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Brachyboost and PSA progression free survival question
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
EvFC
in
Advanced Prostate Cancer
5 months ago
ADT and bone loss lost opportunity !?
there is /was so much to think about when I got the Gleason 9 diagnosis after 18 months of being told don’t worry it not high risk and so had failed HIFU. Stupid of me ! I got, with great difficulty a DEXA scan one month after starting LHRH agonist goserelin. No one told me I needed it, and given
there is /was so much to think about when I got the Gleason 9 diagnosis after 18 months of being told don’t worry it not high risk and so had failed HIFU. Stupid of me ! I got, with great difficulty a DEXA scan one month after starting LHRH agonist goserelin. No one told me I needed it, and given
SimMartin
in
Advanced Prostate Cancer
5 months ago
Gasoline?
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
VoxHope
in
Advanced Prostate Cancer
5 months ago
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Long Term ADT HT
Edit to question...I failed to add that 3 months ago his MO prescribed Gabapentin 300mg for his hot flashes. He takes one pill at night. Thank you, and thank you for the tremendous responses Can anyone tell me if the SE from ADT HT plateau at some point??My husband is in year four of Lupron, Abi+Pred
Edit to question...I failed to add that 3 months ago his MO prescribed Gabapentin 300mg for his hot flashes. He takes one pill at night. Thank you, and thank you for the tremendous responses Can anyone tell me if the SE from ADT HT plateau at some point??My husband is in year four of Lupron, Abi+Pred
JWPMP
in
Advanced Prostate Cancer
5 months ago
Prostap
Hi, I've had one prostap injection. Things were going great, I thought they might be the best thing ever.However my anxiety has crept in. My second injection was due today but I cancelled it. I've had one heavy bleed last week. I didn't have hrt with it, it was there waiting for me if I needed it.
Hi, I've had one prostap injection. Things were going great, I thought they might be the best thing ever.However my anxiety has crept in. My second injection was due today but I cancelled it. I've had one heavy bleed last week. I didn't have hrt with it, it was there waiting for me if I needed it.
Charl-
in
Endometriosis UK
5 months ago
Please advice
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
old64horn
in
Advanced Prostate Cancer
4 months ago
PSMA scan
I spoke with RO and we are going to radiate the autocaval lymph node lit up per the above scan. My PSA was .027. I hope this knocks it out. I am also contemplating ADT but unsure which would work first or second generation.
I spoke with RO and we are going to radiate the autocaval lymph node lit up per the above scan. My PSA was .027. I hope this knocks it out. I am also contemplating ADT but unsure which would work first or second generation.
Howard53545
in
Advanced Prostate Cancer
5 months ago
anyone else struggling with high levels on medication?
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
Carinagravesdisease
in
Thyroid UK
5 months ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
5 months ago
rising PSA and 'light' advancement of mets in hip bones. Diagnosed stage 4 in March 2021.
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Newdiag-NC
in
Advanced Prostate Cancer
5 months ago
estradiol cream
I know this was discussed 8 years ago but has it changed for the better regarding reducing the ADT SE? I am on ADT for 2 + years and going on Xtandti this month. I want to control the SE as best I can. Great diet and heavy exercise every day. Also stopped the Vit Cal & D.
I know this was discussed 8 years ago but has it changed for the better regarding reducing the ADT SE? I am on ADT for 2 + years and going on Xtandti this month. I want to control the SE as best I can. Great diet and heavy exercise every day. Also stopped the Vit Cal & D.
Stevegr
in
Advanced Prostate Cancer
5 months ago
Should I increase T4 or T3?
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
elkewilliams
in
Thyroid UK
5 months ago
What to expect with mets and no treatment
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
Nwdx
in
Advanced Prostate Cancer
5 months ago
Eliminating ADT.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Stevegr
in
Advanced Prostate Cancer
5 months ago
Treatment Recommendation for father with advanced PCA to regional lymph nodes
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
MissMel2024
in
Advanced Prostate Cancer
5 months ago
Made a desicion, went private
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
TwigwithaWig
in
Thyroid UK
8 months ago
recurrence after lobectomy
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Bibicata
in
The Roy Castle Lung Cancer Foundation
10 months ago
Advice Please
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
CecilyParsley
in
Pelvic Pain Support Network
5 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
5 months ago
Stopping Zoladex & HRT
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
x_b_x
in
Endometriosis UK
5 months ago
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