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Rawr!
I don't know what else to say, laughing. Insert big fat sigh as well. I have zero understanding why my labs continue to be so off. The endocrinologist is going to accuse me of non-compliance yet again (I will go NOPE, NOPE & NOPE.) I take those little buggers in the middle of the night like a champ.
I don't know what else to say, laughing. Insert big fat sigh as well. I have zero understanding why my labs continue to be so off. The endocrinologist is going to accuse me of non-compliance yet again (I will go NOPE, NOPE & NOPE.) I take those little buggers in the middle of the night like a champ.
Litatamon
in
Thyroid UK
10 months ago
5 Year old with asthma
Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age
Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age
Timt17
in
Asthma Community Forum
2 years ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
10 months ago
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Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
10 months ago
My Blood results on NDT
Hi, can someone tell me if my bloods are ok. I have hypothyroidism and been taking thyroid-s for 2 months. 1and 1/2 grain am and 1 grain pm.
Hi, can someone tell me if my bloods are ok. I have hypothyroidism and been taking thyroid-s for 2 months. 1and 1/2 grain am and 1 grain pm.
TheresaGreen1967
in
Thyroid UK
10 months ago
Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
10 months ago
Extreme Hair Loss Advice
Hello All, While I'm waiting to see a dermatologist and a doctor about my hair loss, I would really appreciate some extra advice from all the beyond amazing people of this forum. I've always had some hair loss since having hypo, but nothing like I'm losing now, ever! It's so extreme, I don't even
Hello All, While I'm waiting to see a dermatologist and a doctor about my hair loss, I would really appreciate some extra advice from all the beyond amazing people of this forum. I've always had some hair loss since having hypo, but nothing like I'm losing now, ever! It's so extreme, I don't even
Juliet_22
in
Thyroid UK
10 months ago
ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
10 months ago
Oligomets and SBRT: "Whack a Mole"?
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
FrankyB4
in
Advanced Prostate Cancer
10 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
10 months ago
pBAT update after two cycles.
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
KocoPr
in
Fight Prostate Cancer
10 months ago
Recommendations for an endocrinologist who will prescribe NDT
I would be very grateful for any recommendations by private message for endocrinologists who will prescribe NDT, as there are only a couple on the Thyroid UK list. I live in S W London, but location wouldn’t matter if they do online consultations. Many thanks.
I would be very grateful for any recommendations by private message for endocrinologists who will prescribe NDT, as there are only a couple on the Thyroid UK list. I live in S W London, but location wouldn’t matter if they do online consultations. Many thanks.
bluejourney
in
Thyroid UK
10 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
10 months ago
ADT for a year?
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Photographerhere
in
Prostate Cancer Network
10 months ago
Cortisone Injections?
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
jfoesq
in
Advanced Prostate Cancer
10 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
10 months ago
Acupuncture and Hot Flashes
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Huzzah1
in
Advanced Prostate Cancer
10 months ago
Is Adrenal Fatigue caused by ADT/Abiraterone?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Derf4223
in
Advanced Prostate Cancer
10 months ago
i can’t lose weight & blood results. Advice please?
Hi Team I’ve been feeling pretty good in myself on my current dose of 3 grains of NDT at 5:30am 10mcg T3 at 12 and 1.5 grains at 3pm. i can exercise and generally stay awake until bedtime (😂 no more afternoon naps). But i cannot shift my weight i gained nearly 10% of my body weight and it’s really
Hi Team I’ve been feeling pretty good in myself on my current dose of 3 grains of NDT at 5:30am 10mcg T3 at 12 and 1.5 grains at 3pm. i can exercise and generally stay awake until bedtime (😂 no more afternoon naps). But i cannot shift my weight i gained nearly 10% of my body weight and it’s really
PixieElv
in
Thyroid UK
10 months ago
anaemia and ADT
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
SimMartin
in
Advanced Prostate Cancer
10 months ago
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