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New Drug May Repair Myelin
I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting
I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting
NanciG
in
My MSAA Community
2 months ago
Help in understanding drugs in Parkinsons
I've recently been diagnosed with Parkinsons and have been prescribed LevaDopa -1/2 tablet (125mg) 4 times per day. I understand that there are complimentary drugs such MAO-B Inhibitors (such as Selegiline, Rasagiline, and Safinamide) I've done some cursory reseach which indicates that MAO-B inhibitors
I've recently been diagnosed with Parkinsons and have been prescribed LevaDopa -1/2 tablet (125mg) 4 times per day. I understand that there are complimentary drugs such MAO-B Inhibitors (such as Selegiline, Rasagiline, and Safinamide) I've done some cursory reseach which indicates that MAO-B inhibitors
Mezmerric
in
Cure Parkinson's
6 months ago
Joint pain very common in lupus, affects patients’ life quality: Study
Joint pain very common in lupus, affects patients’ life quality: Study SLE marked by ache, discomfort, numbness in hands, wrists and knees by Patricia Inacio, PhD The vast majority of people with systemic lupus erythematosus (SLE) experience musculoskeletal symptoms, marked by pain, ache, discomfort
Joint pain very common in lupus, affects patients’ life quality: Study SLE marked by ache, discomfort, numbness in hands, wrists and knees by Patricia Inacio, PhD The vast majority of people with systemic lupus erythematosus (SLE) experience musculoskeletal symptoms, marked by pain, ache, discomfort
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
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belimumab Infusions
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
MaryannM
in
LUPUS UK
6 months ago
L-Theanine (not to be confused with Theanine B1)
Does anybody have any experience of supplementing with L-Theanine, (or drinking Green Tea, which contains L-Theanine) to help with sleep or any symptoms of Parkinsons? This video piqued by interest as it indicates that L-Theanine reduces the excitatory signals of Glutamate in the brain. https://www.youtube.com
Does anybody have any experience of supplementing with L-Theanine, (or drinking Green Tea, which contains L-Theanine) to help with sleep or any symptoms of Parkinsons? This video piqued by interest as it indicates that L-Theanine reduces the excitatory signals of Glutamate in the brain. https://www.youtube.com
Mezmerric
in
Cure Parkinson's
6 months ago
US FDA declines to approve Supernus' Parkinson's combination again
The company plans to address the FDA's concerns and resubmit its application for the product, which aims to treat so-called "off episodes", which affects nearly all patients of Parkinson's, heightening symptoms such as tremors and difficulty in walking, as medication wears off. https://www.reuters.com
The company plans to address the FDA's concerns and resubmit its application for the product, which aims to treat so-called "off episodes", which affects nearly all patients of Parkinson's, heightening symptoms such as tremors and difficulty in walking, as medication wears off. https://www.reuters.com
Farooqji
in
Cure Parkinson's
6 months ago
Protein discovery could help solve prostate cancer drug resistance Date:January 22, 2024 Source:Washington State University
I found this information while researching my husband's PSA rising issues. Found it interesting and want to share. Click on link to read the entire article https://www.sciencedaily.com/ Protein discovery could help solve prostate cancer drug resistance Date: January 22, 2024 Source: Washington
I found this information while researching my husband's PSA rising issues. Found it interesting and want to share. Click on link to read the entire article https://www.sciencedaily.com/ Protein discovery could help solve prostate cancer drug resistance Date: January 22, 2024 Source: Washington
MsHope
in
Advanced Prostate Cancer
6 months ago
Hashimoto's and gut
Hi there, I have really sluggish digestion that's been getting worse and now I realise I have Hashi's it's starting to make sense. I've also discovered from this forum that we often have low stomach acidity and I'd like to understand more about this...how do we find out if that's definitely something
Hi there, I have really sluggish digestion that's been getting worse and now I realise I have Hashi's it's starting to make sense. I've also discovered from this forum that we often have low stomach acidity and I'd like to understand more about this...how do we find out if that's definitely something
LifeintheMed
in
Thyroid UK
2 months ago
child low cortisol
Hi, I would be very grateful for any advice etc on the following. My 9 year old daughter has had a blood test come back with borderline low cortisone ( that’s what the doctor has described it as). She is waiting for a test but apparently it can take months. The doctor has mentioned Addisons and under
Hi, I would be very grateful for any advice etc on the following. My 9 year old daughter has had a blood test come back with borderline low cortisone ( that’s what the doctor has described it as). She is waiting for a test but apparently it can take months. The doctor has mentioned Addisons and under
Karatesarah
in
Thyroid UK
6 months ago
Fibroscan result waiting time?
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Trotter2024
in
British Liver Trust
6 months ago
feeling unwell
hello I have underactive thyroid , but now it is overactive I’ve been told , since reducing my meds , I have had such an awful feeling oh painful sensitive throat , wierd flutter with tounge and very sensitive gums , I have hashimotos and have nodules, keep getting hot and cold , any advise on what I
hello I have underactive thyroid , but now it is overactive I’ve been told , since reducing my meds , I have had such an awful feeling oh painful sensitive throat , wierd flutter with tounge and very sensitive gums , I have hashimotos and have nodules, keep getting hot and cold , any advise on what I
Prosecco1997
in
Thyroid UK
2 months ago
Test Results - How bad is it?
