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What a. To. Do. The past. Year. I. Not a clue.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Tricity125
in
Lung Conditions Community Forum
3 years ago
Lung cancer volunteer activities for kids
My husband appreciated this site. Reading everyone’s experiences gave him hope and knowledge, and he was thankful to members on this site who replied to his questions/concerns during his one year battle with Stage IV NSCLC. After losing their dad to NSCLC about 3 weeks ago, my kids (ages 10, 13 and 15
My husband appreciated this site. Reading everyone’s experiences gave him hope and knowledge, and he was thankful to members on this site who replied to his questions/concerns during his one year battle with Stage IV NSCLC. After losing their dad to NSCLC about 3 weeks ago, my kids (ages 10, 13 and 15
ShortyJ
in
Lung Cancer Support
3 years ago
Long time no post lol
Hiya all who remember moi 😊 hope your all well as can be Just an update for myself as well as I forget dates but hopefully helpful 🙂 Have had major problems with platelets dropped down to 20 about a year ago so was bruising like a pear and I don't think i had so many phone calls from hematology they
Hiya all who remember moi 😊 hope your all well as can be Just an update for myself as well as I forget dates but hopefully helpful 🙂 Have had major problems with platelets dropped down to 20 about a year ago so was bruising like a pear and I don't think i had so many phone calls from hematology they
jojokarak
in
British Liver Trust
3 years ago
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Transforming Lung Cells Critical for Pulmonary Fibrosis.
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
2greys
in
Lung Conditions Community Forum
3 years ago
Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Rocky213
in
Pernicious Anaemia Society
3 years ago
CT Promising for Sublobar Resection in Early-Stage Non-Small Cell Lung Cancer.
CT features may help identify which patients with stage IA non-small cell lung cancer are optimal candidates for sublobar resection, rather than more extensive surgery. This retrospective study included 904 patients (453 men, 451 women; mean age, 62 years) who underwent lobectomy (n=574) or sublobar
CT features may help identify which patients with stage IA non-small cell lung cancer are optimal candidates for sublobar resection, rather than more extensive surgery. This retrospective study included 904 patients (453 men, 451 women; mean age, 62 years) who underwent lobectomy (n=574) or sublobar
2greys
in
Lung Conditions Community Forum
3 years ago
Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
Do you want to have a friendly chat with a researcher about your experiences?
[We're still recruiting to this study in case there are any new members or people who still wanted to take part] Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL and funded by Cancer Research UK.
[We're still recruiting to this study in case there are any new members or people who still wanted to take part] Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL and funded by Cancer Research UK.
georgiabellblack
in
The Roy Castle Lung Cancer Foundation
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
Exercise post lung transplant
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hidden
in
Lung Conditions Community Forum
3 years ago
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
67Red
in
MPN Voice
3 years ago
Lung cancer
Hello my mum has been diagnosed with non small cell lung cancer and as anyone can imaging it’s a big shock to the family ,it’s on her right lung 3 cm she has been offered radiotherapy I’m not sure the difference between chemotherapy and radiotherapy and will it shrink the tumour or take it away I’m
Hello my mum has been diagnosed with non small cell lung cancer and as anyone can imaging it’s a big shock to the family ,it’s on her right lung 3 cm she has been offered radiotherapy I’m not sure the difference between chemotherapy and radiotherapy and will it shrink the tumour or take it away I’m
Elsy12345
in
Lung Conditions Community Forum
3 years ago
Tocilizumab
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
AncientMariner
in
PMRGCAuk
3 years ago
A further update on the old taper journey ...
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
LemonZest11
in
PMRGCAuk
3 years ago
mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia Support
3 years ago
“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
Multi-drug resistant infection spreading globally among cystic fibrosis patients.
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
2greys
in
Lung Conditions Community Forum
3 years ago
Can someone give me an advice...Am I needing for an lung operation?
THORACIC CT EXAMINATION In the examination performed by giving intravenous contrast material; Tracing and calibration of mediastinal vascular structures are normal. Calcified-non-calcified plaques with irregular surfaces were observed in the aorta. Heart chambers are within normal limits. The trachea
THORACIC CT EXAMINATION In the examination performed by giving intravenous contrast material; Tracing and calibration of mediastinal vascular structures are normal. Calcified-non-calcified plaques with irregular surfaces were observed in the aorta. Heart chambers are within normal limits. The trachea
Adnan60
in
Lung Conditions Community Forum
3 years ago
Age-related muscle loss and walking abilities predict outcomes after lung cancer surgery.
Lung cancer is a major global cause of mortality, reportedly accounting for 1.7 million deaths each year. The most common form of lung cancer is non-small-cell lung cancer (NSCLC), and early-stage NSCLCs can often be surgically resected. Unfortunately, some patients still experience poor outcomes after
Lung cancer is a major global cause of mortality, reportedly accounting for 1.7 million deaths each year. The most common form of lung cancer is non-small-cell lung cancer (NSCLC), and early-stage NSCLCs can often be surgically resected. Unfortunately, some patients still experience poor outcomes after
2greys
in
Lung Conditions Community Forum
3 years ago
Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
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