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Hi All back again
Hope everyone is doing as well as can be expected
Hubby just had psa and testosterone test after being on Zoladex again this past nine months, this is his second round after having 6 weeks radiation and 2 years zoladex in 2013 inbetween 2015 and 2023 under control with watch and wait until
Hope everyone is doing as well as can be expected
Hubby just had psa and testosterone test after being on Zoladex again this past nine months, this is his second round after having 6 weeks radiation and 2 years zoladex in 2013 inbetween 2015 and 2023 under control with watch and wait until
Knittingque
in
Advanced Prostate Cancer
11 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
11 months ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
11 months ago
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Hopeful
I was gleason 9. Psa 28 started zoledex last year and apalutimide I am currently on a break from treatment my own choice too try and see if RSO and other holistic therapy does better job will know if my PSA spikes at the end of the month.
I was gleason 9. Psa 28 started zoledex last year and apalutimide I am currently on a break from treatment my own choice too try and see if RSO and other holistic therapy does better job will know if my PSA spikes at the end of the month.
Lonewolf55
in
Advanced Prostate Cancer
11 months ago
Morning stiffness
Hello everyone haven’t been on this site very much but question to you all ,do you wake up every morning with your arms and legs severely aching and stiff ?I don’t know if this is arthritis? Anybody have any answers for this ?
Hello everyone haven’t been on this site very much but question to you all ,do you wake up every morning with your arms and legs severely aching and stiff ?I don’t know if this is arthritis? Anybody have any answers for this ?
Luckylady1978
in
Fibromyalgia Action UK
1 year ago
BAD NEWS
If you followed my recent post, you'll remember that I was ecstatic to have had a consultation with the team at Royal Marsden Cancer Clinic, where I was told that my PET scan of June, my PSA of June (4.4) and my overall good health meant that they felt I needed nothing more than dexamethasone and there
If you followed my recent post, you'll remember that I was ecstatic to have had a consultation with the team at Royal Marsden Cancer Clinic, where I was told that my PET scan of June, my PSA of June (4.4) and my overall good health meant that they felt I needed nothing more than dexamethasone and there
CrocodileShoes
in
Advanced Prostate Cancer
11 months ago
PMR or arthritis
Hi all, I have arthritis in my hip awaiting hip replacement however I’m taking 6.5 of Pred. I have really bad pains/stiffness in that leg from top to bottom of my shin which the Dr has put me on gabapentin which so fat (3+ weeks) has not made any difference. Could this be a PMR flare or is it the nerve
Hi all, I have arthritis in my hip awaiting hip replacement however I’m taking 6.5 of Pred. I have really bad pains/stiffness in that leg from top to bottom of my shin which the Dr has put me on gabapentin which so fat (3+ weeks) has not made any difference. Could this be a PMR flare or is it the nerve
Holycow2
in
PMRGCAuk
1 year ago
clinical trails for metastatic castrate resistant pc
It appears my husband may have become castrate resistant. PSA has risen from undetectable <.1 to now .2. We speak with oncologists on Wednesday. I believe he might have the possibility of radiation as a treatment bc he was oliogometastic at diagnosis 15 months ago. He had chemo along with hormones
It appears my husband may have become castrate resistant. PSA has risen from undetectable <.1 to now .2. We speak with oncologists on Wednesday. I believe he might have the possibility of radiation as a treatment bc he was oliogometastic at diagnosis 15 months ago. He had chemo along with hormones
Klunacat
in
Advanced Prostate Cancer
11 months ago
radiation decisions and second and third opinions
My dad was recently diagnosed with prostate cancer. It has metastasized to two pelvic lymph nodes and a lymph node in his back they initially called “suspicious” because it’s so small if it wasn’t for the PSMA scan it wouldn’t have been picked up at all. He got his first Lupron shot 3 weeks ago and
My dad was recently diagnosed with prostate cancer. It has metastasized to two pelvic lymph nodes and a lymph node in his back they initially called “suspicious” because it’s so small if it wasn’t for the PSMA scan it wouldn’t have been picked up at all. He got his first Lupron shot 3 weeks ago and
AppleTree43
in
Advanced Prostate Cancer
11 months ago
dilemma ADT duration
apologies first for another longish verbose posting ! I am in a dilemma after my last oncology appointment - I have T2cN0M0 G9 locally contained PCa following a failed HIFU that was previously twice biopsied as G7. After a clear PSMA showing locally contained with no SV involvement I had 20x3Gy to
apologies first for another longish verbose posting ! I am in a dilemma after my last oncology appointment - I have T2cN0M0 G9 locally contained PCa following a failed HIFU that was previously twice biopsied as G7. After a clear PSMA showing locally contained with no SV involvement I had 20x3Gy to
SimMartin
in
Advanced Prostate Cancer
11 months ago
Was Chemo "Successful"?
I just had my first PSA test after waiting to allow the results to mean something, after 10 rounds of doxytaxel. I was supposed to wait three months but for convenience pushed it by a week. I was hoping for a close to 0 PSA but that is not the case. I see my oncologist in a little more than a week
I just had my first PSA test after waiting to allow the results to mean something, after 10 rounds of doxytaxel. I was supposed to wait three months but for convenience pushed it by a week. I was hoping for a close to 0 PSA but that is not the case. I see my oncologist in a little more than a week
spencoid2
in
Advanced Prostate Cancer
11 months ago
PIP review
Sent back my pip review form Tuesday. Since my initial claim I have been diagnosed with Fibromyalgia and rheumatoid arthritis. Let’s hope it all goes well, it’s a stressful wait.
