Experiences with

Neuroendocrine tumours

I'm hoping to take an SSRI but can't until I get the results of a 24 hour urine test for neuroendocrine tumours, which I should hopefully have on Monday. So it's been torture trying to stay in one piece mentally.

My husband has untreated CLL and is now being treated for a second squamous cell carinmona (SCC) ie. skin cancer. I've just read a study published in the British Journal of Cancer (August 2024) that looked at the possible role of CLL in accelerating SCC development due to receptor tyrosine kinase AXL

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy. The article summary explains its aims: [i]"Chronic lymphocytic leukaemia

Hi this follows problems with areas of skin on my face which I just wonder is a side effect of my RA medications as it’s due to sun damaged skin and I’ve always worn sun screen!! Am aware that some medications increase your sensitivity to the uv rays of the sun anybody else have this skin problem ?

I was referred for a skin biopsy on 19/7/24 and told it didn’t look worrying so the results might take some time. Ok, I thought, they know best. I called the consultant’s secretary last Thursday as the lesion is now much worse than when they biopsied it. She wasn’t there naturally but returned my call

I've had the same now for about 15 years. I've been referred to 4 consultants over that time and nothing clears it completely. Antibiotics ease it for a short time. I have a daily nasal spray Nasonex and antihistamines prescribed by GP. I use a Neti pot with Neil Med sachets when it gets really bad and

I was referred for a skin biopsy on 19/7/24 and told it didn’t look worrying so the results might take some time. Ok, I thought, they know best. I called the consultant’s secretary last Thursday as the lesion is now much worse than when they biopsied it. She wasn’t there naturally but returned my call

I have severe facial pain and have to take daily painkillers anyone have any tips, I am still waiting to see someone at the Bell’s palsy clinic

hello, i’m still feeling very upset about my brain injury (undiagnosed), after taking roaccutane all that time ago. i feel like ibe lost a part of myself. life’s been such a struggle since experiencing the nasty long term side effects, and i just don’t feel like myself since then, more than half a

Hi, further to my first post a few days ago, I’ve received the below report from my mri with contrast. has anyone else suffered a mild TBI and also had a large cyst with the below findings? I’m worried if I risk surgery I will only see minor improvement due to TBI or could be hopeful removing the

Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any

Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any

I have an actinic keratosis on the bridge of my nose and what looks like a BCC which has sprung up pretty quickly on the side of my forehead. I am white, freckly but don't burn easily. 53 yr old female. Live in UK in near darkness (!). Work indoors and cover up with a hat in the summer sun. I don't

I got a double whammy diagnosis 10 days ago. My CLL was diagnosed when getting a mole removed which turns out to be a malignant melanoma. Am going in for some more surgery on my mole shortly and they will run tests on my lymph nodes at the same time. It appears that we are at greater risk of melanoma

Hi It has been a long time since I have posted anything as have been severely ill with my asthma for the past two and a half years so that has taken all my time.To cut a long story short I am now on biological therapy which has so far changed my life!. Anyway I am now doing the dead slow method or whatever

Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?

Sharing, how in life something can simply change your life. And do the best we can to carry on, the way we are now in life! That was a the day , a decision for operation date. Did have a further MRI in August ,before operation 3 September 2018, Eye sight was fine until 2 weeks before op ,my left eye

Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram

I received a text from the WIFE of a buddy. She said he has been diagnosed with advanced PC. She had no real particulars other than it was in his spine, pelvic area and lymph nodes, bladder, etc. The really scary part of the text was she sounded upbeat because the doctor was very optimistic- just

Hello, just came across this forum nice to see so many people having good results with ibrance, I am hoping to be the same early days... for me has anyone been on this medicine longer than 5years they say it works for 2 years for metastatic brest cancer..?