Search
Search
About
Log in
Join
Experiences with
Neurodegenerative Disease
Posts
Communities
43,867 public posts
Filter results
Lymphedema a year post 28 IMRTs and QoLin for the Weekend
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 milesš, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking š did 6.2 Sat am Got
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 milesš, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking š did 6.2 Sat am Got
dockam
in
Advanced Prostate Cancer
4 months ago
Imuran Side Effects
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
AIGal73
in
British Liver Trust
7 months ago
How UV affects us
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
Looking west Isle of Wight, Taken on a local walk a few weeks ago. I found this an internet explanation. Thanks to Striated Cacara. UV rays damage the cells of the skin. When the cells of the skin become damaged from UV light, it causes them to die, in a process known as apoptosis. In a person without
IsleofWight1
in
LUPUS UK
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
exercise and thyroid
Good morning all! Hope everyone is doing well today. a quick question if I may - I have been living with a thyroid diagnosis for the last 5 years. In this time, thereās been a load of experimenting, trials and tribulations with diet etc. I am happy with that (thank goodness because itās taken some
Good morning all! Hope everyone is doing well today. a quick question if I may - I have been living with a thyroid diagnosis for the last 5 years. In this time, thereās been a load of experimenting, trials and tribulations with diet etc. I am happy with that (thank goodness because itās taken some
Choc_Cream
in
Thyroid UK
7 months ago
Sodium Lauryl Sulphate&Iron
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Mattie2022
in
Thyroid UK
4 months ago
Finasteride: "Miracle drug" regrows hair, heals prostate, and also boosts heart health ByEric Ralls Earth.com
I am now thinking to add Finasteride to Bicalutamide plus degarelix injections. Would/could it help me if on the psma pet scan my only visible cancer is in my prostate? I had radiation therapy to my prostate but my prostate cancer is back and looks like that the radiation therapy failed and the most
I am now thinking to add Finasteride to Bicalutamide plus degarelix injections. Would/could it help me if on the psma pet scan my only visible cancer is in my prostate? I had radiation therapy to my prostate but my prostate cancer is back and looks like that the radiation therapy failed and the most
Seasid
in
Advanced Prostate Cancer
7 months ago
Radiation side effects
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
shihtzu124
in
Advanced Prostate Cancer
4 months ago
GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. Iām on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so heās agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. Iām on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so heās agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
5 months ago
Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
5 months ago
More questions
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
HotGuacamole
in
Atrial Fibrillation Support
4 months ago
Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
5 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year itās gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year itās gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
5 months ago
New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
Unusual prescription?
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Globus
in
Anticoagulation Support
4 months ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
5 months ago
Advanced prostate cancer
Hey there,I'm just seeing if I can get any insight on this from anyone living this now.My father is 70 and was recently diagnosed with prostate cancer and there was a spot on his rob as well from it.I don't know what stage it is but he is currently on hormone therapy and gets injections every 3 months
Hey there,I'm just seeing if I can get any insight on this from anyone living this now.My father is 70 and was recently diagnosed with prostate cancer and there was a spot on his rob as well from it.I don't know what stage it is but he is currently on hormone therapy and gets injections every 3 months
Catdog1111
in
Advanced Prostate Cancer
7 months ago
PET Brain Scans Find āSmolderingā Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Womenās Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Womenās Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
5 months ago
Lightheadedness after AFib episode
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
Jomaur
in
Atrial Fibrillation Support
4 months ago
URSO and Fatigue
Question about URSOā¦.is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Question about URSOā¦.is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Gaspereaux
in
British Liver Trust
7 months ago
Fibroscan
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Givemecoffee
in
British Liver Trust
7 months ago
1
...
71
72
73
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5734 results
British Liver Trust
4583 results
Advanced Prostate Cancer
4548 results
View top 10 communities
Sort by
Most Relevant
Newest