Currently going through double lung transplant assessments due to IPF.One strict no go which strikes you off the list is cancer as , quite rightly, donated healthy lungs should go to those who have a longer chance of survival .
Now the dilemma... discovered a great lump in my neck which may or may not be sinister.
If i get it checked and it is a Mr Nasty then thatβs me off the list.
And i thought choosing our new car was difficult...π‘π‘π‘
What would you do?
Written by
Mrbojangles
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Hi Mrb, sorry to read of your dilemma but thereβs no IF about it. Please get the lump in your neck checked. It may not be sinister but you need to know.
I have to agree, it is probably just a cyst, but if it is the dreaded 'C' lurgy it needs prompt action, the earlier it gets seen to, the greater the chance of a cure. New lungs will not do you much good if it is malignant and left to grow and spread.
Yes I have to agree with the others - get it checked. I would also google causes of lumps on necks (but not dr google as you can go from a mild headache to dead in 3 clicks). I am sure you will find there are lots of much less serious causes than cancer. 2Greys is right and it is probably a cyst as these are common. x
As others have said no βifβ about it. Lump needs examination. Probably nothing but needs looking at. Also lung transplants are not a simple operation or recovery. IF you had something else wrong (which blood tests would probably pick up anyway) then your quality of life could be seriously impaired and even shortened.
I would imagine they are going to find it anyway if they are doing assessments so perhaps it would be best to point it out now so whatever it might be can be dealt with soonest. Best of luck with your dilemma.
Please check out the lump. A friend of mine had the same and caught it in time .Good Luck as it may be just a cyst .thinking of you xxSheila ππππ
If you go through the 4 day assessment the will find it anyway if it is sinister. I had 21 lots of blood taken to check for every type of cancer on my assessment. However let them know is the best policy so you can get the lump checked out and find out one way or the other. Best of luck for the future.
Sod's Law strikes again, eh?! I don't think you really have a dilemma, do you, as you know in your heart you have to get this lump looked at. But I really do feel for you, having that to worry about as well as everything else, and fearing your transplant chance may be going down the swanny.
You may well find that it is something benign and everything regarding the potential transplant will go ahead as planned, but it really can't be ignored.
I'm keeping everything crossed for you and hope you are worrying for nothing. Please get yourself looked at asap and come back and let us know what they find.
Hi Mr b. Get it checked out. I got a lump on side of my neck and it turned out to be just a cyst which was drained and sorted out in 10 minutes. I know you are worried about not being put on the list but if it's just a cyst and all the other assessment results are favourable you will still go on the list. Don't delay as it will make the situation worse.
Well the verdit is out, GET IT CHECKED as they keep saying if caught early it can be cured . If you are checked for a transplant they will find it anyway , better late than never x
I hope that the lump is simple to resolve and you can continue with your transplant process. There is no doubt about the advice being given here with so much care and love.
Awful dilemma. My thoughts. Before you'd be given any transplant the battery of tests you would be subject to would find this lump. It may be some time before a transplant becomes available. In the meantime lump, if it is cancer will have grown and likely spread. There is no hiding it I'm afraid. Get it looked at and I hope, like all the other replies, it is benign. Best wishes.
Totally understand where you are coming from. My husband is on the transplant list and had a bowel cancer scare last year, he was suspended from the list whilst investigations were carried out. We were terrified as although if had been cancer it would have been early and treatable it would have been the end of his transplant hopes. All was well in the end and he was back on the list but canβt tell you how many times we wished he hadnβt investigated. Others are right though you have no choice and I will keep everything crossed you have the same outcome as my husband.
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