Search
Search
About
Log in
Join
Experiences with
Nuprin
Posts
Communities
3,964 public posts
Filter results
Prognostication Requested
My current situation: PSMA scan found 2 hot nodes in the lower retroperitoneum/para-aortic region. This happened twice before and each time a 3-month or so Lupron shot and SBRT bought me 12-24 free months. So, once again,I was happy that no bone nor organs lit up (always a fear that my scan will light
My current situation: PSMA scan found 2 hot nodes in the lower retroperitoneum/para-aortic region. This happened twice before and each time a 3-month or so Lupron shot and SBRT bought me 12-24 free months. So, once again,I was happy that no bone nor organs lit up (always a fear that my scan will light
compiler
in
Advanced Prostate Cancer
1 year ago
Should I be doing more.
Diagnosed 11-9-21. PSA 1998, ALK PHOS 750, Gleason 4+5. Lots of mets mostly bone. 11-17-21 started treatment. 3 month Lupron injection followed 2 days later with 4 month Zometa and 1st of 6 cycles of docetaxel. At 2nd chemo PSA 301, ALK P 1730. At completion of chemo 4-8-22 PSA 2.45, ALK P 280. Today
Diagnosed 11-9-21. PSA 1998, ALK PHOS 750, Gleason 4+5. Lots of mets mostly bone. 11-17-21 started treatment. 3 month Lupron injection followed 2 days later with 4 month Zometa and 1st of 6 cycles of docetaxel. At 2nd chemo PSA 301, ALK P 1730. At completion of chemo 4-8-22 PSA 2.45, ALK P 280. Today
Letsfish
in
Advanced Prostate Cancer
1 year ago
No Bone Metastisis
I just completed the PSMA 68 scan that showed no more bone metastis. I'm being treated at UCSF. My doc said I have a choice of going off my meds of Erleada and Lupron. My concern is if I elect this option and the cancer reappears have I created a worse problem where restarting the meds may no longer
I just completed the PSMA 68 scan that showed no more bone metastis. I'm being treated at UCSF. My doc said I have a choice of going off my meds of Erleada and Lupron. My concern is if I elect this option and the cancer reappears have I created a worse problem where restarting the meds may no longer
Ldtyson
in
Advanced Prostate Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Michael T Schweizer & BAT [Bipolar Androgen Therapy
I was looking at BAT-related studies involving Dr. Schweizer. The first was as lead author for Denmeade (2015). Most BAT research has been performed on men with CRPC [Castrate-Resistant Prostate Cancer]. The U.S. statistics for 2022 were 268,490 new cases, with 34,500 deaths. The deaths being largely
I was looking at BAT-related studies involving Dr. Schweizer. The first was as lead author for Denmeade (2015). Most BAT research has been performed on men with CRPC [Castrate-Resistant Prostate Cancer]. The U.S. statistics for 2022 were 268,490 new cases, with 34,500 deaths. The deaths being largely
pca2004
in
Fight Prostate Cancer
1 year ago
Brittle Bones
62 y/o aPC with Mets. I’ve been on the Lupron, Abiraterone, and Prednisone treatment for about 7 months. I just broke a rib leaning on a chair. Do these drugs cause your bones to become easier to break? Luckily I get an MRI and the PSMA PET Scan tomorrow. Should be interesting to see I hope. Thoughts
62 y/o aPC with Mets. I’ve been on the Lupron, Abiraterone, and Prednisone treatment for about 7 months. I just broke a rib leaning on a chair. Do these drugs cause your bones to become easier to break? Luckily I get an MRI and the PSMA PET Scan tomorrow. Should be interesting to see I hope. Thoughts
OFPF16
in
Advanced Prostate Cancer
1 year ago
Should I worry about testosterone increase?
My father has been on Lupron for about a year. My father, who had oligometastatic prostate cancer, underwent robotic surgery in September. Before surgery,
PSA was 0.0311 and total testosterone was <0.025.
Two months after the surgery,
PSA was undetectable b
ut total
testosterone was 0.0707
My father has been on Lupron for about a year. My father, who had oligometastatic prostate cancer, underwent robotic surgery in September. Before surgery,
PSA was 0.0311 and total testosterone was <0.025.