Hi all, I went to the GP as I keep getting sharp pains in my right abdomen (upper quadrant) and multiple bruises appearing beneath my ribcage area, mostly on the right side but sometimes left. The doctor ordered a whole bunch of tests, including thyroid. My results came back abnormal for thyroid. Everything
Hi all, I went to the GP as I keep getting sharp pains in my right abdomen (upper quadrant) and multiple bruises appearing beneath my ribcage area, mostly on the right side but sometimes left. The doctor ordered a whole bunch of tests, including thyroid. My results came back abnormal for thyroid. Everything
LeanneMK
in
Thyroid UK
2 months ago
Botox and autoimmune illness
Hi all I was always under the impression that Botox is something to be avoided with autoimmune illnesses such as Hashi’s. However my hygienist suggested it to help with my jaw clenching at night, I said I didn’t think I can because of my illness however she says her mum and sister both have hashi’s
Hi all I was always under the impression that Botox is something to be avoided with autoimmune illnesses such as Hashi’s. However my hygienist suggested it to help with my jaw clenching at night, I said I didn’t think I can because of my illness however she says her mum and sister both have hashi’s
Topes009
in
Thyroid UK
2 months ago
Help with Cortisol test
Hello all, I had a saliva cortisol test done last week. Ive got the results back but with no comments from the clinic. They look okay/normal to me? Apart from the 3rd one? I was expecting them to be low as I thought I was suffering from adrenal fatigue. Could anyone advise me on these levels?
Hello all, I had a saliva cortisol test done last week. Ive got the results back but with no comments from the clinic. They look okay/normal to me? Apart from the 3rd one? I was expecting them to be low as I thought I was suffering from adrenal fatigue. Could anyone advise me on these levels?
Dahliasanddaisies
in
Thyroid UK
6 months ago
EU Approves Subcutaneous Formulation of Ocrelizumab for Multiple Sclerosis Treatment
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (Ocrevus; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS). The subcutaneous injection was designed
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (Ocrevus; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS). The subcutaneous injection was designed
BettysMom
in
My MSAA Community
2 months ago
How about eating a healthy snack that might help fight PCa. Lotus seeds (Nelumbo nucifera) also known as makhana contain Neferine, see below
Neferine inhibits proliferation and migration of human prostate cancer stem cells through p38 MAPK/JNK activation Suat Erdogan, Kader Turkekul First published: 11 May 2020 https://doi.org/10.1111/jfbc.13253 Abstract Cancer stem cells (CSCs) are one of the significant causes of cancer treatment failure
Neferine inhibits proliferation and migration of human prostate cancer stem cells through p38 MAPK/JNK activation Suat Erdogan, Kader Turkekul First published: 11 May 2020 https://doi.org/10.1111/jfbc.13253 Abstract Cancer stem cells (CSCs) are one of the significant causes of cancer treatment failure
Graham49
in
Advanced Prostate Cancer
6 months ago
Just Asking For Advice/ Opinions.
I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed arent available in primary care. Basically I had early severe pre eclampsia in my first pregnancy in 1991. I was very unwell and sadly my son died
I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed arent available in primary care. Basically I had early severe pre eclampsia in my first pregnancy in 1991. I was very unwell and sadly my son died
Sparklingsunshine
in
Hughes Syndrome APS Forum
2 months ago
shrinking lung syndrome
Has anyone else been diagnosed with a rare condition called shrinking lung syndrome. It’s so rare, approximately only 0.5-1.1 % people with Lupus get it. I’m real scared as at time I feel like I’m slowly suffocating! Still getting more tests done to see if diaphragm isn’t partially paralyzed. Did you
Has anyone else been diagnosed with a rare condition called shrinking lung syndrome. It’s so rare, approximately only 0.5-1.1 % people with Lupus get it. I’m real scared as at time I feel like I’m slowly suffocating! Still getting more tests done to see if diaphragm isn’t partially paralyzed. Did you
hihannula
in
LUpus Patients Understanding and Support
6 months ago
Is anyone familiar with the GUN trial?
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
EvFC
in
Advanced Prostate Cancer
6 months ago
T3 affecting sex hormones
Hi, I was diagnosed with an underactive thyroid earlier this year. I am currently taking 25mg T4 (50mg caused significant bloating) and 30mg T3 as split doses. I'm on a high dose of adrenal support as my Cortisol & DHEA were shown to be very low in a Dutch test earlier this year. Since starting T3
Hi, I was diagnosed with an underactive thyroid earlier this year. I am currently taking 25mg T4 (50mg caused significant bloating) and 30mg T3 as split doses. I'm on a high dose of adrenal support as my Cortisol & DHEA were shown to be very low in a Dutch test earlier this year. Since starting T3
Sunnyyellowlady
in
Thyroid UK
2 months ago
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