Sent back my pip review form Tuesday. Since my initial claim I have been diagnosed with Fibromyalgia and rheumatoid arthritis. Let’s hope it all goes well, it’s a stressful wait.
Tamsam22
in
Fibromyalgia Action UK
1 year ago
Change in Carcinoma
I had low dose brachytherapy in 2010 with seeds and success. My PSA started raising again in 2021. I opted for high dose brachytherapy and my PSA is 0.1. This year I had difficulty urinating and recently had a procedure similar to a TURP to remove tissue in my urethra near my prostate. This procedure
I had low dose brachytherapy in 2010 with seeds and success. My PSA started raising again in 2021. I opted for high dose brachytherapy and my PSA is 0.1. This year I had difficulty urinating and recently had a procedure similar to a TURP to remove tissue in my urethra near my prostate. This procedure
gegan01
in
Prostate Cancer Network
11 months ago
Never get tired of annoucing I am STILL undetectable
108 bottles of Zytiga on the shelf. Got my latest PSA and blood test results. Once again, officially 8 years 9 months since November 2014 results, PSA still undetectable at <.008. Another Zero candy bar for me. (I bought a few, and been handing them out like cigars after a new birth.) I have had somewhat
108 bottles of Zytiga on the shelf. Got my latest PSA and blood test results. Once again, officially 8 years 9 months since November 2014 results, PSA still undetectable at <.008. Another Zero candy bar for me. (I bought a few, and been handing them out like cigars after a new birth.) I have had somewhat
Wings-of-Eagles
in
Advanced Prostate Cancer
11 months ago
Casodex query
About to go back on ADT this month because my PSA is doubling every 4 months My Nader was 0.02 in April 2021 but recent bloods are showing 2:6 and I’m expecting 5 plus on bloods done yesterday I was told in March this year that I had incurable cancer after a clear PSMA scan on the previous February .
About to go back on ADT this month because my PSA is doubling every 4 months My Nader was 0.02 in April 2021 but recent bloods are showing 2:6 and I’m expecting 5 plus on bloods done yesterday I was told in March this year that I had incurable cancer after a clear PSMA scan on the previous February .
Walliam
in
Advanced Prostate Cancer
11 months ago
Radiation for Salvage Treatment
I am about to start salvage treatment after a failed surgery and a rising PSA value of 0.1. However, I would like to know if weeks of external radiation with ADT, is the best treatment option here. The idea of blindly radiating pelvic area with a re-recurrence a few years later does not appeal to me.
I am about to start salvage treatment after a failed surgery and a rising PSA value of 0.1. However, I would like to know if weeks of external radiation with ADT, is the best treatment option here. The idea of blindly radiating pelvic area with a re-recurrence a few years later does not appeal to me.
Rams91
in
Prostate Cancer Network
11 months ago
LU-177 I&T, FAILURE?
Just received PSA results from 4th Infusion of LU-177 I&T, as part of the Eclipse Study. It increased from 0.1 to 0.2. PSA baseline was 2.0. Following 1st infusion PSA dropped to 0.3. Following 2nd infusion no PSA was taken. Following 3rd infusion PSA 0.1. Following 4th infusion PSA 0.2. Having
Just received PSA results from 4th Infusion of LU-177 I&T, as part of the Eclipse Study. It increased from 0.1 to 0.2. PSA baseline was 2.0. Following 1st infusion PSA dropped to 0.3. Following 2nd infusion no PSA was taken. Following 3rd infusion PSA 0.1. Following 4th infusion PSA 0.2. Having
john4803
in
Advanced Prostate Cancer
11 months ago
Update on my father
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
jberg22
in
Advanced Prostate Cancer
11 months ago
Arthritis: Does It Ever Settle?
Good morning all! Hope everyone is coping with the changeable weather. My Psoriatic Arthritis has, over the last 18months “settled” in my left shoulder and elbow. Picking things up/Holding onto things in my left hand has become increasingly painful. It continues to move around other joint groups
Good morning all! Hope everyone is coping with the changeable weather. My Psoriatic Arthritis has, over the last 18months “settled” in my left shoulder and elbow. Picking things up/Holding onto things in my left hand has become increasingly painful. It continues to move around other joint groups
farjer121
in
NRAS
1 year ago
PSA rising
Just got this report from PSMA scan. Increased size of a few mildly tracer avid aorto-caval lymphnodes. The largest of these nodes measures 0.5 cm in short axis (image 204), previously measured 0.2 cm. Meet with MO tomorrow. I am 10 years in. Prostatectomy, bed radiation, and two years ago, whole
Just got this report from PSMA scan. Increased size of a few mildly tracer avid aorto-caval lymphnodes. The largest of these nodes measures 0.5 cm in short axis (image 204), previously measured 0.2 cm. Meet with MO tomorrow. I am 10 years in. Prostatectomy, bed radiation, and two years ago, whole
Jvaughan0
in
Advanced Prostate Cancer
11 months ago
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