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ADT duration
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
SimMartin
in
Advanced Prostate Cancer
11 months ago
Zoladex Advice
Hi All, due to start on zoladex injections next week after laparoscopy not helping with pain or periods. Any advice on them as consultant said can feel quite ill for 2/3 weeks after 1st one so not sure how bad ill be and whether to cancel social plans? Just want to be prepared! Thanks! :)
Hi All, due to start on zoladex injections next week after laparoscopy not helping with pain or periods. Any advice on them as consultant said can feel quite ill for 2/3 weeks after 1st one so not sure how bad ill be and whether to cancel social plans? Just want to be prepared! Thanks! :)
Cats1311
in
Endometriosis UK
11 months ago
Still ovluating while on zoladex
Hi all I've been on zoladex since may (previously had it for a year in 2018 and it worked well for me). Have just had an ultrasound and been told that i am still ovulating (at least explains the pain!). Haven't heard of this happening before and haven't been able to find any info online about this.
Hi all I've been on zoladex since may (previously had it for a year in 2018 and it worked well for me). Have just had an ultrasound and been told that i am still ovulating (at least explains the pain!). Haven't heard of this happening before and haven't been able to find any info online about this.
lhopper
in
Endometriosis UK
11 months ago
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Treatment after Zoladex/Prostrap
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
Hfm89
in
Endometriosis UK
11 months ago
Pain while on zoladex
Hi all. Ive been on zoladex now for 8 weeks. Had an ablation in December which completely stopped my periods but (as expected) didn't help with pain at all. Zoladex recommended to stop pain while i await my gynae appt. I previously had a year on zoladex in 2018 which worked wonders. Am still experiencing
Hi all. Ive been on zoladex now for 8 weeks. Had an ablation in December which completely stopped my periods but (as expected) didn't help with pain at all. Zoladex recommended to stop pain while i await my gynae appt. I previously had a year on zoladex in 2018 which worked wonders. Am still experiencing
lhopper
in
Endometriosis UK
1 year ago
Zoladex, Tibolone and low mood
Hi all, Back in the chemical menopause whilst I wait for my hysterectomy and I don't even feel like me and I really need some help. Since starting Zoladex again (8 days ago) I have been taking Tibolone as prescribed to counter balance the menopausal side effect. I am unsure if it is the Zoladex or
Hi all, Back in the chemical menopause whilst I wait for my hysterectomy and I don't even feel like me and I really need some help. Since starting Zoladex again (8 days ago) I have been taking Tibolone as prescribed to counter balance the menopausal side effect. I am unsure if it is the Zoladex or
Spangalow07
in
Endometriosis UK
1 year ago
What questions did you wish you’d asked before hysterectomy?
Hi All, I had excision surgery (BSGE surgeon) last autumn (pouch of Douglas, uterosacral ligament and uterine wall) and since spring this year the pain has returned. I’d been offered Zoladex or a hysterectomy, but i pushed for an MRI before making any decisions (the surgeon put me on the waiting list
Hi All, I had excision surgery (BSGE surgeon) last autumn (pouch of Douglas, uterosacral ligament and uterine wall) and since spring this year the pain has returned. I’d been offered Zoladex or a hysterectomy, but i pushed for an MRI before making any decisions (the surgeon put me on the waiting list
Saffie123
in
Endometriosis UK
1 year ago
prostap
Hi Has anyone else experienced severe kidney area pain one side (right) I’ve had this pain a few weeks now and never had it before. I’ve had one dose of prostap following on from zoladex. Could it be linked? Also general bad pain all over and just feeling not right somehow. Any thoughts?
Hi Has anyone else experienced severe kidney area pain one side (right) I’ve had this pain a few weeks now and never had it before. I’ve had one dose of prostap following on from zoladex. Could it be linked? Also general bad pain all over and just feeling not right somehow. Any thoughts?
MrsPaddingtonBear
in
Endometriosis UK
1 year ago
Should I fight for Darolutamide ?
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
CarlosBrasil
in
Advanced Prostate Cancer
1 year ago
Overweight with a high BMI
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries.My consultant is really good, however he has specified that I need to get my BMI down to 35 or below before I'd be considered for a full hysterectomy (I've already waited over three years for one)
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries.My consultant is really good, however he has specified that I need to get my BMI down to 35 or below before I'd be considered for a full hysterectomy (I've already waited over three years for one)
Em_46
in
Endometriosis UK
1 year ago
Still no period
hello everyone, first time writing on here😊 So basically I’ve got severe stage 4 Endo, I’ve had a lap done last year which showed the severe endo in vagina, bladder and bowel along with cysts and a blocked fallopian tube. This year i had that fallopian tube removed. I was on the Zoladex injection
hello everyone, first time writing on here😊 So basically I’ve got severe stage 4 Endo, I’ve had a lap done last year which showed the severe endo in vagina, bladder and bowel along with cysts and a blocked fallopian tube. This year i had that fallopian tube removed. I was on the Zoladex injection
Devongirl2022
in
Endometriosis UK
1 year ago
Prostap
Anyone currently or previously been on Prostap? Finding it pretty rough. Been on Zoladex for 15 months then straight onto Prostap. 2nd jab due in couple of weeks. Does it get better?
