I am on a roller coaster ride that seems to keep getting worse going down.
I am trying to find something positive to grab on to. Some hope.
In 5/24 they saw three nodes in my lung lymph nodes that were swollen or cancerous.
Took 4 months to get a pet scan which just showed they grew in size.
So got a lung biopsy. That confirmed malignant adenocarcinoma.
Around same time I get prostrate biopsy. That confirmed apc.
So I felt surely stage 4 pc. Even though no signs of pc spreading below. Not in bones. Not in lymph nodes below.
turns out based on latest ihc staining from the lung biopsy, the source is adenocarcinoma of the lung but they are not sure.
The lung nodes are increasing in size. And volume. In 5/24 there were 3. The subcarina one was 1.9 cm. Now it is 3.6 cm and growing. I read now 5 nodes.lung dr stated still 3. Two on right side and the one 3.6 in the sub-carina mediastinal lymph nodes. He stated they all in the lymph nodes. I guesswhy they unsure where the source is.
Have a brain mri wed 9/12. Meet with new lung oncologist at utsw on 9/11.
I am hoping we can start treating the lungs and hold it back. Better eradicate the lung tumors.
is there any chance to eradicate cure the lung nodes?
seems I am stage2 in the lung. Not that it matters.
I am / was an avid runner. My lungs were always clear and wide open. Most important to me.
To depressing now I can’t run. That was the most important thing in my life was running. I loved to do it. It kept me healthy and so happy and strong.
I know it could be worse. I am afraid that is where I am headed. With no way to stop, head off.
I am really down and could use some words of encouragement, some positive thoughts and signs, if any.
thankyou and sorry to you all for even bringing up.
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Cp014
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If you can do it, get to the USA and submit your packet to MED ANDERSON in Houston, OR Duke in Durham, NC, OR Johns Hopkins in Baltimore, or Mass. General in Boston. You need to escape the NHS
Nhs? I am also seeing mo at md Anderson. Saw them first time two weeks ago. He put me on casodex and duterastide for the pc. Spoke to him after we got lung biopsy results. He/md anderson working w my utsw folks. They both under ut. I just started seeing utsw and mda past two weeks as I dropped the single onco who done nothing for four months but ignore and reject my bcbs calls for the pet scan approval.
TiaDave, Cp014 is already in America so isn't under the British NHS
Cp014, I'm really sorry I don't understand your abbreviations except guessing that pc is prostate cancer. We're all patients here, no medics however hopefully someone will be along soon who knows more about your cancerous nodules &/or pc.
I believe there is also a forum on HealthUnlocked for discussion of pc and there us the RoyCastle site for lung cancers.
I hope you'll accept all the treatment offered to you in America - my husband had prostate cancer but refused medical intervention believing he could cure himself with willpower & whacky potions that cost the earth. Sadly it went to his bones of course without treatment. I think he was hanging on to keep his masculinity
Wishing you all the very best. P
NHS is our British health system, it's free however its broken and in a proper muddle (it's paid for by our taxes).
I will clarify PC = prostrate cancer. I have apc. Aggressive prostrate cancer.
I am in the PC board and everyone has been so helpful and invaluable.
Unfortunately they can't really help, comment on my lung cancer. Initially it was assumed being I had apc, that it was PC that met to my lungs.
Just got lung biopsy results this week that indicate it is NOT PC.
Appears to be lung cancer. The PC even though aggressive does not appear to have spread beyond the prostate yet. Yet. Prostrate mo put me on casodex while we figure out what do, treat the lungs.
I reach out to this board w no expectations. I am just lost and o erwhelmed again. As I was when I got my prostrate biopsy results a month ago. Tne PC board has been invaluable to me. Hoping I can get similar support, help here but no expectations. I thank you all!
I completely understand how scary and overwhelmed you must be feeling, anyone would. I'm glad you found the PC forum. We did find a wonderful private doctor in London who was both a medical doctor and excelled in cancer treatment holistically. He advised our Bob to cut out all sugars (because cancer thrives on it), to eat only organic foods and cut out all crap foodstuffs ie factory made food, white bread, white rice, white pasta (Bob had always been addicted to chocolate so that was hard).
