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None of my family message me.
I deleted Facebook around a year ago, and after that I have felt very isolated. During that period of time there has been a lot of introspection and I have noticed that I never receive messages from family members. It is always me sending messages. And then they often stop responding even if I am
I deleted Facebook around a year ago, and after that I have felt very isolated. During that period of time there has been a lot of introspection and I have noticed that I never receive messages from family members. It is always me sending messages. And then they often stop responding even if I am
davidthecoder
in
Anxiety and Depression Support
8 months ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
10 months ago
The paradigm has shifted - castrate resistance.
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
fireandice123
in
Advanced Prostate Cancer
6 months ago
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Low B6... taking a complex with pyridoxine which obviously doesn't suit
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
TiggerMe
in
Thyroid UK
1 year ago
CBD - my Mum's journey so far
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Lalamccoy
in
PSP Association
10 months ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
10 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
5 months ago
Life Expectancy
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
godhelpus
in
Advanced Prostate Cancer
6 months ago
Effect of Baseline T on T-Recovery Time
Here's a plot of % of Men who recover their baseline testosterone after stopping ADT (Lupron), as a function of ADT duration for two different groups: (A) men who had a
normal
baseline testosterone (red line), and (B) men who had a
low
baseline testosterone (green line). Increasing the
Here's a plot of % of Men who recover their baseline testosterone after stopping ADT (Lupron), as a function of ADT duration for two different groups: (A) men who had a
normal
baseline testosterone (red line), and (B) men who had a
low
baseline testosterone (green line). Increasing the
janebob99
in
Prostate Cancer Network
6 months ago
Testosterone Recovery for 50% of Men
Here's an updated plot of Testosterone recovery time for 50% of men after stopping Lupron ADT, as a function of ADT duration. For ADT durations less than 20 months, the curve is basically linear with a slope = 1.0 (green line), meaning that the Recovery Time for 50% of men is roughly equal to the ADT
Here's an updated plot of Testosterone recovery time for 50% of men after stopping Lupron ADT, as a function of ADT duration. For ADT durations less than 20 months, the curve is basically linear with a slope = 1.0 (green line), meaning that the Recovery Time for 50% of men is roughly equal to the ADT
janebob99
in
Prostate Cancer Network
6 months ago
Testosterone Recovery After ADT - Updated Plot
Thanks to Tall_Allen for providing lots of extra data for this plot: https://www.prostatecancer.news/2023/04/intermittent-adt.html You can easily extrapolate the curves to find out your recovery time. ADT duration of 3-9 months fall roughly on the same curve, and ADT of 18-24 roughly fall on the same
Thanks to Tall_Allen for providing lots of extra data for this plot: https://www.prostatecancer.news/2023/04/intermittent-adt.html You can easily extrapolate the curves to find out your recovery time. ADT duration of 3-9 months fall roughly on the same curve, and ADT of 18-24 roughly fall on the same
janebob99
in
Prostate Cancer Network
6 months ago
Help! on Pro-stap, tibolone HRT brought back endo pain!? Made me so unwell - anyone relate??
pro-stap monthly injections started November without HRT. Reduced lot of the endo pain (although made my stomach issues/sensitivity to food way worse). Decided to start tibolone HRT 10 weeks into the injections and it caused awful period/endo pain, spotting, flu type symptoms on and off. Only lasted
pro-stap monthly injections started November without HRT. Reduced lot of the endo pain (although made my stomach issues/sensitivity to food way worse). Decided to start tibolone HRT 10 weeks into the injections and it caused awful period/endo pain, spotting, flu type symptoms on and off. Only lasted
Flewks
in
Endometriosis UK
6 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
5 months ago
RANDOMIZED CONTROLLED TRIAL EVALUATING THE CARDIO-METABOLIC EFFECTS OF LEVOTHYROXINE AND LIOTHYRONINE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Seasonal Affective Disorder and photosensitive retinal ganglion cells
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
Tarsius
in
Anxiety and Depression Support
10 months ago
Testosterone recovery after stopping ADT - 3
This plot shows the % of men who recovered their original testosterone level after stopping Lupron ADT, plotted versus the time (months) after stopping ADT, for three different durations of ADT (4, 6-12, or 24 months). The curves show that a short course of ADT allows men to recover their testosterone
This plot shows the % of men who recovered their original testosterone level after stopping Lupron ADT, plotted versus the time (months) after stopping ADT, for three different durations of ADT (4, 6-12, or 24 months). The curves show that a short course of ADT allows men to recover their testosterone
janebob99
in
Prostate Cancer Network
6 months ago
Testosterone Recovery after stopping ADT -2
This plot shows the time after stopping Lupron ADT for the testosterone to recover to the original level for 50% of men, plotted versus Duration of ADT treatment (4 or 24 months). The longer the duration of ADT, the longer it takes to recover the original testosterone level, which makes sense. For
This plot shows the time after stopping Lupron ADT for the testosterone to recover to the original level for 50% of men, plotted versus Duration of ADT treatment (4 or 24 months). The longer the duration of ADT, the longer it takes to recover the original testosterone level, which makes sense. For
janebob99
in
Prostate Cancer Network
6 months ago
Testosterone Recovery after stopping ADT -1
Here's the first of four plots showing testosterone recovery after stopping Lupron ADT. The testosterone recovers quickest in the first 12 months, but then flattens out after that.
Here's the first of four plots showing testosterone recovery after stopping Lupron ADT. The testosterone recovers quickest in the first 12 months, but then flattens out after that.
janebob99
in
Prostate Cancer Network
6 months ago
Thoughts on Denosumab in my case
MO is suggesting Denosumab after my Dexa scan. Bone density normal in spine, osteopenia in right hip and osteoporosis on one part of left hip. I am wondering if with a -2.7 it is possible to control/improve with supplements and weight bearing exercises? What are you taking? Have added calcium. The
MO is suggesting Denosumab after my Dexa scan. Bone density normal in spine, osteopenia in right hip and osteoporosis on one part of left hip. I am wondering if with a -2.7 it is possible to control/improve with supplements and weight bearing exercises? What are you taking? Have added calcium. The
Hope49823
in
Advanced Prostate Cancer
6 months ago
Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
10 months ago
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