetic testing results. I just wondered if anyone else has same diagnosis
Schnauzer19
in
My Ovacome
9 months ago
Gem/ carbo
Hi Ladies I started first cycle of gem/ carbo mid September but haven’t been doing too well on it. I was pretty rough after both day 1 and day 8 infusion was even worse even though I’d fully expected it to be be ok. I’m now in hospital with pneumonia so have had day 1 of cycle 2 postponed twice. I
Hi Ladies I started first cycle of gem/ carbo mid September but haven’t been doing too well on it. I was pretty rough after both day 1 and day 8 infusion was even worse even though I’d fully expected it to be be ok. I’m now in hospital with pneumonia so have had day 1 of cycle 2 postponed twice. I
Barmycharm
in
My Ovacome
9 months ago
Conflicting MRI vs PSMA scans
Well it appears that the radiologist who did my MRI was overly cautious. The report said I had a met on my left pelvis, one on my right pelvis, one on my sacrum, additional cancer in my prostate region and sclerotic foci in my pelvic region. Traumatic. We followed that up with a PSMA scan 10 days
Well it appears that the radiologist who did my MRI was overly cautious. The report said I had a met on my left pelvis, one on my right pelvis, one on my sacrum, additional cancer in my prostate region and sclerotic foci in my pelvic region. Traumatic. We followed that up with a PSMA scan 10 days
icanwintwice
in
Advanced Prostate Cancer
9 months ago
how to improve appetite/consume more calories. Pls help!
My heart is broken. My dad’s cancer had progressed, he has started chemo but overall is very unwell. He’s lost almost 30 pounds in the last few months and is having a lot of pain. We have to help him with getting out of the bed and at times putting on his shoes and clothes. All the pain medicine he used
My heart is broken. My dad’s cancer had progressed, he has started chemo but overall is very unwell. He’s lost almost 30 pounds in the last few months and is having a lot of pain. We have to help him with getting out of the bed and at times putting on his shoes and clothes. All the pain medicine he used
StayingSTRNG
in
Advanced Prostate Cancer
9 months ago
Breast cancer stage 4 with lung and bone metastatic
hello I recently found out that my mother has stage 4 breast cancer(her2 +ve). We stay in Bangalore and I wanted to contact the best oncologist in Bangalore . We went one to macs clinic in Jayanagar they asked us to start with chemo by including herceptin and docetexal. the cost of chemo will be
hello I recently found out that my mother has stage 4 breast cancer(her2 +ve). We stay in Bangalore and I wanted to contact the best oncologist in Bangalore . We went one to macs clinic in Jayanagar they asked us to start with chemo by including herceptin and docetexal. the cost of chemo will be
Srikalakm
in
Breast Cancer India
9 months ago
any tips for Caelyx side effects (pdrh
I’m stage 3c High grade serous I had debunking surgery an started my first attempt at chemo in September I’m allergic to paclitaxel so they are going to try Caelyx (pegylated liposomal dioxyrubicin). Alongside the carboplatin I’ve read a lot about side effects has anyone gif any tips for managing
I’m stage 3c High grade serous I had debunking surgery an started my first attempt at chemo in September I’m allergic to paclitaxel so they are going to try Caelyx (pegylated liposomal dioxyrubicin). Alongside the carboplatin I’ve read a lot about side effects has anyone gif any tips for managing
Beatbigc
in
My Ovacome
9 months ago
Clinical trials
Hi, looking for advice on trials, please. I was diagnosed stage IIIc in Nov 2020. Debulking surgery, then 6 cycles of taxol and Carboplatin - the latter 3 with bevacizumab. Followed by 18 months of Olaparib which then stopped working late last year. At the beginning of this year, I started on Caelyx
Hi, looking for advice on trials, please. I was diagnosed stage IIIc in Nov 2020. Debulking surgery, then 6 cycles of taxol and Carboplatin - the latter 3 with bevacizumab. Followed by 18 months of Olaparib which then stopped working late last year. At the beginning of this year, I started on Caelyx
testarossa71
in
My Ovacome
9 months ago
Abemaciclib
Hi, I’ve just commenced Abemaciclib as part of my adjuvant treatment for high risk breast cancer (grade 3, stage 2a, 2 lymph nodes involved). I’ve already had lumpectomy, lymph node clearance, 6 rounds of chemotherapy, having IV bisophates 6 monthly for 3 years and I’m currently taking Letrozole and
Hi, I’ve just commenced Abemaciclib as part of my adjuvant treatment for high risk breast cancer (grade 3, stage 2a, 2 lymph nodes involved). I’ve already had lumpectomy, lymph node clearance, 6 rounds of chemotherapy, having IV bisophates 6 monthly for 3 years and I’m currently taking Letrozole and
Multigravida1956
in
SHARE Breast Cancer Support
10 months ago
Has somebody "steped back" to a former drug?
I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good friend(*) will have a talk with her Oncologist and she has the follwoing idea/question: (*) MBC since Okt 21: HER2 +, mets in bones, lymph nodes
I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good friend(*) will have a talk with her Oncologist and she has the follwoing idea/question: (*) MBC since Okt 21: HER2 +, mets in bones, lymph nodes
deHans
in
SHARE Metastatic Breast Cancer
10 months ago
Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
10 months ago
My Cancer Reality Check
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
10 months ago
BAT Patient Guide
I was re-reading Dr. Denmeade's BAT Patient Guide (well worth checking out) and came across the following quote near the end. Thus far, Denmeade seems to have done his own, smaller trials. "A larger randomized study comparing overall patient survival following treatment with sequential BAT → Xtandi
I was re-reading Dr. Denmeade's BAT Patient Guide (well worth checking out) and came across the following quote near the end. Thus far, Denmeade seems to have done his own, smaller trials. "A larger randomized study comparing overall patient survival following treatment with sequential BAT → Xtandi
dhccpa
in
Advanced Prostate Cancer
10 months ago
Good News
Got good news yesterday. My oncologist called. I am responding well to treatment & my lymph nodes have shrunk. Going forward after last chemo session I will be put on a tablet. Post mainly for new people. I'm stage 4, happy to take what ever good news comes my way 💜
Got good news yesterday. My oncologist called. I am responding well to treatment & my lymph nodes have shrunk. Going forward after last chemo session I will be put on a tablet. Post mainly for new people. I'm stage 4, happy to take what ever good news comes my way 💜
Pixiepurple
in
My Ovacome
10 months ago
Prostatectomy
I was scared to death to hear that I had cancer. My Father died from it. There was no offer for chemotherapy or radiation. I was told that my doctor needed more experience with the DaVinci robot and I was chosen. I died that day and was traumatized beyond traumatized and purposely given ecoli and regretted
I was scared to death to hear that I had cancer. My Father died from it. There was no offer for chemotherapy or radiation. I was told that my doctor needed more experience with the DaVinci robot and I was chosen. I died that day and was traumatized beyond traumatized and purposely given ecoli and regretted
4OyrsPOZ-PC-KC-SBM
in
Prostate Cancer And Gay Men
10 months ago
Chemotherapy or Pluvicto
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
Islandboy2021
in
Advanced Prostate Cancer
10 months ago
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