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Probably the greatest dilemma of my life.
Currently going through double lung transplant assessments due to IPF.One strict no go which strikes you off the list is cancer as , quite rightly, donated healthy lungs should go to those who have a longer chance of survival . Now the dilemma... discovered a great lump in my neck which may or may not
Currently going through double lung transplant assessments due to IPF.One strict no go which strikes you off the list is cancer as , quite rightly, donated healthy lungs should go to those who have a longer chance of survival . Now the dilemma... discovered a great lump in my neck which may or may not
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Harefield Lung Transplant
Hi, I am on the lung transplant list at QE Hospital Birmingham, but surgery there is still suspended and will be until June at the earliest. I am therefore going to be seen at Harefield in the hope I can go on their list. I’ve been on Birmingham’s list since July, but with no transplants since January
Hi, I am on the lung transplant list at QE Hospital Birmingham, but surgery there is still suspended and will be until June at the earliest. I am therefore going to be seen at Harefield in the hope I can go on their list. I’ve been on Birmingham’s list since July, but with no transplants since January
mary1956
in
Lung Conditions Community Forum
3 years ago
Scientists identify protein that could serve as a therapeutic target in lung cancer.
Scientists at VCU Massey Cancer Center have identified a protein that operates in tandem with a specific genetic mutation to spur lung cancer growth and could serve as a therapeutic target to treat the disease. Mutations in the p53 gene are found in more than half of all cancers, but it remains difficult
Scientists at VCU Massey Cancer Center have identified a protein that operates in tandem with a specific genetic mutation to spur lung cancer growth and could serve as a therapeutic target to treat the disease. Mutations in the p53 gene are found in more than half of all cancers, but it remains difficult
2greys
in
Lung Conditions Community Forum
3 years ago
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Keytruda and Guillain Barre Syndrome
After various false starts, it has been confirmed that the Immunotherapy treatment with Keytruda has been the cause of my GBS event in January. I'm off immunotherapy forever now. Just learned today that my lung tumor has grown and is getting close to my airway. Looking at possible radiation treatment
After various false starts, it has been confirmed that the Immunotherapy treatment with Keytruda has been the cause of my GBS event in January. I'm off immunotherapy forever now. Just learned today that my lung tumor has grown and is getting close to my airway. Looking at possible radiation treatment
Ay1e5bury
in
Lung Cancer Support
3 years ago
Post Lobectomy
It was found to be
non
-
small
-
cell
lung
cancer – squamous cell
carcinoma
. I have since had several scans due to chest infections and a cough which does not go completely, all is clear and my 6 month check was all ok.
It was found to be
non
-
small
-
cell
lung
cancer – squamous cell
carcinoma
. I have since had several scans due to chest infections and a cough which does not go completely, all is clear and my 6 month check was all ok.
GillBo
in
The Roy Castle Lung Cancer Foundation
3 years ago
Butterfingers! Feeling frustrated and poor.
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
Hidden
in
PMRGCAuk
3 years ago
Lung transplant list
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
Joseph260268
in
Lung Conditions Community Forum
3 years ago
Immunotherapy alone extended life for metastatic lung cancer patients with KRAS mutation.
Real-word evidence is suggesting, for the first time, the most beneficial treatment courses that could help extend the lives of patients with metastatic non-small cell lung cancer, according to research from the Abramson Cancer Center at the University of Pennsylvania. In a new study published online
Real-word evidence is suggesting, for the first time, the most beneficial treatment courses that could help extend the lives of patients with metastatic non-small cell lung cancer, according to research from the Abramson Cancer Center at the University of Pennsylvania. In a new study published online
2greys
in
Lung Conditions Community Forum
3 years ago
Researchers Identify Potential Targets for Novel Treatments for Lung Cancer.
Lung cancer is the most common cause of cancer deaths, accounting for about a third of all tumor-related deaths. Adenocarcinomas, a non-small cell lung cancer (NSCLC), account for about 40 percent of cancer diagnoses, but few treatments are available for the disease. A team of investigators led by Elena
Lung cancer is the most common cause of cancer deaths, accounting for about a third of all tumor-related deaths. Adenocarcinomas, a non-small cell lung cancer (NSCLC), account for about 40 percent of cancer diagnoses, but few treatments are available for the disease. A team of investigators led by Elena
2greys
in
Lung Conditions Community Forum
3 years ago
WARWICK'S ASCT ~ LATEST UPDATE...
Evening all... :-) Below I have Posted Warwick's latest Update on his Stem Cell Transplant journey... Best wishes all, stay safe & well... Steve
[i]Re: WARWICK's ASCT Journey Begins Today...[/i]
Post by Warwick » Fri May 21, 2021 10:09 am Hello everybody I am now at day 86 post transplant
Evening all... :-) Below I have Posted Warwick's latest Update on his Stem Cell Transplant journey... Best wishes all, stay safe & well... Steve
[i]Re: WARWICK's ASCT Journey Begins Today...[/i]
Post by Warwick » Fri May 21, 2021 10:09 am Hello everybody I am now at day 86 post transplant
socrates_8
in
MPN Voice
3 years ago
Level of chromosomal abnormality in lung cancer may predict immunotherapy response.
