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Non-small-cell lung carcinoma
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Act of Love
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Shelley53a
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Anniversaries, Cancerversaries, and Milestones of Lung Cancer Treatment and Survivorship
I opened my 13th bottle of Tagrisso last weekend, marking a full year of treatment with this very new T790M and EGFR inhibitor. It’s been a great year, full of love and adventures. I feel like celebrating, even though celebrating a milestone with a lung cancer treatment may not be everyone’s idea of
I opened my 13th bottle of Tagrisso last weekend, marking a full year of treatment with this very new T790M and EGFR inhibitor. It’s been a great year, full of love and adventures. I feel like celebrating, even though celebrating a milestone with a lung cancer treatment may not be everyone’s idea of
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
Transplant
Hi Im back, I havent posted in a while. Its been a bad winter for me. I went to dr last week. He is trying to get me approved for a lung transplant. Im happy for the chance for this but am very nervouse about it also. I keep thinking if I am approved what if the transplant doesnt take and I could have
Hi Im back, I havent posted in a while. Its been a bad winter for me. I went to dr last week. He is trying to get me approved for a lung transplant. Im happy for the chance for this but am very nervouse about it also. I keep thinking if I am approved what if the transplant doesnt take and I could have
walkfast-74
in
COPD Friends
7 years ago
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actemra
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
mamacline
in
PMRGCAuk
7 years ago
My recent experience of Giant Cell Arteritis
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
Hello, for the information of others, I am posting my recent experience of GCA as follows:- I have been suffering from pains in my neck, shoulders and cheeks. My head got so sensitive I could not even comb my hair and my jaws were so painful I could hardly eat any solids. After several visits to my
marpil
in
PMRGCAuk
7 years ago
Kicking Cancer's ASS ONE DAY AT a TIME!
I am a 60 year old
carcinoma
non
small
cell
lung
cancer man, ex fighter, back for THE MAIN EVENT FIGHT. let's do this.
I am a 60 year old
carcinoma
non
small
cell
lung
cancer man, ex fighter, back for THE MAIN EVENT FIGHT. let's do this.
Woodykeller
in
Lung Cancer Support
8 years ago
Last day of radiation for my dad!
Today my amazing, strong dad finished his last radiation treatment! While he feels pretty weak, and low on energy he is very happy that his radiation is over. He's had radiation for the last 3 weeks on his chest and brain. Today I also started a new career and it was my first day on the job. I feel
Today my amazing, strong dad finished his last radiation treatment! While he feels pretty weak, and low on energy he is very happy that his radiation is over. He's had radiation for the last 3 weeks on his chest and brain. Today I also started a new career and it was my first day on the job. I feel
Lisamk55
in
Lung Cancer Support
7 years ago
Terrified, Coughing up Blood
I have been reading some of the posts on this forum, I think you are all incredulously brave. So what's wrong with me? I seem to be in a very tight grip of fear since coughing up bright red blood 3 days ago, I also have pain in my chest too yet I am terrified to seek medical help. I can't stop crying
I have been reading some of the posts on this forum, I think you are all incredulously brave. So what's wrong with me? I seem to be in a very tight grip of fear since coughing up bright red blood 3 days ago, I also have pain in my chest too yet I am terrified to seek medical help. I can't stop crying
Mjr333
in
Lung Cancer Support
7 years ago
Any advice welcome..
Hello everyone I've been diagnosed with pluerisy, on steroids (predisolone 40mg) for 7 days, almost instant relief but then I checked out the side effects, not too sure now if I want to carry on taking them. The list goes on and on, getting more and more horrendous. I'm totally breathless, can't eat,
Hello everyone I've been diagnosed with pluerisy, on steroids (predisolone 40mg) for 7 days, almost instant relief but then I checked out the side effects, not too sure now if I want to carry on taking them. The list goes on and on, getting more and more horrendous. I'm totally breathless, can't eat,
Helzo
in
Lung Conditions Community Forum
7 years ago
Tests & more tests
After finding a mass after a CT scan, the consultant says I have a swollen lymph node in my lungs & need a PET scan, biopsy, camera & full lung check, query COPD. On more antibiotics for chest infection. Confused and scared
After finding a mass after a CT scan, the consultant says I have a swollen lymph node in my lungs & need a PET scan, biopsy, camera & full lung check, query COPD. On more antibiotics for chest infection. Confused and scared
Vivienneann
in
The Roy Castle Lung Cancer Foundation
7 years ago
Husband has small cell lung cancer
Hello all My husband is newly diagnosed with advanced small cell lung cancer which has metastasized into his liver and back. This we know from a CT scan and also a liver biopsy which diagnosed small cell. PET scan was performed yesterday so we will know for certain if these are the only places. We have