With dodgy lungs we always say exercise to the best of your ability, healthy weight, healthy diet, breathing exercises (on youtube) for lung stamina but in all honesty I have no idea what's advisable with the nodules and PC.
A few members here have or have had cancerous nodules so hopefully they'll be along after the weekend. I believe some treated successfully with radiotherapy. In England the best centres of excellence are university hospital, I expect it's the same in America. Once again, all the very best to you
Cancer is overwhelming by it's verynature and existance. I have bladder cancer and it changes from low grade to high grade - With me BCG worked as they wanted ti take my bladder ymph nodes and more, but the BCG made my cancer low grade. I just have a cystoscopy and te cancer is back,they will remove it, not importand in itself that it returned, it matters what the viopsie says. low grade still or back to high grade.
I have a large benign prostate, my father died from that years ago, but they did not have TURP then, now it's more conroable than Bladder Cancer,
I had treatmentstopped becuase I have lung nodules they thought cancer in lung, for now it seems to be clear, that did cause me more worry than anything.
There is good treatmenf here is the UK for prostate cancer, when I was in hospital having tumours removed, there was a lot of prostate cancer patients - TURP op for prostate and TURBT for Bladder.
I don'y know what PC means. Good luck I am sure you will get the best treatment.
I know v v little but a very old (80yrs) friend had his prostate removed (Mexican surgeon in Hamburg)- and my uncle when 76 had keyhole surgery as he had an aggressive pc. ( Birmingham hospital in Uk)
May either be an option for you ?
I hope you find some good news as it’s a great deal to handle both at the same time.
Hope you don’t mind my suggestion, Novena prayer and St Jude. My friend had lung nodules but he was stage four, he still continued for a very long time a very happy healthy man.
No need to apologise, the folks on here are happy to help if they can. I`ve not much to offer only to say take as much exercise as you can and try to get hold of a mcmillan nurse. They are not just for end of life care but have a wealth of information to help those with cancer. Best wishes, chris.
You've come to the right place for support! We may not all have experience of lung cancer, so may not be able to help with the specifics, but I feel sure that the overwhelming love and kindness that you will get from folks on here will help you along while you find out what the future holds.
Sending you virtual hugs in bucket loads! ((((( ❤️ )))))
My son in law had prostrate cancer and when diagnosed it was removed straight away. I think he was luckly it was caught early. He is being checked regularly to ensure it hasn't come back. Can't advise on the lung cancer and would query with your doctor on timelines for treatment. Please don't lose hope , I can understand your worries, being hit with a double whammy would make most of us go under. Do you have family around that can help you through this , I hope so. There are people on here that have lung cancer that perhaps can advise who I am sure will come along shortly x
Everyone is entitled to feel sorry for themselves occasionally, especially when a previously healthy lifestyle has been turned upside down. I can't advise on cancers except to say that my 2 brothers had different types of prostate cancer and both were treated successfully. Lots of people on here will be rooting for you and wishing you all the best.
i don’t know anything about either type of cancer you have but hope and pray they can be treated and you get treatment started as soon as possible and that neither cancer has spread.
May I ask, why you can no longer go running when you felt that it was so good for you? Apologies that I don't have any experience in either of your cancers so I am just trying to understand?
I am sorry to hear of your illnesses. I don't have lung cancer so I can't feel what you are feeling, but it sounds like you are getting the care your condition needs. I have pulmonary fibrosis myself and Barrett's esophagus with strictures. They think the acid reflux could be causing the scarring in my lungs. I do have one nodule that has grown slightly in the last year, but it's still very small. I wish you well and will pray for you.
hi never ever feel that you are been selfish or sorry for your self ...we all feel like that at some point after having all that is thrown at us on this forum that what this is all about ....3 yrs ago l was told over the phone by a gp that l had lung cancer l was beside my self ..second time of having cancer too however after a few weeks later had to have biopsy on the lung and weeks later ct scans ect ..just over 2 months later l had the op which was done via vat mine was also stage 2 and lymph nodes removed still been taken care off every 6 months my tumour was 5cm ....l appreciate all else that is going on with you isnt helping either l sincerely hope you can see some light at the end of the tunnel eventually
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Respiratory Clinic referral - SCARED I HAVE LUNG CANCER!
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just found out i have lung cancer