Two months after the surgery,
PSA was undetectable b
ut total
testosterone was 0.0707
Alicee92
in
Advanced Prostate Cancer
1 year ago
Substitute Eplerenone for Prednisone with Zytiga?
I am taking Eligard + Zytiga + Prednisone (5mg). I would like to stop the prednisone and substitute eplerenone (Inspra), if that is viable. I found this exchange from earlier this year from Gearhead, with comments from Tango65 and T_A, among others. Has anyone stopped prednisone altogether in
I am taking Eligard + Zytiga + Prednisone (5mg). I would like to stop the prednisone and substitute eplerenone (Inspra), if that is viable. I found this exchange from earlier this year from Gearhead, with comments from Tango65 and T_A, among others. Has anyone stopped prednisone altogether in
garyjp9
in
Advanced Prostate Cancer
1 year ago
Radiation a second time? Recurrent PC
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
wat380bjw
in
Advanced Prostate Cancer
1 year ago
How long will "4 month" lupron injection "last"
I received a 4 month lupron injection on 8/15/22 with salvage radiation to prostate bed and pelvic lymph nodes. (see profile for more details) My question is how long will the lupron keep my testosterone at castrate levels (<50 ng). Note my pre lupron injection testosterone level was 906 on 7/22/22
I received a 4 month lupron injection on 8/15/22 with salvage radiation to prostate bed and pelvic lymph nodes. (see profile for more details) My question is how long will the lupron keep my testosterone at castrate levels (<50 ng). Note my pre lupron injection testosterone level was 906 on 7/22/22
FlyJ
in
Advanced Prostate Cancer
1 year ago
Vacation
Jim's doctors are going to talk to him about a treatment vacation. Is this from Lupron & Abiraterone, or just one of them? He's been <0.04 for over a year and ultra sensitive shows <0.02. He's very hesitant to stop something that's working. A vacation would be nice, but I'm with him. We are going
Jim's doctors are going to talk to him about a treatment vacation. Is this from Lupron & Abiraterone, or just one of them? He's been <0.04 for over a year and ultra sensitive shows <0.02. He's very hesitant to stop something that's working. A vacation would be nice, but I'm with him. We are going
JWPMP
in
Advanced Prostate Cancer
1 year ago
Follow Up
Hi guys, I know you will remember the farce that was my treatment - so no no need to do 10 A4 worth of words. Just say last year I never got a follow up - until almost a year later. This time I had my BCG treatment for BC and a week Wednesday I have a Cystoscopy to see if the treatment has worked
Hi guys, I know you will remember the farce that was my treatment - so no no need to do 10 A4 worth of words. Just say last year I never got a follow up - until almost a year later. This time I had my BCG treatment for BC and a week Wednesday I have a Cystoscopy to see if the treatment has worked
Ern007
in
Lung Conditions Community Forum
1 year ago
No SOC treatment. Metastatic lymph nodes by PSMA-PET. Rising PSA. Bone/CT scans neg. Waiting to die.
The title may seem over-dramatic. It does, however, present the present state of my PCa. I have written more than once about being Lupron ADT sensitive but stopped after first shot due to severe intolerable increase in depression. I am not eligible (SOC) for other therapies because they all require
The title may seem over-dramatic. It does, however, present the present state of my PCa. I have written more than once about being Lupron ADT sensitive but stopped after first shot due to severe intolerable increase in depression. I am not eligible (SOC) for other therapies because they all require
maggiedrum
in
Advanced Prostate Cancer
1 year ago
Skin rash / Lupron
In the last weeks I experience skin rash with itching. It started in body areas where I sweat while exercising and now is more or less all over. I read that rash is a SE of Lupron. Who else is/was experiencing this and what are potential detours? Any ideas?
In the last weeks I experience skin rash with itching. It started in body areas where I sweat while exercising and now is more or less all over. I read that rash is a SE of Lupron. Who else is/was experiencing this and what are potential detours? Any ideas?
