Experiences with

Neuroendocrine tumours

I'm hoping to take an SSRI but can't until I get the results of a 24 hour urine test for neuroendocrine tumours, which I should hopefully have on Monday. So it's been torture trying to stay in one piece mentally.

I have been having increased RA flares for over the last 9 months. All extra oral medication so far, either haven’t worked or o can’t tolerate. Seeing my rheumatologist to discuss starting Etanercept. I have been checking the side effects and one is increase risk of skin cancer. I have already had

I'm 69 diagnosed 8 months ago. 400mg venclexta. Gratefully, the many swollen lymph nodes disappeared weeks after starting infusions. I did seven infusions and am on Venclexta now. I don't know what symptoms are from CLL and what are from venclexta. I get tired pretty easily. My muscle mass seems to

i have CLL and doing great. On Ibrutinib since Feb 2019. Was recently diagnosed with basal cell skin cancer on the bridge of my nose. Also have another suspicious spot on the end of the nose. Going to have a Mohs procedure on the bridge coming up Has anyone else been through this?

My son had a craniotomy following a TBI in December 2021, he subsequently had a cranioplasty using his bone flap in May 2022. He usually isn't aware of his scar but in the last week or so has had a tingling sensation in his scar and headaches. I'll be mentioning this at his appointment in early March

My husband has untreated CLL and is now being treated for a second squamous cell carinmona (SCC) ie. skin cancer. I've just read a study published in the British Journal of Cancer (August 2024) that looked at the possible role of CLL in accelerating SCC development due to receptor tyrosine kinase AXL

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy. The article summary explains its aims: [i]"Chronic lymphocytic leukaemia

Hi this follows problems with areas of skin on my face which I just wonder is a side effect of my RA medications as it’s due to sun damaged skin and I’ve always worn sun screen!! Am aware that some medications increase your sensitivity to the uv rays of the sun anybody else have this skin problem ?

I was referred for a skin biopsy on 19/7/24 and told it didn’t look worrying so the results might take some time. Ok, I thought, they know best. I called the consultant’s secretary last Thursday as the lesion is now much worse than when they biopsied it. She wasn’t there naturally but returned my call

I've had the same now for about 15 years. I've been referred to 4 consultants over that time and nothing clears it completely. Antibiotics ease it for a short time. I have a daily nasal spray Nasonex and antihistamines prescribed by GP. I use a Neti pot with Neil Med sachets when it gets really bad and

I was referred for a skin biopsy on 19/7/24 and told it didn’t look worrying so the results might take some time. Ok, I thought, they know best. I called the consultant’s secretary last Thursday as the lesion is now much worse than when they biopsied it. She wasn’t there naturally but returned my call

I have severe facial pain and have to take daily painkillers anyone have any tips, I am still waiting to see someone at the Bell’s palsy clinic

hello, i’m still feeling very upset about my brain injury (undiagnosed), after taking roaccutane all that time ago. i feel like ibe lost a part of myself. life’s been such a struggle since experiencing the nasty long term side effects, and i just don’t feel like myself since then, more than half a

Good morning all, Next Tuesday 8th April from 12:00-1:00pm, we are delighted to be hosting a webinar on the topic of 'Ovarian cancer and Diet: Mythbusting' with dietitian Rachel White. In this webinar, Rachel will give an overview on the current nutrition recommendations and research. The session

I have been taking Ibrance and Letrozole for approx 3 years. I am healthy and active and lead a healthy lifestyle but my cholesterol levels have skyrocketed. They were never monitored by my oncologist. This came about from getting a new general practitioner. I have been doing some research and have

Hey folks I've been researching and meeting with different doctors to get their recommendations for treatment. I'm zeroing in on a plan, but I'd like to get some feedback from you all. I was diagnosed in 2017 and have been on AS since. Recent testing (MRI, Biopsy, PET/CT scan) shows 3+4 with about

I need to decide. Urgency? Been on Lupron for 3 treatments now9months. Aware 5 - 10 year results similar. Where radiation much less side effects up front. long term +10 years rp has better recurrence free %. I would go radiation knowing I can do rp later if recurs, psa goes up. problem surgery

Underwent HDR BT October 2020 to treat 6(3+3), 7(3+4), and one unknown tumor missed by TRUS. Late 2024 PSA doubles from 1.51 ng/ml to 3.28 in 4 months, then to 5.08 four months later. Last Thur/Fri underwent PSMA PET and MRI at Roswell Park, Buffalo, NY. Major worry of metastasis is off the table

TTX-MC138, an RNA-based therapeutic targeting microRNA-10b, implicated in metastatic cancers is currently in Phase 1 clinical trial. The trial has progressed to its fourth cohort, administering a dose approximately 50% higher than the previous cohort, with no significant safety issues or dose-limiting

I have already written about this, it is, in a nutshell, a drug that prevents or reverses resistance to existing ARSIs. The safety lead-in phase of a Phase 2 trial for ENV105, an innovative therapy for metastatic, castration-resistant prostate cancer (mCRPC), has been successfully completed. The