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New Member: Living with Stage 4 Lung Cancer and Advocating for Awareness and Research
I just discovered this community and thought I would introduce myself. My name is Jeff and I was diagnosed in 2014 at age 46 -- I am about to turn 49 and have begun my third year of chemotherapy for my metastatic lung cancer (Adenocarcinoma). I write about my experience, as well as related info, on
I just discovered this community and thought I would introduce myself. My name is Jeff and I was diagnosed in 2014 at age 46 -- I am about to turn 49 and have begun my third year of chemotherapy for my metastatic lung cancer (Adenocarcinoma). I write about my experience, as well as related info, on
jpoehlmann
in
Lung Cancer Support
8 years ago
What It's Like to Be in a Lung Cancer Clinical Trial - Part Two, The Clovis Pharmaceuticals Phase II Trial for CO-1686
In February 2015 I found myself sitting by myself in a car in a parking lot, summoning the courage to read the CT scan report I had just picked up to take to my oncologist. This scan marked the six month mark in my first line treatment with Tarceva. As I read the news that my cancer was starting to grow
In February 2015 I found myself sitting by myself in a car in a parking lot, summoning the courage to read the CT scan report I had just picked up to take to my oncologist. This scan marked the six month mark in my first line treatment with Tarceva. As I read the news that my cancer was starting to grow
scifiknitter
Blogger
in
Lung Cancer Support
8 years ago
Information for all
In case you don't know and I apologise to those that do, but are you aware that 65 is a magic age. I will explain. As I had mentioned previously I was diagnosed with A1 some 14 yrs ago, but it is only in the last 3/4 yrs that it has worsened, and as of 14 months ago I went on Oxygen. In my case I persevered
In case you don't know and I apologise to those that do, but are you aware that 65 is a magic age. I will explain. As I had mentioned previously I was diagnosed with A1 some 14 yrs ago, but it is only in the last 3/4 yrs that it has worsened, and as of 14 months ago I went on Oxygen. In my case I persevered
Snodgrass1
in
Lung Conditions Community Forum
8 years ago
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Gastroenterologist says a positive IFA & Parietal Cell antibody result does not mean I have P.A. ?! HELP & advice please
Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to alternate day jabs without ok from Hospital because afraid of overdosing issues ( he quoted side affects from his BNF book ). The Gastro said that
Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to alternate day jabs without ok from Hospital because afraid of overdosing issues ( he quoted side affects from his BNF book ). The Gastro said that
Barry1955
in
Pernicious Anaemia Society
7 years ago
Trying Something New
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
http://nattokinasehearthealth.com/20/what-is-nattokinase-and-health-benefits/ http://nattokinasehearthealth.com/60/what-is-lumbrokinase/ http://nattokinasehearthealth.com/142/serrapeptase-benefits/ This is the third time I am trying to write this post. I keep clicking on the wrong thing and losing my
Cynt-ann53
in
Sickle Cell Society
8 years ago
Autologous stem cell transplantation
Going to do autologous stem cell transplant.for relapsed follicular lymphoma. And new dbcl. After 2 weeks. Any body has been through that? Let me know please. Thanks. And God bless you all.
Going to do autologous stem cell transplant.for relapsed follicular lymphoma. And new dbcl. After 2 weeks. Any body has been through that? Let me know please. Thanks. And God bless you all.
Bhlool
in
LSN
7 years ago
Cancer-free for now after lung surgery
So I had my lung surgery on the 17th of January surgery went very well they was able to remove all of the cancer thank God course the recovery is very long and slow and I ain't going to lie it's a bit difficult so but one day at a time I'm I'm breathing well I'm just having a hard time managing the the
So I had my lung surgery on the 17th of January surgery went very well they was able to remove all of the cancer thank God course the recovery is very long and slow and I ain't going to lie it's a bit difficult so but one day at a time I'm I'm breathing well I'm just having a hard time managing the the
kirkmills1
in
Lung Cancer Support
8 years ago
What It's Like to Be in a Lung Cancer Clinical Trial - Part One, Background Information
Have you ever thought about participating in a lung cancer clinical trial? The thought of taking an experimental drug, a new combination of drugs, or undergoing a new surgical or radiological procedure is exciting for some, scary for others. If you think a clinical trial might be in your future, I hope
Have you ever thought about participating in a lung cancer clinical trial? The thought of taking an experimental drug, a new combination of drugs, or undergoing a new surgical or radiological procedure is exciting for some, scary for others. If you think a clinical trial might be in your future, I hope
scifiknitter
Blogger
in
Lung Cancer Support
8 years ago
My Dear Sweet Husband has Lung Cancer
I am writing for my dear sweet husband who diagnosed 13 months ago with small cell lung cancer that metastasized to his lymph system, liver, and his brain. After chemo, and radiation to his brain and chest, he started Opdivo. Opdivo did a great job reducing his tumors, but then attacked his lungs. He
I am writing for my dear sweet husband who diagnosed 13 months ago with small cell lung cancer that metastasized to his lymph system, liver, and his brain. After chemo, and radiation to his brain and chest, he started Opdivo. Opdivo did a great job reducing his tumors, but then attacked his lungs. He
eispec
in
Lung Cancer Support
8 years ago
sickle cell traits problems
I have sickle traits and I'm anemia and I get sick sometimes and always have low vitamin d I get tired a lot because my low blood (anemia) I think a new research needs to be done. I been getting sick since I was young. I got the traits from my dad mother.