Nusch
in
Advanced Prostate Cancer
1 year ago
End of treatment and worried
Good morning . I have been a member since 2020 , but I read more than I write. However, I would like some feedback on my situation. First a review: I had requested a PSA test from my GP for several years. His response after a non remarkable DRE was that PSA tests were useful if he felt any abnormalities
Good morning . I have been a member since 2020 , but I read more than I write. However, I would like some feedback on my situation. First a review: I had requested a PSA test from my GP for several years. His response after a non remarkable DRE was that PSA tests were useful if he felt any abnormalities
Guitarwolf
in
Advanced Prostate Cancer
1 year ago
question about Mets
hi everyone- I wrote in here a few days ago regarding my father with his Er+ PR+ MBC that he was diagnosed with in June of this year. He has been on letrozole lupron Ibrance and xjeva since June. His first PET scan 9/14 showed no evidence of active disease. my father is very active living in Florida
hi everyone- I wrote in here a few days ago regarding my father with his Er+ PR+ MBC that he was diagnosed with in June of this year. He has been on letrozole lupron Ibrance and xjeva since June. His first PET scan 9/14 showed no evidence of active disease. my father is very active living in Florida
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Zytiga failure after 4 years what now
Hi Diagnosed in 2016 had SBRT . Life good 2 years and found 1 met in lung . Did Lupron/zytiga PSA drop to under .1 for 2 years. Requested a vacation . 15 months later PSA rises do PSMA . One met on vertibrae only . Did SBRT and doc said let’s do lung met at the same time even though it’s not showing
Hi Diagnosed in 2016 had SBRT . Life good 2 years and found 1 met in lung . Did Lupron/zytiga PSA drop to under .1 for 2 years. Requested a vacation . 15 months later PSA rises do PSMA . One met on vertibrae only . Did SBRT and doc said let’s do lung met at the same time even though it’s not showing
Db999
in
Advanced Prostate Cancer
1 year ago
Docetaxel/Taxotere. 2nd time in 3 years. It's a no go this time. No benefit after 3 infusions.
A cancer work around making a good treatment plan not workable. Good news is although PSA kept rising during infusions scans show no new growth but no shrinkage either. Same old diffuse bone mets I have always had. Current PSA at 80. Brief history PSA 11/2019--1,621. Bone mets diffuse from skull
A cancer work around making a good treatment plan not workable. Good news is although PSA kept rising during infusions scans show no new growth but no shrinkage either. Same old diffuse bone mets I have always had. Current PSA at 80. Brief history PSA 11/2019--1,621. Bone mets diffuse from skull
CAMPSOUPS
in
Advanced Prostate Cancer
1 year ago
Orgovyx Side Effects Query
In the past, Lupron SE seemed to start with hot flashes at about 4-6 weeks. I know Orgovyx drives the T down MUCH faster. Can I assume that the SE will also arise much faster? (Just started on it) Mel
In the past, Lupron SE seemed to start with hot flashes at about 4-6 weeks. I know Orgovyx drives the T down MUCH faster. Can I assume that the SE will also arise much faster? (Just started on it) Mel
compiler
in
Advanced Prostate Cancer
1 year ago
Does Casodex impact the results from PSMA PET Scan ?
Does Casodex impact the results from PSMA PET Scan ? My uncle who just got diagnosed gleason 9 was told by urologist to start casodex and then would do lupron shot in 1 month. The radiation oncologist the next week told him to stop taking Casodex and he had to wait 1 month for the casodex to "get
Does Casodex impact the results from PSMA PET Scan ? My uncle who just got diagnosed gleason 9 was told by urologist to start casodex and then would do lupron shot in 1 month. The radiation oncologist the next week told him to stop taking Casodex and he had to wait 1 month for the casodex to "get
sportsguyredsox
in
Advanced Prostate Cancer
1 year ago
ADT relief
I exercise often but still wrestle with muscle and joint aches and pains. On a 1 - 10 scale the aches and pains have been magnified 3 - 6X of what they were pre-Lupron. It seems like my low back aches have been consistent 2x-plus since the Lupron Any suggestions on ache and pain relief from adt? Does
I exercise often but still wrestle with muscle and joint aches and pains. On a 1 - 10 scale the aches and pains have been magnified 3 - 6X of what they were pre-Lupron. It seems like my low back aches have been consistent 2x-plus since the Lupron Any suggestions on ache and pain relief from adt? Does
Cyclingrealtor
in
Advanced Prostate Cancer
1 year ago
1
...
38
39
40
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3342 results
Prostate Cancer Network
176 results
Endometriosis UK
109 results
View top 10 communities
Sort by
Most Relevant
Newest