Hello all My husband is newly diagnosed with advanced small cell lung cancer which has metastasized into his liver and back. This we know from a CT scan and also a liver biopsy which diagnosed small cell. PET scan was performed yesterday so we will know for certain if these are the only places. We have
Pamann247
in
The Roy Castle Lung Cancer Foundation
7 years ago
Lost dad 2week ago
Hi I'm Paul, we lost my dad 2 weeks ago through lung disease. He was diagnosed 13/12/2016 and lost his fight 11/02/2017 due to Squamous cell cancer, he also had ipf, asbestosis and emphysema! At his diagnosis in December his scan showed he had about 25% of his lungs healthy, the rest was diseased, the
Hi I'm Paul, we lost my dad 2 weeks ago through lung disease. He was diagnosed 13/12/2016 and lost his fight 11/02/2017 due to Squamous cell cancer, he also had ipf, asbestosis and emphysema! At his diagnosis in December his scan showed he had about 25% of his lungs healthy, the rest was diseased, the
PaulSEvans
in
Lung Conditions Community Forum
7 years ago
Yellow eyes and Red lips
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
Ever since I was young I had yellow eyes,now at 22 I still do,and the most irritating question I get even from strangers is "why are your eyes yellow",this really brings my spirit down,Because I cant ever explain to everybody I meet why my eyes are so,although I havent tried any medication that would
macogola
in
Sickle Cell Society
7 years ago
Staying positive and hopeful for my dad with small cell lung cancer
My dad was diagnosed June 2016, with small cell lung cancer. It started with a bad cough and a loss of voice , and after going to the hospital , we got some of the worst news of our lives.. it was lung cancer. This has been a very emotional,scary, nerve wracking journey, but my dad is doing everything
My dad was diagnosed June 2016, with small cell lung cancer. It started with a bad cough and a loss of voice , and after going to the hospital , we got some of the worst news of our lives.. it was lung cancer. This has been a very emotional,scary, nerve wracking journey, but my dad is doing everything
Lisamk55
in
Lung Cancer Support
7 years ago
Offering Faith, Hope and Love
I am 63 years old and was diagnosed with srage IV small cell lung cancer in June of 2015. My lung cancer was inoperable. As of today, I have been battling survival joyously, one day at a time for 20 months. This past Friday I completed 78 total treatments of chemo since July of 2015. No radiation. I
I am 63 years old and was diagnosed with srage IV small cell lung cancer in June of 2015. My lung cancer was inoperable. As of today, I have been battling survival joyously, one day at a time for 20 months. This past Friday I completed 78 total treatments of chemo since July of 2015. No radiation. I
Lifzgr8t
in
Lung Cancer Support
7 years ago
I am new here.
After my last pulminary function test, I was found to have 20% lung function. [i] I have had copd for at least 5 years (probably more). I lost my right upper and middle lobes to lung cancer. I have been in remission for the last two years. [/i] [i]I am looking into a lung transplant and wonder if
After my last pulminary function test, I was found to have 20% lung function. [i] I have had copd for at least 5 years (probably more). I lost my right upper and middle lobes to lung cancer. I have been in remission for the last two years. [/i] [i]I am looking into a lung transplant and wonder if
Laurelann
in
COPD Friends
7 years ago
Balance/side effects
Hi! My dad is being treated for small cell lung cancer. He was diagnosed June 2016. He went through chemo this summer/fall, and now is undergoing radiation therapy on his chest and brain. We are praying for good results on his next scans. He mentions he feels a little unbalanced when walking. He told
Hi! My dad is being treated for small cell lung cancer. He was diagnosed June 2016. He went through chemo this summer/fall, and now is undergoing radiation therapy on his chest and brain. We are praying for good results on his next scans. He mentions he feels a little unbalanced when walking. He told
Lisamk55
in
Lung Cancer Support
8 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
COPD life expectancy
My has had COPD for over 20years and recently her specialist has put her forward for a lung transplant. I know this is a long road and very rocky. Yesterday we had to go and meet the specialist and fill in forms, on one was life expectancy, he put 12 to 36 months. Looking for other people who have had
My has had COPD for over 20years and recently her specialist has put her forward for a lung transplant. I know this is a long road and very rocky. Yesterday we had to go and meet the specialist and fill in forms, on one was life expectancy, he put 12 to 36 months. Looking for other people who have had
Rebalum
in
Lung Conditions Community Forum
8 years ago
The Cancer Whisperer Book by Sophie Sabbage
I am just reading this book which is written by Sophie. She is EGFR positive and has stage 4 lung cancer. I am in a similar situation with ALK mutation. I have found the book comforting to read and also empowering. She has insight into managing the condition and empowers the reader to make them aware
I am just reading this book which is written by Sophie. She is EGFR positive and has stage 4 lung cancer. I am in a similar situation with ALK mutation. I have found the book comforting to read and also empowering. She has insight into managing the condition and empowers the reader to make them aware
Bow-19
in
The Roy Castle Lung Cancer Foundation
8 years ago
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