I have sickle traits and I'm anemia and I get sick sometimes and always have low vitamin d I get tired a lot because my low blood (anemia) I think a new research needs to be done. I been getting sick since I was young. I got the traits from my dad mother.
lavette40
in
Sickle Cell Society
8 years ago
Small cell lung cancer
Hello I am curious to know if anyone last year was diagnosed with small cell lung cancer under the age of 30 males? My partner was diagnosed in August at the age of 28 and passed away on the 4th January 2017 at the age of 29. It was devastating and I can't get his pain out of my head. J suffered so much
Hello I am curious to know if anyone last year was diagnosed with small cell lung cancer under the age of 30 males? My partner was diagnosed in August at the age of 28 and passed away on the 4th January 2017 at the age of 29. It was devastating and I can't get his pain out of my head. J suffered so much
Alexandra_JGW
in
The Roy Castle Lung Cancer Foundation
8 years ago
Autologous Stem Cell Transplantation for MS
Autologous Stem Cell Transplantation for MS: Progression-Free Survival Seen in Nearly Half of Patients By Amy Orciari Herman Edited by David G. Fairchild, MD, MPH, and Jaye Elizabeth Hefner, MD Autologous stem cell transplantation for multiple sclerosis might help slow neurologic progression in nearly
Autologous Stem Cell Transplantation for MS: Progression-Free Survival Seen in Nearly Half of Patients By Amy Orciari Herman Edited by David G. Fairchild, MD, MPH, and Jaye Elizabeth Hefner, MD Autologous stem cell transplantation for multiple sclerosis might help slow neurologic progression in nearly
erash
in
My MSAA Community
7 years ago
Help to come off of Sertraline and change to 5-HTP!!
I am brand new here to the forum. I am looking for some guidance on how to come off Sertraline which I have been on for as long as I can remember. 20 years plus. I am on 150 mg a day and I tried to come off them before by reducing to 100 mg but side effects of feeling really low, confused and irritable
I am brand new here to the forum. I am looking for some guidance on how to come off Sertraline which I have been on for as long as I can remember. 20 years plus. I am on 150 mg a day and I tried to come off them before by reducing to 100 mg but side effects of feeling really low, confused and irritable
debgou
in
Thyroid UK
8 years ago
Post transplant feedback
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Raising awareness of radiotherapy pneumonitis.
My mum was diagnosed with lung cancer type 3 six months ago. The doctors explained the cancer was terminal but manageable. Mum flew through chemo like a superhero. The radiotherapy however was not the same. Side effects took hold weeks after the intense course of treatment. Mum suffered with breathing
My mum was diagnosed with lung cancer type 3 six months ago. The doctors explained the cancer was terminal but manageable. Mum flew through chemo like a superhero. The radiotherapy however was not the same. Side effects took hold weeks after the intense course of treatment. Mum suffered with breathing
Louisew84
in
The Roy Castle Lung Cancer Foundation
8 years ago
Sorting Out the Stuff After a Lung Cancer Diagnosis
In a previous post, I discussed some of the ways I reached out to sort out my feelings after my diagnosis with stage 4 lung cancer. That hasn’t been the only thing I’ve needed to deal with - there has also been all the stuff from a lifetime, especially since I’ve lived in the same home for 36 years.
In a previous post, I discussed some of the ways I reached out to sort out my feelings after my diagnosis with stage 4 lung cancer. That hasn’t been the only thing I’ve needed to deal with - there has also been all the stuff from a lifetime, especially since I’ve lived in the same home for 36 years.
scifiknitter
Blogger
in
Lung Cancer Support
8 years ago
Malt Lymphoma
Hi all i had an abcess under my left breas in Sept 2016 my gp treated with antibiotics after two lots she decided to send me for xray my left lung showed abnormalities so was asked to go to see Dr at Hospital who arranged a PET scan this came back showing a cancer in my left lung and small one in the
Hi all i had an abcess under my left breas in Sept 2016 my gp treated with antibiotics after two lots she decided to send me for xray my left lung showed abnormalities so was asked to go to see Dr at Hospital who arranged a PET scan this came back showing a cancer in my left lung and small one in the
MALSTAN
in
Non Hodgkin's Lymphoma Friends
8 years ago
Transplant Advice
Hi there, I wonder if anyone can help me. I am soon to go for tests to see if I am eligible for a lung transplant. My COPD is at the serious stage now and i am 63. I am scared to be honest, I have been told all the ins and outs. Can anyone relate to this, i thought i would have the tests then see ...
Hi there, I wonder if anyone can help me. I am soon to go for tests to see if I am eligible for a lung transplant. My COPD is at the serious stage now and i am 63. I am scared to be honest, I have been told all the ins and outs. Can anyone relate to this, i thought i would have the tests then see ...
ross-35_
in
Lung Conditions Community Forum
8 years ago
Blood test during lung cancer diagnosis
Hi My mum is undergoing tests at the moment and has been told she probably has a tumour in her right lung... she has a needle biopsy booked for next Tuesday and is having blood tests later this week for clotting? Has anyone else had this type of blood test prior to LC diagnosis? And why are they doing
Hi My mum is undergoing tests at the moment and has been told she probably has a tumour in her right lung... she has a needle biopsy booked for next Tuesday and is having blood tests later this week for clotting? Has anyone else had this type of blood test prior to LC diagnosis? And why are they doing
MissyD1
in
Lung Cancer Support
8 years ago
Lung Cancer Hell
I have a squamous, non small cell that my oncology team made a point of telling me (or my siblings really) that this is terminal, no chance of remission. Then I was prescribed what was described as the last ditch chemotherapy, just trying to control the spread of the tumors in my primary lung. The
I have a squamous, non small cell that my oncology team made a point of telling me (or my siblings really) that this is terminal, no chance of remission. Then I was prescribed what was described as the last ditch chemotherapy, just trying to control the spread of the tumors in my primary lung. The
Angie2208
in
Lung Cancer Support
8 years ago
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