Patients with non-small cell lung cancer (NSCLC) whose cancer cells have low levels of aneuploidy – an abnormal number of chromosomes – tend to respond better to immune checkpoint inhibitor drugs than patients with higher levels, Dana-Farber Cancer Institute researchers will report at the virtual AACR
Patients with non-small cell lung cancer (NSCLC) whose cancer cells have low levels of aneuploidy – an abnormal number of chromosomes – tend to respond better to immune checkpoint inhibitor drugs than patients with higher levels, Dana-Farber Cancer Institute researchers will report at the virtual AACR
2greys
in
Lung Conditions Community Forum
3 years ago
COVID-19 Patient Receives Lung Transplant From Living Donors
https://time.com/5953534/covid19-lung-transplant/?utm_medium=email&utm_source=sfmc&utm_campaign=newsletter+health-friday+default+ac&utm_content=+++20210409+++body&et_rid=33540339 Ken
https://time.com/5953534/covid19-lung-transplant/?utm_medium=email&utm_source=sfmc&utm_campaign=newsletter+health-friday+default+ac&utm_content=+++20210409+++body&et_rid=33540339 Ken
Elpojohn
in
Lung Conditions Community Forum
3 years ago
Oxygen and Holidays
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
mary1956
in
Lung Conditions Community Forum
3 years ago
COVID-19 patient receives lung transplant from living donors.
Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour
Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour
2greys
in
Lung Conditions Community Forum
3 years ago
Lung Cancer Livingroom. Where I found support and info early in my diagnosis.
In the scary, early days of a lung cancer diagnosis finding hope is difficult. Learning the language around lung cancer is overwhelming. Through the Lung Cancer Living Room I learned the stories of other patients and was educated by some of the best oncologists and researchers. This is the schedule
In the scary, early days of a lung cancer diagnosis finding hope is difficult. Learning the language around lung cancer is overwhelming. Through the Lung Cancer Living Room I learned the stories of other patients and was educated by some of the best oncologists and researchers. This is the schedule
Denzie
Volunteer
in
Lung Cancer Support
3 years ago
Does anyone have experience with Immunotherapy Atezolizumab?
Hi, I was diagnosed with LC stage 4 in Dec and had 3 cycles of Gencarbo which sadly did not have any impact. I have limited options available moving forward apparently as I have nsc squamous type cancer. Does anyone have experience that they can share with an immunotherapy called Atezolizumab please?
Hi, I was diagnosed with LC stage 4 in Dec and had 3 cycles of Gencarbo which sadly did not have any impact. I have limited options available moving forward apparently as I have nsc squamous type cancer. Does anyone have experience that they can share with an immunotherapy called Atezolizumab please?
Seagu11s
in
The Roy Castle Lung Cancer Foundation
3 years ago
Help to be the voice of Lung Cancer........
Roy Castle Lung Cancer Foundation
is a member of an international organisation called the Global Lung Cancer Coalition (GLCC) which aims to be the ‘voice’ of lung cancer patients worldwide. Now, the GLCC is looking for participants willing to complete a short online survey about their experiences
Roy Castle Lung Cancer Foundation
is a member of an international organisation called the Global Lung Cancer Coalition (GLCC) which aims to be the ‘voice’ of lung cancer patients worldwide. Now, the GLCC is looking for participants willing to complete a short online survey about their experiences
jillygirl
in
The Roy Castle Lung Cancer Foundation
3 years ago
Chemo for lung disease
Morning, I’m due to start chemo for my lung disease in two weeks. Just wandering if anyone has had the six month treatment? I’m worried about feeling and been sick! Sadly my ct scan and lung function has shown a 15% decrease and addition scarring so really need to be strong and get on with it......
Morning, I’m due to start chemo for my lung disease in two weeks. Just wandering if anyone has had the six month treatment? I’m worried about feeling and been sick! Sadly my ct scan and lung function has shown a 15% decrease and addition scarring so really need to be strong and get on with it......
Sjw9
in
Lung Conditions Community Forum
3 years ago
A day of surprises
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
ConniesDad
in
MPN Voice
3 years ago
Update
Goid news and mixed up news . Oncologist rang to say bowel clear, liver spot melted away.,biopsy undefined at local source so sent to Nottingham. Most likely lymphoma. Whats happened to psoriatic?, I asked about lymphoma as I had no idea and he said he didn't deal with it but would transfer me ASAP.
Goid news and mixed up news . Oncologist rang to say bowel clear, liver spot melted away.,biopsy undefined at local source so sent to Nottingham. Most likely lymphoma. Whats happened to psoriatic?, I asked about lymphoma as I had no idea and he said he didn't deal with it but would transfer me ASAP.
chubby2x22
in
Lung Conditions Community Forum
3 years ago
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