Anyone currently or previously been on Prostap? Finding it pretty rough. Been on Zoladex for 15 months then straight onto Prostap. 2nd jab due in couple of weeks. Does it get better?
MrsPaddingtonBear
in
Endometriosis UK
1 year ago
Goserelin - side effects profile variability between implants
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
SimMartin
in
Advanced Prostate Cancer
1 year ago
Should I have RT, given the possible permanent SEs
I had an RP in 2015, and was clear until diagnosed in Dec 2022 with metastatic Pc, PSA .61. Started Bicalutamide and have had 2 Zoladex injections . PSA is now.01. My OC now wants to start RT with 33 sessions. I want to know if I can avoid RT altogether, because of the damage and side effects that might
I had an RP in 2015, and was clear until diagnosed in Dec 2022 with metastatic Pc, PSA .61. Started Bicalutamide and have had 2 Zoladex injections . PSA is now.01. My OC now wants to start RT with 33 sessions. I want to know if I can avoid RT altogether, because of the damage and side effects that might
Dazzaboy
in
Advanced Prostate Cancer
1 year ago
Feeling abandoned by Hospital - Advice?
Hey all, I am at a loss at the moment. I have Endo, adenomyosis and colitis. I have had 3 laps and on various medication. January 2022, my treatment has been moved from Gynea to Pelvic Pain Management and I was put onto the Zoladex injection and HRT - for 6 months..... however it never stopped
Hey all, I am at a loss at the moment. I have Endo, adenomyosis and colitis. I have had 3 laps and on various medication. January 2022, my treatment has been moved from Gynea to Pelvic Pain Management and I was put onto the Zoladex injection and HRT - for 6 months..... however it never stopped
_Noo_
in
Endometriosis UK
1 year ago
Radiotherapy so far
just on my way to the hospital for #15 radiotherapy session, only got 8 more to do after today, I’ve been feeling okay some days a bit tired and I’ve got a bit of watery diarrhoea, but on the whole I’m good, eating and sleeping well,and I’ve only got 1 more zoladex injection next month, it’s hard to
just on my way to the hospital for #15 radiotherapy session, only got 8 more to do after today, I’ve been feeling okay some days a bit tired and I’ve got a bit of watery diarrhoea, but on the whole I’m good, eating and sleeping well,and I’ve only got 1 more zoladex injection next month, it’s hard to
ukpete
in
Prostate Cancer Network
1 year ago
Hysterectomy advice
Hello all, I have been off of Zoladex for around 6 months and went for some more in-depth scans a couple of weeks ago which showed severe damage to both ovaries (specifically however the left ovary is not having a good time) and lots of fibroids, cysts and sticky tissue. Consultant call today has
Hello all, I have been off of Zoladex for around 6 months and went for some more in-depth scans a couple of weeks ago which showed severe damage to both ovaries (specifically however the left ovary is not having a good time) and lots of fibroids, cysts and sticky tissue. Consultant call today has
Spangalow07
in
Endometriosis UK
1 year ago
Hysterectomy & bowel re-section advice
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Bookish_Girl
in
Endometriosis UK
1 year ago
Zoladex
Hi, I have started Zoladex to try and manage my endometreosis and adenomyosis. As a 22 year old I am nervous to go through the menopause (albeit temporary) and i have been told endo pain and bleeding will get worse before it gets better whist on zoladex. I should also say im coming off the pill ive
Hi, I have started Zoladex to try and manage my endometreosis and adenomyosis. As a 22 year old I am nervous to go through the menopause (albeit temporary) and i have been told endo pain and bleeding will get worse before it gets better whist on zoladex. I should also say im coming off the pill ive
Emzo1907
in
Endometriosis UK
1 year ago
Zoladex & NO HRT
Is there any ladies out there who have had a positive experience with the zoladex injection without HRT? I can’t take HRT due to medical conditions so I’m going on the zoladex but worried about side effects but hopefully will give me relief from such awful symptoms I have now with the endo & suspected
Is there any ladies out there who have had a positive experience with the zoladex injection without HRT? I can’t take HRT due to medical conditions so I’m going on the zoladex but worried about side effects but hopefully will give me relief from such awful symptoms I have now with the endo & suspected
Cats1311
in
Endometriosis UK
1 year ago
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